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  1. Embracing ambivalence and hesitation: a Ricoeurian perspective on anticipatory choice processes at the end of life.Els van Wijngaarden - 2024 - Medicine, Health Care and Philosophy 27 (4):555-566.
    Especially older adults are increasingly stimulated to think about, talk about and record their preferences with regard to future (health)care decisions, preferably in a pro-active manner. In this paper, I analyse these anticipatory choice processes. My goal is twofold: Firstly, to provide a deeper understanding of what it actually means to decide in advance about end-of-life treatments or options. Secondly, to make a theoretical contribution to bioethics and ACP-theories by rethinking the concept of end-of-life choices from a phenomenological viewpoint. To (...)
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  • Investigating modes of being in the world: an introduction to Phenomenologically grounded qualitative research.Allan Køster & Anthony Vincent Fernandez - 2021 - Phenomenology and the Cognitive Sciences 22 (1):149-169.
    In this article, we develop a new approach to integrating philosophical phenomenology with qualitative research. The approach uses phenomenology’s concepts, namely existentials, rather than methods such as the epoché or reductions. We here introduce the approach to both philosophers and qualitative researchers, as we believe that these studies are best conducted through interdisciplinary collaboration. In section 1, we review the debate over phenomenology’s role in qualitative research and argue that qualitative theorists have not taken full advantage of what philosophical phenomenology (...)
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  • Nurses experiences of ethical dilemmas: A review.Anita Haahr, Annelise Norlyk, Bente Martinsen & Pia Dreyer - 2020 - Nursing Ethics 27 (1):258-272.
    Background: Nursing care is rapidly evolving due to the advanced technological and medical development, and also due to an increased focus on standardization and the logic of production, permeating today’s hospital cultures. Nursing is rooted in a holistic approach with an ethical obligation to maintain and respect the individual’s dignity and integrity. However, working within time limits and heavy workload leads to burnout and ethical insensitivity among nurses, and may challenge nurses’ options to act on the basis of ethical and (...)
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  • Debating Phenomenological Research Methods.Linda Finlay - 2009 - Phenomenology and Practice 3 (1):6-25.
    Phenomenological researchers generally agree that our central concern is to return to embodied, experiential meanings aiming for a fresh, complex, rich description of a phenomenon as it is concretely lived. Yet debates abound when it comes to deciding how best to carry out this phenomenological research in practice. Confusion about how to conduct appropriate phenomenological research makes our field difficult for novices to access. Six particular questions are contested: How tightly or loosely should we define what counts as "phenomenology" Should (...)
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  • Understanding the Experience of Discovering a Kindred Spirit Connection: A Phenomenological Study.Linda Finlay & Virginia Eatough - 2012 - Phenomenology and Practice 6 (1):69-88.
    Preliminary existential hermeneutic phenomenological analysis of data based on 24 protocols, and our own reflexive discussion, reveals how “kindred spirit connections” manifest in myriad elusive, evocative ways. These special connections are experienced variously from briefly felt moments of friendship to enduringly profound body-soul love connections. This paper explicates five intertwined dimensions: shared bonding; the mutual exchange and affirmation of fellowship; the destined meeting or relationship; immediate bodily-felt attraction; and the pervasive presence of love. A wide ranging literature around the theme (...)
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  • Giving voice to vulnerable people: the value of shadowing for phenomenological healthcare research. [REVIEW]Hanneke van der Meide, Carlo Leget & Gert Olthuis - 2013 - Medicine, Health Care and Philosophy 16 (4):731-737.
    Phenomenological healthcare research should include the lived experiences of a broad group of healthcare users. In this paper it is shown how shadowing can give a voice to people in vulnerable situations who are often excluded from interview studies. Shadowing is an observational method in which the researcher observes an individual during a relatively long time. Central aspects of the method are the focus on meaning expressed by the whole body, and an extended stay of the researcher in the phenomenal (...)
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  • ‘Transforming’ self and world: a phenomenological study of a changing lifeworld following a cochlear implant. [REVIEW]Linda Finlay & Patricia Molano-Fisher - 2008 - Medicine, Health Care and Philosophy 11 (3):255-267.
    After 50 years of being profoundly deaf, Patricia finds her world ‘transformed’—literally and metaphorically—when she receives a cochlear implant. Her sense of self and the taken-for-granted, comfortable world she knew before surgery disappear and she is thrown into an alien, surreal existence full of hyper-noise. Entry into this new world of sounds proves a mixed blessing as Pat struggles to come to terms with her changing relationships, not only with others but also with herself. On good days, she is exhilarated (...)
