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  1. What Egyptians think. Knowledge, attitude, and opinions of Egyptian patients towards biobanking issues.Ahmed S. Abdelhafiz, Eman A. Sultan, Hany H. Ziady, Ebtesam Ahmed, Walaa A. Khairy, Douaa M. Sayed, Rana Zaki, Merhan A. Fouda & Rania M. Labib - 2019 - BMC Medical Ethics 20 (1):1-10.
    Biobanking is a relatively new concept in Egypt. Building a good relationship with different stakeholders is essential for the social sustainability of biobanks. To establish this relationship, it is necessary to assess the attitude of different groups towards this concept. The objective of this work is to assess the knowledge, attitude, and opinions of Egyptian patients towards biobanking issues. We designed a structured survey to be administered to patients coming to the outpatient clinics in 3 university hospitals in Egypt. The (...)
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  • Currents in Contemporary Bioethics: Open Access as Benefit Sharing? The Example of Publicly Funded Large-Scale Genomic Databases.Yann Joly, Clarissa Allen & Bartha M. Knoppers - 2012 - Journal of Law, Medicine and Ethics 40 (1):143-146.
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  • What is Fair and Equitable Benefit-sharing?Bram Jonge - 2011 - Journal of Agricultural and Environmental Ethics 24 (2):127-146.
    “Fair and equitable benefit-sharing” is one of the objectives of the UN Convention on Biological Diversity and the FAO International Treaty on Plant Genetic Resources for Food and Agriculture. In essence, benefit-sharing holds that countries, farmers, and indigenous communities that grant access to their plant genetic resources and/or traditional knowledge should share in the benefits that users derive from these resources. But what exactly is understood by “fair” and “equitable” in this context? Neither term is defined in the international treaties. (...)
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  • Commutative Justice and Access and Benefit Sharing for Genetic Resources.Anna Https://Orcidorg Deplazes-Zemp - 2018 - Ethics, Policy and Environment 21 (1):110-126.
    The Convention on Biological Diversity and its Nagoya Protocol established an Access and Benefit Sharing system between utilizers and providers of genetic resources. ABS is understood as a tool that should promote commutative justice between the involved parties. This essay discusses what exactly it is that is being exchanged in the ABS process. It critically analyses moral claims to compensation that are implied by the ABS system for genetic resources. It argues that with the exception of cases in which traditional (...)
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  • What is Fair and Equitable Benefit-sharing?Bram De Jonge - 2011 - Journal of Agricultural and Environmental Ethics 24 (2):127-146.
    “Fair and equitable benefit-sharing” is one of the objectives of the UN Convention on Biological Diversity and the FAO International Treaty on Plant Genetic Resources for Food and Agriculture. In essence, benefit-sharing holds that countries, farmers, and indigenous communities that grant access to their plant genetic resources and/or traditional knowledge should share in the benefits that users derive from these resources. But what exactly is understood by “fair” and “equitable” in this context? Neither term is defined in the international treaties. (...)
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  • What Do the Various Principles of Justice Mean Within the Concept of Benefit Sharing?Bege Dauda, Yvonne Denier & Kris Dierickx - 2016 - Journal of Bioethical Inquiry 13 (2):281-293.
    The concept of benefit sharing pertains to the act of giving something in return to the participants, communities, and the country that have participated in global health research or bioprospecting activities. One of the key concerns of benefit sharing is the ethical justifications or reasons to support the practice of the concept in global health research and bioprospecting. This article evaluates one of such ethical justifications and its meaning to benefit sharing, namely justice. We conducted a systematic review to map (...)
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  • Benefit sharing: an exploration on the contextual discourse of a changing concept. [REVIEW]Bege Dauda & Kris Dierickx - 2013 - BMC Medical Ethics 14 (1):36.
    The concept of benefit sharing has been a topical issue on the international stage for more than two decades, gaining prominence in international law, research ethics and political philosophy. In spite of this prominence, the concept of benefit sharing is not devoid of controversies related to its definition and justification. This article examines the discourses and justifications of benefit sharing concept.
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