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  1. Health policy narratives contributing to health inequities experienced by people with intellectual/developmental disabilities: New evidence from COVID-19.Sandra Marquis, Renee O'Leary, Nilanga Aki Bandara & Jennifer Baumbusch - 2024 - Clinical Ethics 19 (1):54-61.
    This paper discusses three cultural narratives that threaten the health of people with intellectual/developmental disabilities (IDD) and which have become more evident during the COVID-19 pandemic. These meta-narratives are the medical model of health/disability; the population health approach to health inequalities; and policies premised on the assumption of the importance of national economic growth as an incentive for reducing health inequalities. Evidence exists that health research is more likely to become policy if it fits within a medical model and addresses (...)
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  • Genetic Testing, Birth, and the Quest for Health.Joëlle Vailly - 2014 - Science, Technology, and Human Values 39 (3):374-396.
    Newborn screening for genetic diseases has developed rapidly in Western countries. These biopolitics raise the question of birth as a sociological “knot” insofar as it is the threshold between the child and the fetus. The question therefore addressed in this text, based on a field study of newborn screening for cystic fibrosis in France, is that of the link between the quest for good health and the elimination of poor health. Do they reinforce each other or, on the contrary, are (...)
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