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  1. Parental authority, research interests and children's right to decide in medical research – an uneasy tension?Ulrica Swartling, Gert Helgesson, Mats G. Hansson & Johnny Ludvigsson - 2008 - Clinical Ethics 3 (2):69-74.
    There is an increased focus on, and evidence of, children's capability to both understand and make decisions about issues relating to participation in medical research. At the same time there are divergent ideas of when, how and to what extent children should be allowed to decide for themselves. Furthermore, little is known about parents' views on these matters, an important issue since they often provide the formal consent. In this questionnaire study of 2500 families in south-east Sweden (with and without (...)
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  • Views on data use, confidentiality and consent in a predictive screening involving children.G. Helgesson & U. Swartling - 2008 - Journal of Medical Ethics 34 (3):206-209.
    Data from the 5–6 year control questionnaire of the ABIS study, a Swedish prospective screening of children for Type 1 diabetes, indicates a genuine trust in the researchers—very few participating families expressed concern about their participation. Nevertheless, a majority do not want their research data to be used beyond the agreement of the original consent. They want to be asked for renewed consent in such cases. A vast majority also want potential high-risk information about their child to be communicated to (...)
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  • Parental authority, research interests and children's right to decide in medical research – an uneasy tension?Ulrica Swartling, Gert Helgesson, Mats G. Hansson & Johnny Ludvigsson - 2008 - Clinical Ethics 3 (2):69-74.
    There is an increased focus on, and evidence of, children's capability to both understand and make decisions about issues relating to participation in medical research. At the same time there are divergent ideas of when, how and to what extent children should be allowed to decide for themselves. Furthermore, little is known about parents' views on these matters, an important issue since they often provide the formal consent. In this questionnaire study of 2500 families in south-east Sweden (with and without (...)
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