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  • The everyday phenomenology of bedside insight: Response to Paley's critique of phenomenological research in nursing.Shira Birnbaum - 2024 - Nursing Inquiry 31 (4):e12657.
    The quality of phenomenological research in nursing has been a subject of long‐standing debate and critique, but conversation took a particularly contentious turn following publication of John Paley's 2017 Phenomenology as Qualitative Research (Routledge), which elicited strong reactions. Faculty in nursing doctoral programs now face a challenge: in light of current controversies, what can we teach that is appropriately labeled phenomenological, and is there a way to present philosophical concepts that might equip students to avoid the most egregious mistakes of (...)
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  • Humanizing intensive care: A scoping review (HumanIC).Monica Evelyn Kvande, Sanne Angel & Anne Højager Nielsen - 2022 - Nursing Ethics 29 (2):498-510.
    Significant scientific and technological advances in intensive care have been made. However, patients in the intensive care unit may experience discomfort, loss of control, and surreal experiences. This has generated relevant debates about how to humanize the intensive care units and whether humanization is necessary at all. This paper aimed to explore how humanizing intensive care is described in the literature. A scoping review was performed. Studies published between 01.01.1999 and 02.03.2020 were identified in the CINAHL, Embase, PubMed, and Scopus (...)
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  • Decolonization of the West, Desuperiorisation of Thought, and Elative Ethics.Björn Freter - 2019 - In Elvis Imafidon (ed.), Handbook on African Philosophy of Difference. Springer. pp. 1-24.
    Through the vehicle of Nicolas Sarkozy’s so-called “Dakar Address” we will analyse the West’s persisting lack of insight into the need for a Western decolonization. We will try to identify the dangers that come from this refusal, such as the abidance in colonial patterns, the enduring self-understanding as superior com-pared to Africa, and the persisting unwillingness to accept the colonial guilt. Decolonization has to be understood as a two-fold business. Decolonization is over-coming endured and perpetrated violence. It is not only (...)
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  • Why frailty needs vulnerability.Hanneke van der Meide, Gert Olthuis & Carlo Leget - 2015 - Nursing Ethics 22 (8):860-869.
    The vulnerability of older hospital patients is increasingly understood in physical terms, often referred to as frailty. This reduces their vulnerability to the functioning body regardless of the psycho-socio-cultural context they are in, and it ignores the role of the hospital environment. This paper starts from a care ethical perspective on care and uses insights from empirical work that shows that hospitalization of older patients is characterized by experiences of uncertainty that give rise to feelings of vulnerability. This paper presents (...)
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  • Lifeworld-led healthcare is more than patient-led care: an existential view of well-being. [REVIEW]Karin Dahlberg, Les Todres & Kathleen Galvin - 2009 - Medicine, Health Care and Philosophy 12 (3):265-271.
    In this paper we offer an appreciation and critique of patient-led care as expressed in current policy and practice. We argue that current patient-led approaches hinder a focus on a deeper understanding of what patient-led care could be. Our critique focuses on how the consumerist/citizenship emphasis in current patient-led care obscures attention from a more fundamental challenge to conceptualise an alternative philosophically informed framework from where care can be led. We thus present an alternative interpretation of patient-led care that we (...)
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  • Facilitating a dedicated focus on the human dimensions of care in practice settings: Development of a new humanised care assessment tool ( HCAT ) to sensitise care.Kathleen T. Galvin, Claire Sloan, Fiona Cowdell, Caroline Ellis-Hill, Carole Pound, Roger Watson, Steven Ersser & Sheila Brooks - 2018 - Nursing Inquiry 25 (3):e12235.
    There is limited consensus about what constitutes humanly sensitive care, or how it can be sustained in care settings. A new humanised care assessment tool may point to caring practices that are up to the task of meeting persons as humans within busy healthcare environments. This paper describes qualitative development of a tool that is conceptually sensitive to human dimensions of care informed by a life‐world philosophical orientation. Items were generated to reflect eight theoretical dimensions that constitute what makes care (...)
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  • Disconnectedness from the here-and-now: a phenomenological perspective as a counteract on the medicalisation of death wishes in elderly people.Els van Wijngaarden, Carlo Leget & Anne Goossensen - 2016 - Medicine, Health Care and Philosophy 19 (2):265-273.
    When elderly people are ideating on manners to end their lives, because they feel life is over and no longer worth living, it is important to understand their lived experiences, thoughts and behaviour in order to appropriately align care, support and policy to the needs of these people. In the literature, the wish to die in elderly people is often understood from a medical, psychopathological paradigm, referred to as cognitive impairment, depressive disorder, pathological bereavement, and suicidality. In this paper, we (...)
