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Ancillary Care, Genomics, and the Need and Opportunity for Community-Based Participatory Research

American Journal of Bioethics 13 (2):54-56 (2013)

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Considering Actionability at the Participant's Research Setting Level for Anticipatable Incidental Findings from Clinical Research.Alberto Ortiz-Osorno, Linda A. Ehler & Judith Brooks - 2015 - Journal of Law, Medicine and Ethics 43 (3):619-632.details Determining what constitutes an anticipatable incidental finding from clinical research and defining whether, and when, this IF should be returned to the participant have been topics of discussion in the field of human subject protections for the last 10 years. It has been debated that implementing a comprehensive IF-approach that addresses both the responsibility of researchers to return IFs and the expectation of participants to receive them can be logistically challenging. IFs have been debated at different levels, such as the (...) Download Export citation Bookmark 7 citations
The Limits of Traditional Approaches to Informed Consent for Genomic Medicine.Thomas May, Kaija L. Zusevics, Arthur Derse, Kimberly A. Strong, Jessica Jeruzal, Alison La Pean Kirschner, Michael H. Farrell & Ryan Spellecy - 2014 - HEC Forum 26 (3):185-202.details This paper argues that it will be important for new genomic technologies to recognize the limits of traditional approaches to informed consent, so that other-regarding implications of genomic information can be properly contextualized and individual rights respected. Respect for individual autonomy will increasingly require dynamic consideration of the interrelated dimensions of individual and broader community interests, so that the interests of one do not undermine fundamental interests of the other. In this, protection of individual rights will be a complex interplay (...) Download Export citation Bookmark 1 citation

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