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  1. Interrogating the concept of vulnerability in social research ethics.Anna Traianou & Martyn Hammersley - 2024 - Diametros 21 (80):7-22.
    This paper examines the concept of vulnerability in the context of social research ethics. An ambiguity is noted in use of this term: it may refer to an incapacity to provide informed consent to participate in a research project, or it may imply heightened susceptibility to the risk of harm. It is pointed out that vulnerability is a matter of degree, and that there are different sources and types of harm, which must be taken into account in any judgment about (...)
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  • Autonomy-based bioethics and vulnerability during the COVID-19 pandemic: towards an African relational approach.Mbih Jerome Tosam - 2024 - Theoretical Medicine and Bioethics 45 (3):183-197.
    The COVID-19 pandemic has provoked new interest in the notion of vulnerability and in identifying alternative approaches for responding to vulnerable patients and populations during health emergencies. In this paper, I argue that the autonomy-based approach (the most dominant approach in bioethics) to responding to vulnerability during health emergencies is deficient because it focuses only on the interests, values, and decisions of the individual patient. It overly emphasizes respect for autonomy and not respect for the patient as it does not (...)
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  • The rise of reimbursement-based medicine: the case of bone metastasis radiation treatment.Marcos Santos, Jan Helge Solbakk & Volnei Garrafa - 2018 - Journal of Medical Ethics 44 (3):171-173.
    It has been hypothesised that the reimbursement system pertaining to radiotherapy is influencing prescription practices for patients with cancer with bone metastases. In this paper, we present and discuss the results of an empirical study that was undertaken on patient records, referred to radiotherapy for the treatment of bone metastases, in a medium-size city, in southern Brazil, during the period of March 2006 to March 2014. Our findings seem to confirm this hypothesis: after a change in the reimbursement method, radiation (...)
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  • Developing an ethics framework for living donor transplantation.Lainie F. Ross & J. Richard Thistlethwaite - 2018 - Journal of Medical Ethics 44 (12):843-850.
    Both living donor transplantation and human subjects research expose one set of individuals to clinical risks for the clinical benefits of others. In the Belmont Report, the National Commission for the Protection of Human Subjects of Biomedical and Behavior Research articulated three principles to serve as the basis for a research ethics framework: respect for persons, beneficence and justice. In contrast, living donor transplantation lacks a framework. In this manuscript, we adapt the three principles articulated in the Belmont Report to (...)
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  • Tinkering With the Health of the Poor.Stuart Rennie - 2014 - American Journal of Bioethics 14 (2):43-44.
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  • Narrative Devices: Neurotechnologies, Information, and Self-Constitution.Emily Postan - 2021 - Neuroethics 14 (2):231-251.
    This article provides a conceptual and normative framework through which we may understand the potentially ethically significant roles that information generated by neurotechnologies about our brains and minds may play in our construction of our identities. Neuroethics debates currently focus disproportionately on the ways that third parties may (ab)use these kinds of information. These debates occlude interests we may have in whether and how we ourselves encounter information about our own brains and minds. This gap is not yet adequately addressed (...)
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  • Taking Care of the Vulnerable: The Criterion of Proportionality.Mario Picozzi & Renzo Pegoraro - 2017 - American Journal of Bioethics 17 (8):44-45.
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  • Acknowledging vulnerability in ethics of palliative care – A feminist ethics approach.Sofia Morberg Jämterud - 2022 - Nursing Ethics 29 (4):952-961.
    Patients in need of palliative care are often described as vulnerable. Being vulnerable can sometimes be interpreted as the opposite of being autonomous, if an autonomous person is seen as an independent, self-sufficient person who forms decisions independently of others. Such a dichotomous view can create a situation where one has experiences of vulnerability that cannot be reconciled with the central ethical principle of autonomy. The article presents a feminist ethical perspective on the conceptualisation of vulnerability in the context of (...)
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  • Protecting the future child: Foetal alcohol spectrum disorder, easy rescue and the regulation of maternal behaviour.Catherine Mills - 2023 - Bioethics 37 (8):771-778.
    This paper argues that social contexts of inequality are crucial to understanding the ethics of gestational harm and responsibility. Recent debates on gestational harm have largely ignored the social context of gestators, including contexts of inequality and injustice. This can reinforce existing social injustices arising from colonialism, socio‐economic inequality and racism, for example, through increased regulation of maternal behaviour. To demonstrate this, I focus on the related notions of the ‘future child’ and an obligation of easy rescue, which have been (...)
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  • Postpartum Maternal Tethering: A Bioethics of Early Motherhood.Katherine A. Mason - 2021 - International Journal of Feminist Approaches to Bioethics 14 (1):49-72.