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  • The quest for choice and the need for relational care in mental health work.Børge Baklien & Rob Bongaardt - 2014 - Medicine, Health Care and Philosophy 17 (4):625-632.
    Since the revolutionary mood of the 1960s, patient-centered mental health care and a research emphasis on service users as experts by experience have emerged hand in hand with a view of service users as consumers. What happens to knowledge derived from firsthand experience when mental health users become experts and actively choose care? What kind of perspective do service users pursue on psychological distress? These are important questions in a field where psychiatric expertise on mental illness is socially structured and (...)
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  • The significance of lifeworld and the case of hospice.Lisbeth Thoresen, Trygve Wyller & Kristin Heggen - 2011 - Medicine, Health Care and Philosophy 14 (3):257-263.
    Questions on what it means to live and die well are raised and discussed in the hospice movement. A phenomenological lifeworld perspective may help professionals to be aware of meaningful and important dimensions in the lives of persons close to death. Lifeworld is not an abstract philosophical term, but rather the opposite. Lifeworld is about everyday, common life in all its aspects. In the writings of Cicely Saunders, known as the founder of the modern hospice movement, facets of lifeworld are (...)
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  • Analyzing dignity: a perspective from the ethics of care.Carlo Leget - 2013 - Medicine, Health Care and Philosophy 16 (4):945-952.
    The concept of dignity is notoriously vague. In this paper it is argued that the reason for this is that there are three versions of dignity that are often confused. First we will take a short look at the history of the concept of dignity in order to demonstrate how already from Roman Antiquity two versions of dignity can be distinguished. Subsequently, the third version will be introduced and it will be argued that although the three versions of dignity hang (...)
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  • Caring and its ethical aspects-an empirical philosophical dialogue on caring.Albertine Ranheim - unknown
    With a focus on caring ethics, the aim of this study was to see if and how experienced nurses in care for the elderly described caring and whether they included any theoretical basis to their caring acts. Questions that guided the research were: Does ethical caring theory have any relevance in nurses clinical work? How do experienced nurses describe care in general, their intentions and motives in particular? In order to enter into the meanings of caring, a reflective lifeworld research (...)
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  • Intentional presence and the accompaniment of dying patients.Alexandra Guité-Verret, Mélanie Vachon & Dominique Girard - 2023 - Medicine, Health Care and Philosophy 26 (3):477-486.
    In this paper, we offer a phenomenological and hermeneutical perspective on the presence of clinicians who care for the suffering and dying patients in the context of end-of-life care. Clinician presence is described as a way of (1) being present to the patient and to oneself, (2) being in the present moment, and (3) receiving and giving a presence (in the sense of a gift).We discuss how presence is a way of restoring human beings’ relational and dialogical nature. To inform (...)
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  • The intertwining of reconciliation and displacement : a lifeworld hermeneutic study of older adults’ perceptions of the finality of life.Lina Palmér, Maria Nyström, Gunilla Carlsson, Catharina Gillsjö, Irene Eriksson & Ann-Charlotte Dalheim-Englund - 2020 - International Journal of Qualitative Studies on Health and Well-Being 15 (1).
    Purpose: This study aimed to explain and understand the existential meaning of the finality of life from the perspective of healthy older adults. Method: Participants were recruited from a major project on older adults’ life situations. They were interviewed about their thoughts on the end of life, and their responses were interpreted using a lifeworld hermeneutic approach. Results: The findings showed that thinking about the inevitable finality of life involves feelings of liberation, frightening thoughts, a comforting promise of something beyond (...)
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  • Dwelling, house and home: towards a home-led perspective on dementia care. [REVIEW]Wim Dekkers - 2011 - Medicine, Health Care and Philosophy 14 (3):291-300.
    “Home” is well known from everyday experience, plays a crucial role in all kinds of narratives about human life, but is hardly ever systematically dealt with in the philosophy of medicine and health care. The notion of home is ambiguous, is often used in a metaphorical way, and is closely related to concepts such as house and dwelling. In this paper the phenomenon of home is explored by means of some phenomenological writings of Heidegger, Bollnow, Bachelard and Levinas. Common in (...)
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  • Getting to Know Patients’ Lived Space.Annelise Norlyk, Bente Martinsen & Karen Dahlberg - 2013 - Indo-Pacific Journal of Phenomenology 13 (2):1-12.
    The present paper explores patients’ experience of lived space at the hospital and at home. To expand the understanding of the existential meaning of lived space the study revisited two empirical studies and a study of a meta-synthesis on health and caring. Phenomenological philosophy was chosen as a theoretical framework for an excursive analysis. The paper demonstrates that existential dimensions of lived space at the hospital and at home differ significantly. For the patients, the hospital space means alien territory as (...)
