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  1. Defining Disability: Creating a Monster?Marissa D. Espinoza & Addison S. Tenorio - 2022 - Journal of Medicine and Philosophy 47 (5):573-582.
    Disability is often defined as deviation from putative norms of physical, cognitive, or affective function. This definition is normatively laden, causing people with disabilities to be thought of as “different” and treated with pity. We address the predominant theme of this issue on “Disability Identity”: defining and imposing the category of “disability” and attempting to overcome it through medical intervention. The issue culminates in a call for courageous humility as the proper response to encounters with disability, providing medical professionals with (...)
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  • Bioethics and the Moral Authority of Experience.Ryan H. Nelson, Bryanna Moore, Holly Fernandez Lynch, Miranda R. Waggoner & Jennifer Blumenthal-Barby - 2022 - American Journal of Bioethics 23 (1):12-24.
    While experience often affords important knowledge and insight that is difficult to garner through observation or testimony alone, it also has the potential to generate conflicts of interest and unrepresentative perspectives. We call this tension the paradox of experience. In this paper, we first outline appeals to experience made in debates about access to unproven medical products and disability bioethics, as examples of how experience claims arise in bioethics and some of the challenges raised by these claims. We then motivate (...)
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  • Unfreedom or Mere Inability? The Case of Biomedical Enhancement.Ji Young Lee - 2024 - Journal of Medicine and Philosophy 49 (2):195-206.
    Mere inability, which refers to what persons are naturally unable to do, is traditionally thought to be distinct from unfreedom, which is a social type of constraint. The advent of biomedical enhancement, however, challenges the idea that there is a clear division between mere inability and unfreedom. This is because bioenhancement makes it possible for some people’s mere inabilities to become matters of unfreedom. In this paper, I discuss several ways that this might occur: first, bioenhancement can exacerbate social pressures (...)
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  • An AI Bill of Rights: Implications for Health Care AI and Machine Learning—A Bioethics Lens.Jennifer Blumenthal-Barby - 2022 - American Journal of Bioethics 23 (1):4-6.
    Just last week (October 4, 2022), the U.S. White House released a blueprint for an A.I. Bill of Rights, consisting of “five principles and associated practices to help guide the design, use, and de...
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  • Discapacidad y calidad de vida en decisiones de triaje durante el COVID-19: marcos éticos de equidad y perspectivas queer-crip.Lautaro Leani - 2021 - Resistances. Journal of the Philosophy of History 2 (3):e21045.
    En estudios sobre economía de la salud es usual la utilización de las unidades de medida que ponderan la cantidad de años de vida esperados y la presencia de discapacidad (DALY) o la calidad de vida (QALY) durante dicho período. El objetivo de este trabajo es indagar en los supuestos y las consecuencias éticas del uso de estas unidades de medida como criterios de prioridad o desempate en decisiones de triaje durante la pandemia de COVID-19. Se abordará, en primer lugar, (...)
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