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  1. Biobank consent under the GDPR: are potential sample donors informed about all lawful uses of biobank data?Emmi Kaaya - 2024 - Medicine, Health Care and Philosophy 27 (4):567-577.
    This paper analyses the information disclosures in two biobank consent documents used by biobanks operating under the General Data Protection Regulation (GDPR). The aim of the analysis is to investigate how these documents inform potential sample donors about possible future uses of biobank data. The findings suggest that the consent documents provide potentially misleading information regarding the range of possible future uses of biobank data. Based on these information disclosures, potential sample donors may reasonably believe that the data can only (...)
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