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Biomedical experimentation with children: Balancing the need for protective measures with the need to respect children's developing ability to make significant life decisions for themselves

In David N. Weisstub (ed.), Research on human subjects: ethics, law, and social policy. Kidlington, Oxford, UK: Pergamon Press. pp. 380--404 (1998)

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  1. Body matters: rethinking the ethical acceptability of non-beneficial clinical research with children.Eva De Clercq, Domnita Oana Badarau, Katharina M. Ruhe & Tenzin Wangmo - 2015 - Medicine, Health Care and Philosophy 18 (3):421-431.
    The involvement of children in non-beneficial clinical research is extremely important for improving pediatric care, but its ethical acceptability is still disputed. Therefore, various pro-research justifications have been proposed throughout the years. The present essay aims at contributing to the on-going discussion surrounding children’s participation in non-beneficial clinical research. Building on Wendler’s ‘contribution to a valuable project’ justification, but going beyond a risk/benefit analysis, it articulates a pro-research argument which appeals to a phenomenological view on the body and vulnerability. It (...)
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