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  1. Towards trust-based governance of health data research.Marieke A. R. Bak, M. Corrette Ploem, Hanno L. Tan, M. T. Blom & Dick L. Willems - 2023 - Medicine, Health Care and Philosophy 26 (2):185-200.
    Developments in medical big data analytics may bring societal benefits but are also challenging privacy and other ethical values. At the same time, an overly restrictive data protection regime can form a serious threat to valuable observational studies. Discussions about whether data privacy or data solidarity should be the foundational value of research policies, have remained unresolved. We add to this debate with an empirically informed ethical analysis. First, experiences with the implementation of the General Data Protection Regulation (GDPR) within (...)
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  • Everyday Resistance in the U.K.’s National Health Service.Ryan Essex, Jess Dillard-Wright, Guy Aitchison & Hil Aked - forthcoming - Journal of Bioethical Inquiry:1-11.
    Resistance is a concept understudied in the context of health and healthcare. This is in part because visible forms of social protest are sometimes understood as incongruent with professional identity, leading healthcare workers to separate their visible actions from their working life. Resistance takes many forms, however, and focusing exclusively on the visible means more subtle forms of everyday resistance are likely to be missed. The overarching aim of this study was to explore how resistance was enacted within the workplace (...)
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  • Doctors that “doctor” sickness certificates: cunning intelligence as an ability and possibly a virtue among Swedish GPs.Mani Shutzberg - 2020 - Medicine, Health Care and Philosophy 23 (3):445-456.
    The relations of power between healthcare-related institutions and the professionals that interact with them are changing. Generally, the institutions are gaining the upper hand. Consequently, the intellectual abilities necessary for professionals to pursue the internal goods of healthcare are changing as well. A concrete case is the struggle over sickness benefits in Sweden, in which theSwedish Social Insurance Agency(SSIA) and physicians are important stakeholders. The SSIA has recently consolidated its power over the sickness certificates that doctors issue for their patients. (...)
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  • Discovering clinical phronesis.Donald Boudreau, Hubert Wykretowicz, Elizabeth Anne Kinsella, Abraham Fuks & Michael Saraga - 2024 - Medicine, Health Care and Philosophy 27 (2):165-179.
    Phronesis is often described as a ‘practical wisdom’ adapted to the matters of everyday human life. Phronesis enables one to judge what is at stake in a situation and what means are required to bring about a good outcome. In medicine, phronesis tends to be called upon to deal with ethical issues and to offer a critique of clinical practice as a straightforward instrumental application of scientific knowledge. There is, however, a paucity of empirical studies of phronesis, including in medicine. (...)
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  • (1 other version)An empirical and philosophical exploration of clinical practice.Michael Saraga, Donald Boudreau & Abraham Fuks - 2019 - Philosophy, Ethics, and Humanities in Medicine 14 (1):1-11.
    BackgroundPrevious empirical work among physicians has led us to propose that clinical practice is experienced by clinicians as an engagement-in-the-clinical-situation. In this study, we pursue our exploration of clinical practice ‘on its own terms’ by turning to the experience of patients.MethodsPhenomenological analysis of in-depth individual interviews with 8 patients.ResultsWe describe the patient experience as a set of three motifs: the shock on the realization of the illness, the chaos of the health care environment, and the anchor point provided by an (...)
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  • (1 other version)An empirical and philosophical exploration of clinical practice.Michael Saraga, Donald Boudreau & Abraham Fuks - 2019 - Philosophy, Ethics and Humanities in Medicine 14 (1):1-11.
    Previous empirical work among physicians has led us to propose that clinical practice is experienced by clinicians as an engagement-in-the-clinical-situation. In this study, we pursue our exploration of clinical practice ‘on its own terms’ by turning to the experience of patients. Phenomenological analysis of in-depth individual interviews with 8 patients. We describe the patient experience as a set of three motifs: the shock on the realization of the illness, the chaos of the health care environment, and the anchor point provided (...)
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