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  1. Engagement, Exploitation, and Human Intracranial Electrophysiology Research.Michelle T. Pham, Nader Pouratian & Ashley Feinsinger - 2022 - Neuroethics 15 (3):1-15.
    Motivated by exploitation concerns, we argue for the importance of participant engagement in basic human intracranial electrophysiology research. This research takes advantage of unique neurosurgical opportunities to better understand complex systems of the human brain, but it also exposes participants to additional risks without immediate therapeutic intent. We argue that understanding participant values and incorporating their perspectives into the research process may help determine whether and to what extent research practices and the resulting distributions of risks and benefits constitute exploitation (...)
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  • “They were already inside my head to begin with”: Trust, Translational Misconception, and Intraoperative Brain Research.Ally Peabody Smith, Lauren Taiclet, Hamasa Ebadi, Lilyana Levy, Megan Weber, Eugene M. Caruso, Nader Pouratian & Ashley Feinsinger - 2023 - AJOB Empirical Bioethics 14 (2):111-124.
    Background: Patients undergoing invasive neurosurgical procedures offer researchers unique opportunities to study the brain. Deep brain stimulation patients, for example, may participate in research during the surgical implantation of the stimulator device. Although this research raises many ethical concerns, little attention has been paid to basic studies, which offer no therapeutic benefits, and the value of patient-participant perspectives.Methods: Semi-structured interviews were conducted with fourteen individuals across two studies who participated in basic intraoperative research during their deep brain stimulator surgery. Interviews (...)
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