Switch to: Citations

Add references

You must login to add references.
  1. Untangling research and practice: What Facebook’s “emotional contagion” study teaches us.Danah Boyd - 2016 - Research Ethics 12 (1):4-13.
    Published in 2014, the Facebook “emotional contagion” study prompted widespread discussions about the ethics of manipulating social media content. By and large, researchers focused on the lack of corporate institutional review boards and informed consent procedures, missing the crux of what upset people about both the study and Facebook’s underlying practices. This essay examines the reactions that unfolded, arguing the public’s growing discomfort with “big data” fueled the anger. To address these concerns, we need to start imagining a socio-technical approach (...)
    Download  
     
    Export citation  
     
    Bookmark   2 citations  
  • Unresolved Ethical Challenges for the Australian Personally Controlled Electronic Health Record System: Key Informant Interview Findings.Craig L. Fry, Merle Spriggs, Michael Arnold & Chris Pearce - 2014 - AJOB Empirical Bioethics 5 (4):30-36.
    Download  
     
    Export citation  
     
    Bookmark   4 citations  
  • “But the data is already public”: on the ethics of research in Facebook.Michael Zimmer - 2010 - Ethics and Information Technology 12 (4):313-325.
    In 2008, a group of researchers publicly released profile data collected from the Facebook accounts of an entire cohort of college students from a US university. While good-faith attempts were made to hide the identity of the institution and protect the privacy of the data subjects, the source of the data was quickly identified, placing the privacy of the students at risk. Using this incident as a case study, this paper articulates a set of ethical concerns that must be addressed (...)
    Download  
     
    Export citation  
     
    Bookmark   50 citations  
  • Where are human subjects in Big Data research? The emerging ethics divide.Kate Crawford & Jacob Metcalf - 2016 - Big Data and Society 3 (1).
    There are growing discontinuities between the research practices of data science and established tools of research ethics regulation. Some of the core commitments of existing research ethics regulations, such as the distinction between research and practice, cannot be cleanly exported from biomedical research to data science research. Such discontinuities have led some data science practitioners and researchers to move toward rejecting ethics regulations outright. These shifts occur at the same time as a proposal for major revisions to the Common Rule—the (...)
    Download  
     
    Export citation  
     
    Bookmark   40 citations  
  • Facebook’s emotional contagion study and the ethical problem of co-opted identity in mediated environments where users lack control.Evan Selinger & Woodrow Hartzog - 2016 - Research Ethics 12 (1):35-43.
    We argue a main but underappreciated reason why the Facebook emotional contagion experiment is ethically problematic is that it co-opted user data in a way that violated identity-based norms and exploited the vulnerability of those disclosing on social media who are unable to control how personal information is presented in this technologically mediated environment.
    Download  
     
    Export citation  
     
    Bookmark   2 citations  
  • Internet research ethics and the institutional review board: current practices and issues.Elizabeth A. Buchanan & Charles M. Ess - 2009 - Acm Sigcas Computers and Society 39 (3):43-49.
    The Internet has been used as a place for and site of an array of research activities. From online ethnographies to public data sets and online surveys, researchers and research regulators have struggled with an array of ethical issues around the conduct of online research. This paper presents a discussion and findings from Buchanan and Ess's study on US-based institutional review boards and the state of internet research ethics.
    Download  
     
    Export citation  
     
    Bookmark   8 citations  
  • The Need for Evidence-Based Research Ethics.Emily E. Anderson - 2009 - American Journal of Bioethics 9 (11):60-62.
    Download  
     
    Export citation  
     
    Bookmark   1 citation  
  • Ethical Intersections: Health Research, Methods and Researcher Responsibility.Jeanne Daly - 1996 - Allen & Unwin.
    Introduction to the issues in health research ethics with contributions from leading Australian and international health researchers.
    Download  
     
    Export citation  
     
    Bookmark   1 citation  
  • Big Data: A Revolution That Will Transform How We Live, Work, and Think.[author unknown] - 2013
    Download  
     
    Export citation  
     
    Bookmark   191 citations  
  • The Need for Evidence-Based Research Ethics.Emily Anderson & Joan Sieber - 2009 - American Journal of Bioethics 9 (11):60-62.
    Download  
     
    Export citation  
     
    Bookmark   1 citation