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  1. Is decision-making capacity an “essentially contested” concept in pediatrics?Eva De Clercq, Katharina Ruhe, Michel Rost & Bernice Elger - 2017 - Medicine, Health Care and Philosophy 20 (3):425-433.
    Key legislations in many countries emphasize the importance of involving children in decisions regarding their own health at a level commensurate with their age and capacities. Research is engaged in developing tools to assess capacity in children in order to facilitate their responsible involvement. These instruments, however, are usually based on the cognitive criteria for capacity assessment as defined by Appelbaum and Grisso and thus ill adapted to address the life-situation of children. The aim of this paper is to revisit (...)
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  • Anything Goes? Analyzing Varied Understandings of Assent.Giles Birchley - 2023 - Cambridge Quarterly of Healthcare Ethics 32 (1):76-89.
    Assent to medical research or treatment may be an intuitively attractive way to address the area between incapacity and capacity that might otherwise be subject to a best interests assessment. Assent has become a widely disseminated concept in law, research, and clinical ethics, but little conceptual work on assent has so far occurred. An exploration of use of assent in treatment and research in children and people with dementia suggests that at least five claims are made on behalf of assent. (...)
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  • To stop or not to stop: dissent and undue burden as reasons to stop participation in paediatric research.Wendy Bos, Anna Westra, Inez de Beaufort & Suzanne van de Vathorst - 2017 - Journal of Medical Ethics 43 (8):519-523.
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