BackgroundThe expressions of a “wish to hasten death” or “wish to die” raise ethical concerns and challenges. These expressions are related to ethical principles intertwined within the field of medical ethics, particularly in end-of-life care. Although some reviews were conducted about this topic, none of them provides an in-depth analysis of the meanings behind the “wish to hasten death/die” based specifically on the ethical principles of autonomy, dignity, and vulnerability. The aim of this review is to understand if and how (...) the meanings behind the “wish to hasten death/die” relate to and are interpreted in light of ethical principles in palliative care.MethodsWe conducted a meta-ethnographic review according to the PRISMA guidelines and aligned with Noblit and Hare’s framework. Searches were performed in three databases, Web of Science, PubMed, CINAHL, with no time restrictions. Original qualitative studies exploring the meanings given by patients, family caregivers and healthcare professionals in any context of palliative and end-of-life care were included. A narrative synthesis was undertaken. PROSPERO registration CRD42023360330.ResultsOut of 893 retrieved articles, 26 were included in the analysis, accounting for the meanings of a total of 2,398 participants. Several factors and meanings associated with the “wish to hasten death” and/or “wish to die” were identified and are mainly of a psychosocial and spiritual nature. The ethical principles of autonomy and dignity were the ones mostly associated with the “wish to hasten death”. Ethical principles were essentially inferred from the content of included articles, although not explicitly stated as bioethical principles.ConclusionsThis meta-ethnographic review shows a reduced number of qualitative studies on the “wish to hasten death” and/or “wish to die” explicitly stating ethical principles. This suggests a lack of bioethical reflection and reasoning in the empirical end-of-life literature and a lack of embedded ethics in clinical practice. There is a need for healthcare professionals to address these topics compassionately and ethically, taking into account the unique perspectives of patients and family members. More qualitative studies on the meanings behind a wish to hasten death, their ethical contours, ethical reasoning, and implications for clinical practice are needed. (shrink)

Background Mental healthcare users and patients were described as a particularly vulnerable group in the debate on the burdens of the COVID-19 pandemic. Just what this means and what normative conclusions can be derived from it depend to a large extent on the underlying concept of vulnerability. While a traditional understanding locates vulnerability in the characteristics of social groups, a situational and dynamic approach considers how social structures produce vulnerable social positions. The situation of users and patients in different psychosocial (...) settings during the COVID-19 pandemic has not yet been comprehensively considered and ethically analyzed under the aspect of situational vulnerability. Methods We present the results of a retrospective qualitative analysis of a survey of ethical challenges in different mental healthcare facilities of a large regional mental healthcare provider in Germany. We evaluate them ethically using a dynamic and situational understanding of vulnerability. Results Difficulties in implementing infection prevention measures, restrictions of mental health services in favor of infection prevention, social isolation, negative health effects on mental healthcare users and patients, and challenges in implementing regulations on state and provider levels within the local specificities emerged across different mental healthcare settings as ethically salient topics. Conclusions Applying a situational and dynamic understanding of vulnerability allows the identification of specific factors and conditions that have contributed to an increased context-dependent vulnerability for mental healthcare users and patients. These factors and conditions should be considered on the level of state and local regulations to reduce and address vulnerability. (shrink)

Zusammenfassung Alte Menschen mit lebensbegleitender geistiger Behinderung weisen wiederkehrend auch gesundheitliche Problemstellungen auf, die eine stationäre akutklinische Behandlung erfordern. Gesundheitliche Belastungen sind bei dieser Personengruppe nicht ausschließlich auf die Behinderung, sondern auch auf eine höhere Vulnerabilität zurückzuführen, die sich durch degenerativ-altersassoziierte Problemstellungen weiter verstärkt. Gesundheitliche Belastungen treten bei dieser Gruppe mitunter auch als Folge lebenslanger gesundheitlicher Benachteiligung und Unterversorgung auf. Im Vergleich zu Menschen ohne Behinderung bekommen Menschen mit lebensbegleitender geistiger Behinderung vielfach weder die nach ihren höheren und spezifischen Bedarfen (...) _angemessenen _noch die _gleichen _Gesundheitsleistungen. Eine diskriminierende Ungleichbehandlung von Menschen mit (geistiger) Behinderung gegenüber Menschen ohne Behinderung drückt sich häufig auch in der Verletzung der Integrität und Würde dieser besonders vulnerablen Patient*innengruppe aus. Strukturelle sowie haltungs- und handlungsbezogene Diskriminierungspraktiken im Akutkrankenhaus können dazu beitragen, bestehende Vulnerabilitäten zu erhöhen und gesundheitliche Problemstellungen zu verschärfen. Ziel des Beitrages ist es, für diese Wechselwirkungen zu sensibilisieren und relevante Eckpunkte für eine würdevolle und integritätswahrende, am Gegenüber ausgerichtete Pflege im Akutkrankenhaus aufzuzeigen. (shrink)

This article is an examination of the doctor–woman patient encounter through a vulnerability lens. This relationship has been traditionally been critiqued as a paternalistic encounter in which the...