    We must reconceive the ethical relationship between mothers and their newborn babies. The intertwinement of mother and baby does not disappear with birth but rather persists in the form of postpartum maternal tethering. Drawing upon three years of ethnographic fieldwork and training in the United States and China, I argue that dependencies associated with postpartum maternal tethering make it extremely difficult for postpartum mothers to act autonomously, even in the relational sense. Breaching this tether opens up new possibilities for thinking (...)
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  • The enabling value of group vulnerability.Fabio Macioce - 2023 - Contemporary Political Theory 22 (2):209-229.
    The notion of vulnerable groups has gained relevance in international legal instruments while being criticised in philosophical literature for its disabling potential and disempowering consequences. The article argues that the category of group vulnerability should not be abandoned, being an opportunity for resistance, visibility, and a place for dissent: vulnerable groups can both function as a sounding board for claims and make demands for recognition, resetting the political agenda and the topics of public debate, and allow the level of collective (...)
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  • Vulnerability and resilience: a critical nexus.Mianna Lotz - 2016 - Theoretical Medicine and Bioethics 37 (1):45-59.
    Not all forms of human fragility or vulnerability are unavoidable. Sometimes we knowingly and intentionally impose conditions of vulnerability on others; and sometimes we knowingly and intentionally enter into and assume conditions of vulnerability for ourselves. In this article, I propose a presently overlooked basis on which one might evaluate whether the imposition or assumption of vulnerability is acceptable, and on which one might ground a significant class of vulnerability-related obligations. Distinct from existing accounts of the importance of promoting autonomy (...)
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  • Two Views of Vulnerability in the Evolution of Canada’s Medical Assistance in Dying Law.Sarah J. Lazin & Jennifer A. Chandler - 2023 - Cambridge Quarterly of Healthcare Ethics 32 (1):105-117.
    Canada is six years into a new era of legalized medical assistance in dying (MAiD). The law continues to evolve, following a pattern in which Canadian courts rule that legal restrictions on eligibility for MAiD are unconstitutional and Parliament responds by gradually expanding eligibility for MAiD. The central tension underlying this dialogue between courts and government has focused on two conceptions of how to best promote and protect the interests of people who are vulnerable by virtue of intolerable and irremediable (...)
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  • Vulnerability as a Concept for Health Systems Research.Margaret Meek Lange - 2014 - American Journal of Bioethics 14 (2):41-43.
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  • Chimpanzees as vulnerable subjects in research.Jane Johnson & Neal D. Barnard - 2014 - Theoretical Medicine and Bioethics 35 (2):133-141.
    Using an approach developed in the context of human bioethics, we argue that chimpanzees in research can be regarded as vulnerable subjects. This vulnerability is primarily due to communication barriers and situational factors—confinement and dependency—that make chimpanzees particularly susceptible to risks of harm and exploitation in experimental settings. In human research, individuals who are deemed vulnerable are accorded special protections. Using conceptual and moral resources developed in the context of research with vulnerable humans, we show how chimpanzees warrant additional safeguards (...)
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  • Employing Feminist Theory of Vulnerability to Interrogate the Implications of COVID-19 Apps in Racialized Subpopulations.Tereza Hendl, Ryoa Chung & Verina Wild - 2022 - International Journal of Feminist Approaches to Bioethics 15 (1):143-145.
    Our paper was written to highlight the need for mitigating vulnerability in COVID-19 tracing technology. As the pandemic was unravelling in mid 2020 and infection rates were rising steeply across the globe, we were following the news on emerging response measures and their social impact. We were alarmed by media reports regarding racial profiling and criminalization related to the implementation of physical distancing measures. Media reports documenting the fining of predominantly Black and Hispanic people in New York City, the closures (...)
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  • Realizing Justice in the Coordinated Global Coronavirus Response.Jan-Christoph Heilinger, Sridhar Venkatapuram, Maike Voss & Verina Wild - 2022 - Global Justice: Theory Practice Rhetoric 13 (2):21-40.
    The COVID-19 pandemic is affecting countries across the globe. Only a globally coordinated response, however, will enable the containment of the virus. Responding to a request from policy makers for ethics input for a global resource pledging event as a starting point, this paper outlines normative and procedural principles to inform a coordinated global coronavirus response. Highlighting global connections and specific vulnerabilities from the pandemic, and proposing standards for reasonable and accountable decision-making, the ambition of the paper is two-fold: to (...)
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  • What can European Principlism Teach about Public Funding of IVF? The Israeli Case.Noa Harel & Miriam Ethel Bentwich - 2021 - Journal of Bioethical Inquiry 18 (3):441-454.
