- “Who is watching the watchdog?”: ethical perspectives of sharing health-related data for precision medicine in Singapore.Tamra Lysaght, Angela Ballantyne, Vicki Xafis, Serene Ong, Gerald Owen Schaefer, Jeffrey Min Than Ling, Ainsley J. Newson, Ing Wei Khor & E. Shyong Tai - 2020 - BMC Medical Ethics 21 (1):1-11.details
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Public trust and global biobank networks.Wendy Lipworth, Ian Kerridge, Cameron Stewart, Edwina Light, Miriam Wiersma, Paul Mason, Margaret Otlowski, Christine Critchley & Lisa Dive - 2020 - BMC Medical Ethics 21 (1):1-9.details
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Singapore From Social Democracy to Communitarianism.Beng Huat Chua - 2019 - In Walter Reese-Schäfer (ed.), Handbuch Kommunitarismus. Springer Fachmedien Wiesbaden. pp. 643-662.details
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Trust, trustworthiness and sharing patient data for research.Mark Sheehan, Phoebe Friesen, Adrian Balmer, Corina Cheeks, Sara Davidson, James Devereux, Douglas Findlay, Katharine Keats-Rohan, Rob Lawrence & Kamran Shafiq - 2021 - Journal of Medical Ethics 47 (12):e26-e26.details
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Community perspectives on the benefits and risks of technologically enhanced communicable disease surveillance systems: a report on four community juries.Chris Degeling, Stacy M. Carter, Antoine M. van Oijen, Jeremy McAnulty, Vitali Sintchenko, Annette Braunack-Mayer, Trent Yarwood, Jane Johnson & Gwendolyn L. Gilbert - 2020 - BMC Medical Ethics 21 (1):1-14.details
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Patients’ and public views and attitudes towards the sharing of health data for research: a narrative review of the empirical evidence.Shona Kalkman, Johannes van Delden, Amitava Banerjee, Benoît Tyl, Menno Mostert & Ghislaine van Thiel - 2022 - Journal of Medical Ethics 48 (1):3-13.details
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Precision Medicine and Big Data: The Application of an Ethics Framework for Big Data in Health and Research.G. Owen Schaefer, E. Shyong Tai & Shirley Sun - 2019 - Asian Bioethics Review 11 (3):275-288.details
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Introduction: Sharing Data in a Medical Information Commons.Amy L. McGuire, Mary A. Majumder, Angela G. Villanueva, Jessica Bardill, Juli M. Bollinger, Eric Boerwinkle, Tania Bubela, Patricia A. Deverka, Barbara J. Evans, Nanibaa' A. Garrison, David Glazer, Melissa M. Goldstein, Henry T. Greely, Scott D. Kahn, Bartha M. Knoppers, Barbara A. Koenig, J. Mark Lambright, John E. Mattison, Christopher O'Donnell, Arti K. Rai, Laura L. Rodriguez, Tania Simoncelli, Sharon F. Terry, Adrian M. Thorogood, Michael S. Watson, John T. Wilbanks & Robert Cook-Deegan - 2019 - Journal of Law, Medicine and Ethics 47 (1):12-20.details
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The acceptability of conducting data linkage research without obtaining consent: lay people’s views and justifications.Vicki Xafis - 2015 - BMC Medical Ethics 16 (1):79.details
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A Question of Trust: The Bbc Reith Lectures 2002.Onora O'Neill - 2002 - Cambridge University Press.details
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Intimacy and Family Consent: A Confucian Ideal.Shui Chuen Lee - 2015 - Journal of Medicine and Philosophy 40 (4):418-436.details
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Data Access Committees.Jan Piasecki & Phaik Yeong Cheah - 2020 - BMC Medical Ethics 21 (1):1-8.details
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Thought Leader Perspectives on Participant Protections in Precision Medicine Research.Catherine M. Hammack, Kathleen M. Brelsford & Laura M. Beskow - 2019 - Journal of Law, Medicine and Ethics 47 (1):134-148.details
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South African traditional values and beliefs regarding informed consent and limitations of the principle of respect for autonomy in African communities: a cross-cultural qualitative study.Sylvester C. Chima & Francis Akpa-Inyang - 2021 - BMC Medical Ethics 22 (1):1-17.details
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Informed consent.Trudo Lemmens - 2014 - In Yann Joly & Bartha Maria Knoppers (eds.), Routledge Handbook of Medical Law and Ethics. New York, NY: Routledge.details
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Criminal Prohibition of Wrongful Re‑identification: Legal Solution or Minefield for Big Data?Mark Phillips, Edward S. Dove & Bartha M. Knoppers - 2017 - Journal of Bioethical Inquiry 14 (4):527-539.details
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