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  1. The Role of Family Members in Psychiatric Deep Brain Stimulation Trials: More Than Psychosocial Support.Marion Boulicault, Sara Goering, Eran Klein, Darin Dougherty & Alik S. Widge - 2023 - Neuroethics 16 (2):1-18.
    Family members can provide crucial support to individuals participating in clinical trials. In research on the “newest frontier” of Deep Brain Stimulation (DBS)—the use of DBS for psychiatric conditions—family member support is frequently listed as a criterion for trial enrollment. Despite the significance of family members, qualitative ethics research on DBS for psychiatric conditions has focused almost exclusively on the perspectives and experiences of DBS recipients. This qualitative study is one of the first to include both DBS recipients and their (...)
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  • Asking questions that matter – Question prompt lists as tools for improving the consent process for neurotechnology clinical trials.Andreas Schönau, Sara Goering, Erika Versalovic, Natalia Montes, Tim Brown, Ishan Dasgupta & Eran Klein - 2022 - Frontiers in Human Neuroscience 16.
    Implantable neurotechnology devices such as Brain Computer Interfaces and Deep Brain Stimulators are an increasing part of treating or exploring potential treatments for neurological and psychiatric disorders. While only a few devices are approved, many promising prospects for future devices are under investigation. The decision to participate in a clinical trial can be challenging, given a variety of risks to be taken into consideration. During the consent process, prospective participants might lack the language to consider those risks, feel unprepared, or (...)
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