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  1. The Disclosure of Genetic Information: A Human Research Ethics Perspective.Danielle E. Dye, Leanne Youngs, Beverley McNamara, Jack Goldblatt & Peter O’Leary - 2010 - Journal of Bioethical Inquiry 7 (1):103-109.
    Increasing emphasis on genetic research means that growing numbers of human research projects in Australia will involve complex issues related to genetic privacy, familial information and genetic epidemiology. The Office of Population Health Genomics (Department of Health, Western Australia) hosted an interactive workshop to explore the ethical issues involved in the disclosure of genetic information, where researchers and members of human research ethics committees (HRECs) were asked to consider several case studies from an ethical perspective. Workshop participants used a variety (...)
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  • Instrumentalist analyses of the functions of ethics concept-principles: a proposal for synergetic empirical and conceptual enrichment.Eric Racine, M. Ariel Cascio, Marjorie Montreuil & Aline Bogossian - 2019 - Theoretical Medicine and Bioethics 40 (4):253-278.
    Bioethics has made a compelling case for the role of experience and empirical research in ethics. This may explain why the movement for empirical ethics has such a firm grounding in bioethics. However, the theoretical framework according to which empirical research contributes to ethics—and the specific role it can or should play—remains manifold and unclear. In this paper, we build from pragmatic theory stressing the importance of experience and outcomes in establishing the meaning of ethics concepts. We then propose three (...)
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