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  1. Involving parents in paediatric clinical ethics committee deliberations: a current controversy.David Archard, Emma Cave & Joe Brierley - 2023 - Journal of Medical Ethics 49 (11):733-736.
    In cases where the best interests of the child are disputed or finely balanced, Clinical Ethics Committees (CECs) can provide a valuable source of advice to clinicians and trusts on the pertinent ethical dimensions. Recent judicial cases have criticised the lack of formalised guidance and inconsistency in the involvement of parents in CEC deliberations. In Manchester University NHS FT v Verden [2022], Arbuthnot J set out important procedural guidance as to how parental involvement in CEC deliberations might be managed. She (...)
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  • As low as reasonably practicable (ALARP): a moral model for clinical risk management in the setting of technology dependence.Helen Lynne Turnham, Sarah-Jane Bowen, Sitara Ramdas, Andrew Smith, Dominic Wilkinson & Emily Harrop - forthcoming - Journal of Medical Ethics.
    Children dependent on life-prolonging medical technology are often subject to a constant background risk of sudden death or catastrophic complications. Such children can be cared for in hospital, in an intensive care environment with highly trained nurses and doctors able to deliver specialised, life-saving care immediately. However, remaining in hospital, when life expectancy is limited, can considered to be a harm in of itself. Discharge home offers the possibility for an improved quality of life for the child and their family (...)
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