An Ethics Framework for Big Data in Health and Research

Asian Bioethics Review 11 (3):227-254 (2019)
Download Edit this record How to cite View on PhilPapers
Ethical decision-making frameworks assist in identifying the issues at stake in a particular setting and thinking through, in a methodical manner, the ethical issues that require consideration as well as the values that need to be considered and promoted. Decisions made about the use, sharing, and re-use of big data are complex and laden with values. This paper sets out an Ethics Framework for Big Data in Health and Research developed by a working group convened by the Science, Health and Policy-relevant Ethics in Singapore Initiative. It presents the aim and rationale for this framework supported by the underlying ethical concerns that relate to all health and research contexts. It also describes a set of substantive and procedural values that can be weighed up in addressing these concerns, and a step-by-step process for identifying, considering, and resolving the ethical issues arising from big data uses in health and research. This Framework is subsequently applied in the papers published in this Special Issue. These papers each address one of six domains where big data is currently employed: openness in big data and data repositories, precision medicine and big data, real-world data to generate evidence about healthcare interventions, AI-assisted decision-making in healthcare, public-private partnerships in healthcare and research, and cross-sectoral big data.
No keywords specified (fix it)
PhilPapers/Archive ID
Revision history
Archival date: 2019-10-08
View upload history
References found in this work BETA
The Research‐Treatment Distinction: A Problematic Approach for Determining Which Activities Should Have Ethical Oversight.Kass, Nancy E.; Faden, Ruth R.; Goodman, Steven N.; Pronovost, Peter; Tunis, Sean & Beauchamp, Tom L.
Why Bioethics Needs a Concept of Vulnerability.Rogers, Wendy; Mackenzie, Catriona & Dodds, Susan

View all 17 references / Add more references

Citations of this work BETA

View all 7 citations / Add more citations

Added to PP index

Total views
97 ( #33,684 of 50,209 )

Recent downloads (6 months)
43 ( #14,126 of 50,209 )

How can I increase my downloads?

Downloads since first upload
This graph includes both downloads from PhilArchive and clicks to external links.