    Fertility treatments, which are part of "assisted reproductive technologies" (ART), mainly undertaken through in vitro fertilization (IVF), offer the opportunity to infertile couples to conceive. IVF treatments are undertaken in Israel in significantly higher numbers than in the rest of the world. As such, Israel provides an important case-in-point for examining the validity of the actual claims used to justify the more generous public funding of IVF treatments at the policy level. In this article, we utilize an analytical philosophy approach (...)
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  • Vulnerability, Relationality, and Dependency: Feminist Conceptual Resources for Food Justice.Erinn Cunniff Gilson - 2015 - International Journal of Feminist Approaches to Bioethics 8 (2):10-46.
    The contemporary industrialized global food system has sustained an onslaught of criticism from diverse parties—academic and popular, scientists and social justice advocates, activists and intellectuals—criticism that has only intensified in the late twentieth and early twenty-first centuries. Feminist voices have made substantial contributions to these critiques, calling attention to the cultural politics of food and health ; to the impact of the corporatization of agriculture on food quality, the environment, and the people of the Global South, especially women ; and (...)
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  • Autonomy, relationality, and brain-injured athletes: a critical examination of the Concussion in Sport Group’s Consensus Statements between 2001 and 2023.Francisco Javier Lopez Frias & Mike McNamee - forthcoming - Sport, Ethics and Philosophy:1-21.
    This article critically examines the development and consensus outputs of the Concussion in Sport Group. We examine the six Consensus Statements between 2001 and 2023 to explore the challenges that the presence of contextual forces pose to the development of effective and ethically justifiable medical guidelines to manage situations involving brain-injured athletes. First, we discuss the implicit and explicit ethical framework and goals underlining the statements. Secondly, drawing on a relational account of athlete choice, we expound on the limitations of (...)
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  • Situational vulnerability within mental healthcare – a qualitative analysis of ethical challenges during the COVID-19 pandemic.Mirjam Faissner, Anna Werning, Michael Winkelkötter, Holger Foullois, Michael Löhr & Jakov Gather - 2023 - BMC Medical Ethics 24 (1):1-9.
    Background Mental healthcare users and patients were described as a particularly vulnerable group in the debate on the burdens of the COVID-19 pandemic. Just what this means and what normative conclusions can be derived from it depend to a large extent on the underlying concept of vulnerability. While a traditional understanding locates vulnerability in the characteristics of social groups, a situational and dynamic approach considers how social structures produce vulnerable social positions. The situation of users and patients in different psychosocial (...)
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  • Vulnerability of pregnant women in clinical research.Indira S. E. Van der Zande, Rieke van der Graaf, Martijn A. Oudijk & Johannes J. M. Van Delden - 2017 - Journal of Medical Ethics 43 (10):657-663.
    Background Notwithstanding the need to produce evidence-based knowledge on medications for pregnant women, they remain underrepresented in clinical research. Sometimes they are excluded because of their supposed vulnerability, but there are no universally accepted criteria for considering pregnant women as vulnerable. Our aim was to explore whether and if so to what extent pregnant women are vulnerable as research subjects. Method We performed a conceptual and empirical analysis of vulnerability applied to pregnant women. Analysis A conceptual analysis supports Hurst's definition (...)
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  • Vulnerability: New Essays in Ethics and Feminist Philosophy, edited by Catriona Mackenzie, Wendy Rogers, and Susan Dodds. [REVIEW]Josh Dohmen - 2017 - International Journal of Feminist Approaches to Bioethics 10 (2):167-171.
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  • The need to invest in pandemic preparedness: COVID-19 is not the first pandemic, nor will it be the last.Ames Dhai - 2020 - South African Journal of Bioethics and Law 13 (1):3.
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  • The principle of vulnerability and its potential applications in bioethics.Enikő Demény - 2016 - Ethics and Bioethics (in Central Europe) 6 (3-4):181-186.
    The principle of vulnerability is a specific principle within European Bioethics. On the one hand, vulnerability expresses human limits and frailty on the other hand it represents moral and ethical action principles. In this paper a discussion on the relationship between the concepts of autonomy, vulnerability and responsibility is proposed and presentation of some possible applications of the principle of vulnerability within bioethics. In conclusion, some potential benefits of applying the principle of vulnerability as well as possible difficulties in its (...)
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  • Psychosis, vulnerability, and the moral significance of biomedical innovation in psychiatry. Why ethicists should join efforts.Paolo Corsico - 2020 - Medicine, Health Care and Philosophy 23 (2):269-279.
