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Uninformed Consent? The Effect of Participant Characteristics and Delivery Format on Informed Consent

Kyle R. Ripley, Margaret A. Hance, Stacey A. Kerr, Lauren E. Brewer & Kyle E. Conlon

Ethics and Behavior 28 (7):517-543 (2018)

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The participant’s voice: crowdsourced and undergraduate participants’ views toward ethics consent guidelines.Nadine S. J. Stirling & Melanie K. T. Takarangi - forthcoming - Ethics and Behavior.details The informed consent process presents challenges for psychological trauma research (e.g. Institutional Review Board [IRB] apprehension). While previous research documents researcher and IRB-member perspectives on these challenges, participant views remain absent. Thus, using a mixed-methods approach, we investigated participant views on consent guidelines in two convenience samples: crowdsourced (N = 268) and undergraduate (N = 265) participants. We also examined whether trauma-exposure influenced participant views. Overall, participants were satisfied with current guidelines, providing minor feedback and ethical reminders for researchers. Moreover, (...) Download Export citation Bookmark
Psychology of the Informed Consent Process: A Commentary on Three Recent Articles.Michael D. Mumford - 2018 - Ethics and Behavior 28 (7):513-516.details In conducting research on humans, respect for human dignity requires investigators to obtain informed consent. Institutional pressures, however, often reduce the informed consent form to a signature on a document. Unfortunately, people often do not read or understand these documents. In the present effort, we argue that the key problem here arises because investigators often do not take into account the psychology of participants. Based on 3 articles, we argue that informed consent requires investigators to help participants “make sense” of (...) Download Export citation Bookmark 2 citations
Developing a digital informed consent app: opportunities and challenges of a new format to inform and obtain consent in public health research.Luuk V. Haring, Joy T. Hall, Anton Janssen, J. Marleen Johannes, Arnoud P. Verhoeff & Joanne K. Ujcic-Voortman - 2023 - BMC Medical Ethics 24 (1):1-10.details Background Informed consent procedures for large population-based cohort studies should be comprehensive and easy-to-use. This is particularly challenging when participants from different socio-economic groups and multicultural ethnic backgrounds are involved. Recently, more and more studies have tried to use multimedia in informed consent procedures. We describe the development and testing of a digital informed consent app and elaborate on whether this may contribute to a comprehensive and practical procedure to obtain informed consent for public health research. Methods In a sample (...) Download Export citation Bookmark

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