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  • Do the carers care? A phenomenological study of providing care for patients suffering from alcohol use disorders.Hanne M. Bové, Marianne Lisby & Annelise Norlyk - 2020 - Nursing Inquiry 27 (1):e12322.
    Excessive alcohol consumption can have adverse effects on health, and patients who suffer from alcohol use disorders are subject to much stigmatization. Nurses are often the first point of contact when patients enter the acute medical unit, and it is pivotal that this contact establishes the basis for future collaboration. The aim of this study is to elucidate nurses’ lived experience of providing care to patients suffering from alcohol use disorders. This present study has a qualitative research design, anchored in (...)
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  • Bioethics Education and Nonideal Theory.Nabina Liebow & Kelso Cratsley - 2021 - In Elizabeth Victor & Laura K. Guidry-Grimes (eds.), Applying Nonideal Theory to Bioethics: Living and Dying in a Nonideal World. New York: Springer. pp. 119-142.
    Bioethics has increasingly become a standard part of medical school education and the training of healthcare professionals more generally. This is a promising development, as it has the potential to help future practitioners become more attentive to moral concerns and, perhaps, better moral reasoners. At the same time, there is growing recognition within bioethics that nonideal theory can play an important role in formulating normative recommendations. In this chapter we discuss what this shift toward nonideal theory means for ethical curricula (...)
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  • Learning to live with Parkinson’s disease in the family unit: an interpretative phenomenological analysis of well-being.Laura J. Smith & Rachel L. Shaw - 2017 - Medicine, Health Care and Philosophy 20 (1):13-21.
    We investigated family members’ lived experience of Parkinson’s disease aiming to investigate opportunities for well-being. A lifeworld-led approach to healthcare was adopted. Interpretative phenomenological analysis was used to explore in-depth interviews with people living with PD and their partners. The analysis generated four themes: It’s more than just an illness revealed the existential challenge of diagnosis; Like a bird with a broken wing emphasizing the need to adapt to increasing immobility through embodied agency; Being together with PD exploring the kinship (...)
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  • Gender influences on caring, dignity and well‐being in older person care: A systematic literature review and thematic synthesis.Lamprini M. Xiarchi, Kristina Nässén, Lina Palmér, Fiona Cowdell & Elisabeth Lindberg - 2024 - Nursing Philosophy 25 (1):e12467.
    Globally, healthcare has become dominated by women nurses. Gender is also known to impact the way people are cared for in various healthcare systems. Considering gender from the perspective of how lived bodies are positioned through the structural relations of institutions and processes, this systematic review aims to explore the meaning of gender in the caring relationship between the nurse and the older person through a synthesis of available empirical data published from 1993 to 2022. CINAHL, PUBMED, EMBASE and Web (...)
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  • Beyond the absent body—A phenomenological contribution to the understanding of body awareness in health and illness.Helena Dahlberg - 2019 - Nursing Philosophy 20 (2):e12235.
    Starting from a phenomenological understanding of the body, this article discusses the understanding of body awareness in health and illness. I question the common way to understand our relationship to our bodies in terms of subjective and objective perspectives on it, and furthermore, how this opposition has been used in the phenomenological literature to outline an understanding of health and illness as states where the body stays unnoticed versus resurfaces to our attention as dysfunctional. Using examples from an ongoing interview (...)
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  • Evaluating care from a care ethical perspective:: A pilot study.Esther E. Kuis & Anne Goossensen - 2017 - Nursing Ethics 24 (5):569-582.
    Background: Care ethical theories provide an excellent opening for evaluation of healthcare practices since searching for (moments of) good care from a moral perspective is central to care ethics. However, a fruitful way to translate care ethical insights into measurable criteria and how to measure these criteria has as yet been unexplored: this study describes one of the first attempts. Objective: To investigate whether the emotional touchpoint method is suitable for evaluating care from a care ethical perspective. Research design: An (...)
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  • Developing Sensitive Sense and Sensible Sensibility in Pedagogical Work: Professional development through reflection on emotional experiences.Anna-Carin Bredmar - 2020 - Phenomenology and Practice 14 (1):57-72.
    The increased influence of neoliberalism in education has allowed the trend of evidence-based teaching to dominate professional development in many Western countries. Despite increased and persistent neoliberal measures in education, education critics argue that neoliberal reforms have a naive view of teaching. This narrowed neoliberal view both ignores the complexities involved in the everyday interaction between teacher and student and constrains the teacher’s judgement thereby limiting their contribution in the educational process. Many educators will note the significance of reflection in (...)
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