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A Lay Ethics Quest for Technological Futures: About Tradition, Narrative and Decision-Making

Simone van der Burg

NanoEthics 10 (3):233-244 (2016)

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Assembling Upstream Engagement: the Case of the Portuguese Deliberative Forum on Nanotechnologies.António Carvalho & João Arriscado Nunes - 2018 - NanoEthics 12 (2):99-113.details This article analyzes a deliberative forum on nanotechnologies, organized in Portugal within the scope of the research project DEEPEN—Deepening Ethical Engagement and Participation in Emerging Nanotechnologies. This event included scientists, science communicators and members of the “lay public”, and resulted in a position document which summarizes collective aspirations and concerns related to nano. Drawing upon our previous experience with focus groups on nanotechnologies—characterized by methodological innovations that aimed at suspending epistemological inequalities between participants—this paper delves into the performativity of the (...) Download Export citation Bookmark 2 citations
Giving Voice to Patients: Developing a Discussion Method to Involve Patients in Translational Research.Simone Burg, Elisa Garcia, Lieke Scheer & Marianne Boenink - 2018 - NanoEthics 12 (3):181-197.details Biomedical research policy in recent years has often tried to make such research more ‘translational’, aiming to facilitate the transfer of insights from research and development to health care for the benefit of future users. Involving patients in deliberations about and design of biomedical research may increase the quality of R&D and of resulting innovations and thus contribute to translation. However, patient involvement in biomedical research is not an easy feat. This paper discusses the development of a method for involving (...) Download Export citation Bookmark 1 citation
Giving Voice to Patients: Developing a Discussion Method to Involve Patients in Translational Research.Marianne Boenink, Lieke van der Scheer, Elisa Garcia & Simone van der Burg - 2018 - NanoEthics 12 (3):181-197.details Biomedical research policy in recent years has often tried to make such research more ‘translational’, aiming to facilitate the transfer of insights from research and development to health care for the benefit of future users. Involving patients in deliberations about and design of biomedical research may increase the quality of R&D and of resulting innovations and thus contribute to translation. However, patient involvement in biomedical research is not an easy feat. This paper discusses the development of a method for involving (...) Download Export citation Bookmark 1 citation
“I am Primarily Paid for Publishing…”: The Narrative Framing of Societal Responsibilities in Academic Life Science Research.Lisa Sigl, Ulrike Felt & Maximilian Fochler - 2020 - Science and Engineering Ethics 26 (3):1569-1593.details Building on group discussions and interviews with life science researchers in Austria, this paper analyses the narratives that researchers use in describing what they feel responsible for, with a particular focus on how they perceive the societal responsibilities of their research. Our analysis shows that the core narratives used by the life scientists participating in this study continue to be informed by the linear model of innovation. This makes it challenging for more complex innovation models [such as responsible research and (...) Download Export citation Bookmark 3 citations
Moral imagination as an instrument for ethics education for biomedical researchers.Elianne M. Gerrits, Lars S. Assen, Liesbeth Noordegraaf-Eelens, Annelien L. Bredenoord & Marc H. W. van Mil - 2023 - International Journal of Ethics Education 8 (2):275-289.details Moral sensitivity and moral reasoning are essential competencies biomedical researchers have to develop to make ethical decisions in their daily practices. Previous research has shown that these competencies can be developed through ethics education. However, it is unclear which underlying mechanisms best support the development of these competencies. In this article we argue that the development of moral sensitivity and moral reasoning can be fostered through teaching strategies that tap into students’ moral imagination. We describe how moral imagination can stimulate (...) Download Export citation Bookmark 1 citation

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