    The study of the neuroscience and genomics of mental illness are increasingly intertwined. This is mostly due to the translation of medical technologies into psychiatry and to technological convergence. This article focuses on psychosis. I argue that the convergence of neuroscience and genomics in the context of psychosis is morally problematic, and that ethics scholarship should go beyond the identification of a number of ethical, legal, and social issues. My argument is composed of two strands. First, I argue that we (...)
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  • After the Kantian analytic/synthetic contrast: social epistemology from Hegel to Derrida and Fricker.Victoria I. Burke - 2017 - Social Epistemology 31 (5):484-496.
    In this article, I lend support to Miranda Fricker's work in social epistemology from a post-Kantian point of view. In Epistemic Injustice: Power and The Ethics of Knowing, Fricker writes that, at times, social power, rather than the actual possession of knowledge, determines whether a speaker is believed (Fricker, 2007, 1-2). I will develop Miranda Fricker's project in feminist epistemology by examining the post-Kantian linguistic sign with a view to showing how G.W.F. Hegel and Jacques Derrida transform the Kantian analytic/synthetic (...)
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  • Overcoming vulnerability by editing the germline?Michael Braunschweig - 2024 - De Ethica 8 (1):59-81.
    The concept of vulnerability has become widely acknowledged as a fundamental concept for medical ethics and research ethics, yet rarely considered with respect to ethical assessments of human germline genome editing. A first aim of this paper is to make vulnerability ethics considerations fruitful for issues related to these technical innovations. The possibility of altering the genome promises to overcome forms of vulnerability inherently connected to our existence as physical beings and would hence allow to increase the resilience of human (...)
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  • The concept of vulnerability in medical ethics and philosophy.Joachim Boldt - 2019 - Philosophy, Ethics, and Humanities in Medicine 14 (1):1-8.
    BackgroundHealthcare is permeated by phenomena of vulnerability and their ethical significance. Nonetheless, application of this concept in healthcare ethics today is largely confined to clinical research. Approaches that further elaborate the concept in order to make it suitable for healthcare as a whole thus deserve renewed attention.MethodsConceptual analysis.ResultsTaking up the task to make the concept of vulnerability suitable for healthcare ethics as a whole involves two challenges. Firstly, starting from the concept as it used in research ethics, a more detailed (...)
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  • The concept of vulnerability in medical ethics and philosophy.Joachim Boldt - 2019 - Philosophy, Ethics, and Humanities in Medicine 14 (1):1-8.
    Healthcare is permeated by phenomena of vulnerability and their ethical significance. Nonetheless, application of this concept in healthcare ethics today is largely confined to clinical research. Approaches that further elaborate the concept in order to make it suitable for healthcare as a whole thus deserve renewed attention. Conceptual analysis. Taking up the task to make the concept of vulnerability suitable for healthcare ethics as a whole involves two challenges. Firstly, starting from the concept as it used in research ethics, a (...)
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  • Vulnerability and Trustworthiness.David Barnard - 2016 - Cambridge Quarterly of Healthcare Ethics 25 (2):288-300.
    :Although recent literature on professionalism in healthcare abounds in recommended character traits, attitudes, or behaviors, with a few exceptions, the recommendations are untethered to any serious consideration of the contours and ethical demands of the healing relationship. This article offers an approach based on the professional’s commitment to trustworthiness in response to the vulnerability of those seeking professional help. Because our willingness and ability to trust health professionals or healthcare institutions are affected by our personality, culture, race, age, prior experiences (...)
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  • The Vulnerability of the Individual Benefit Argument.Domnita O. Badarau, Rebecca L. Nast & David M. Shaw - 2014 - American Journal of Bioethics 14 (12):17-18.
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  • Vulnerability: Its Meaning and Value in the Context of Contemporary Bioethics.Julie Aultman - 2014 - American Journal of Bioethics 14 (12):15-17.
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  • We are people and so are they: Shared intimacies and the ethics of digital ethnography in autism communities.Débora Antunes & Alexander Dhoest - 2019 - Research Ethics 15 (2):1-17.
    This paper reflects on the three main ethical challenges we faced when conducting digital ethnography in three autism Brazilian communities on Facebook: how to position oneself as a researcher, how...
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  • Grounding care practices in theory: exploring the potential for the ethics of care to provide theoretical justification for patient-centered care.Stephen Clarke - unknown
    Patient-centered care is now recognized as a clinical method and ideal model for patient – health professional relationships, and many definitions have influenced its evolution. Overall the patient-centered care literature has provided relatively little to define patient-centered care at the level of the patient-professional relationship. Additionally, patient-centered care lacks grounding in ethical theory. This thesis asserts that theoretical concepts from the ethics of care can provide a stronger conceptual basis for patient-centered care.This thesis begins with a critical interpretive review of (...)
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