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  1. The Tyranny of Principles.Stephen Toulmin - 1981 - Hastings Center Report 11 (6):31-39.
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  • Genetic Dilemmas and the Child's Right to an Open Future.Dena S. Davis - 1997 - Hastings Center Report 27 (2):7-15.
    Although deeply committed to the model of nondirective counseling, most genetic counselors enter the profession with certain assumptions about health and disability—for example, that it is preferable to be a hearing person than a deaf person. Thus, most genetic counselors are deeply troubled when parents with certain disabilities ask for assistance in having a child who shares their disability. This ethical challenge benefits little from viewing it as a conflict between beneficence and autonomy. The challenge is better recast as a (...)
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  • When Is Birth Unfair to the Child?Bonnie Steinbock & Ron McClamrock - 1994 - Hastings Center Report 24 (6):15-21.
    Is it wrong to bring children who will have serious diseases and disabilities into the world? In particular, is it unfair to them? The notion that existence itself can be an injury is the basis for a recent new tort known as "wrongful life" (Steinbock, 1986). This paper considers Feinberg's theory of harm as the basis for a claim of wrongful life, and concludes that rarely can the stringent conditions imposed by his analysis be met. Another basis for maintaining that (...)
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  • Genetic links, family ties, and social bonds: Rights and responsibilities in the face of genetic knowledge.Rosamond Rhodes - 1998 - Journal of Medicine and Philosophy 23 (1):10 – 30.
    Currently, some of the most significant moral issues involving genetic links relate to genetic knowledge. In this paper, instead of looking at the frequently addressed issues of responsibilities professionals or institutions have to individuals, I take up the question of what responsibilities individuals have to one another with respect to genetic knowledge. I address the questions of whether individuals have a moral right to pursue their own goals without contributing to society's knowledge of population genetics, without adding to their family's (...)
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  • Genetic ignorance, moral obligations and social duties.Tuija Takala & Matti Häyry - 2000 - Journal of Medicine and Philosophy 25 (1):107 – 113.
    In a contribution to The Journal of Medicine and Philosophy , Professor Rosamond Rhodes argues that individuals sometimes have an obligation to know about their genetic disorders, because this is required by their status as autonomous persons. Her analysis, which is based on Kant's concept of autonomy and Aristotle's notion of friendship, is extended here to consequentialist concerns. These are of paramount importance if, as we believe and Professor Rhodes herself implies, the Kantian and Aristotelian doctrines can be helpful only (...)
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  • “Give Me Children or I Shall Die!”: New Reproductive Technologies and Harm to Children.Cynthia B. Cohen - 1996 - Hastings Center Report 26 (2):19-27.
    Some evidence suggests that IVF and other reproductive technologies create serious illness and disorders in a small but significant proportion of children who are born of them. If these technologies were found to do so, it would be wrong to forge ahead with their use.
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  • The Right to Genetic Ignorance Confirmed.Tuija Takala - 1999 - Bioethics 13 (3-4):288-293.
    One of the much debated issues around the evolving human genetics is the question of the right to know versus the right not to know. The core question of this theme is whether an individual has the right to know about her own genetic constitution and further, does she also have the right to remain in ignorance. Within liberal traditions it is usually held that people, if they so wish, have the right to all the knowledge available about themselves. This (...)
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  • Autonomy, respect, and genetic information policy: A reply to Tuija Takala and Matti Häyry.Rosamond Rhodes - 2000 - Journal of Medicine and Philosophy 25 (1):114 – 120.
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  • Experiences of genetic risk: Disclosure and the gendering of responsibility.Lori D’Agincourt-Canning - 2001 - Bioethics 15 (3):231–247.
    The question of ‘who owns genetic information‘ is increasingly a focus of ethical inquiry. Applied to predictive testing, several recent critiques suggest that persons with a genetic disorder have a moral duty to disclose that information to other family members. The justification for this obligation is that genetic information belongs to and may benefit not only a single individual, but also members of a biological kinship. This paper considers this issue from a different vantage point: How does gender intersect with (...)
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  • Balancing autonomy and responsibility: the ethics of generating and disclosing genetic information * Commentary * Author's reply.N. Hallowell - 2003 - Journal of Medical Ethics 29 (2):74-79.
    Using data obtained during a retrospective interview study of 30 women who had undergone genetic testing—BRCA1/2 mutation searching—this paper describes how women, previously diagnosed with breast/ovarian cancer, perceive their role in generating genetic information about themselves and their families. It observes that when describing their motivations for undergoing DNA testing and their experiences of disclosing genetic information within the family these women provide care based ethical justifications for their actions. Finally, it argues that generating genetic information and disclosing this information (...)
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  • Impartial principle and moral context: Securing a place for the particular in ethical theory.Alisa L. Carse - 1998 - Journal of Medicine and Philosophy 23 (2):153 – 169.
    This essay critically assesses two strategies of accommodation used by defenders of impartialism in ethics to argue that the care orientation represents no genuine challenge to impartialist theoretical paradigms. One strategy focuses on impartiality as a constraint on moral deliberation, the other as a constraint on moral justification. While highlighting respects in which the commitment to impartiality is more consonant with the care orientation than many advocates of care have acknowledged, this essay attempts to clarify crucial ways in which each (...)
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  • Breast cancer genetic screening and critical bioethics' gaze.Lisa S. Parker - 1995 - Journal of Medicine and Philosophy 20 (3):313-337.
    This paper illustrates a role that bioethics should play in developing and criticizing protocols for breast cancer genetic screening. It demonstrates how a critical bioethics, using approaches and reflecting concerns of contemporary philosophy of science and science studies, may critically interrogate the normative and conceptual schemes within which ethical considerations about such screening protocols are framed. By exploring various factors that influence the development of such protocols, including politics, cultural norms, and conceptions of disease, this paper and the critical bioethics' (...)
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  • Just ignore it? Parents and genetic information.Simo Vehmas - 2001 - Theoretical Medicine and Bioethics 22 (5):473-484.
    This paper discusses whether prospectiveparents ought to find out about their geneticconstitution for reproductive reasons. It isargued that ignoring genetic information can bein line with responsible parenthood or perhapseven recommendable. This is because parenthoodis essentially an unconditional project inwhich parents ought to commit themselves tonurturing any kind of child. Besides, thetraditional reasons offered for theunfortunateness of impairments and the tragicfate of families with disabled children are notconvincing. Other morally problematic outcomesof genetics, such as discrimination againstindividuals with impairments, and limiting freeparental (...)
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  • Experiences of Genetic Risk: Disclosure and the Gendering of Responsibility.Lori D.&Rsquoagincourt-Canning - 2001 - Bioethics 15 (3):231-247.
    The question of ‘who owns genetic information‘ is increasingly a focus of ethical inquiry. Applied to predictive testing, several recent critiques suggest that persons with a genetic disorder have a moral duty to disclose that information to other family members. The justification for this obligation is that genetic information belongs to and may benefit not only a single individual, but also members of a biological kinship. This paper considers this issue from a different vantage point: How does gender intersect with (...)
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  • What Can Progress in Reproductive Technology Mean for Women?L. M. Purdy - 1996 - Journal of Medicine and Philosophy 21 (5):499-514.
    This article critically evaluates the central claims of the various feminist responses to new reproductive arrangements and technologies. Proponents of a “progressivism” object to naive technological optimism and raise questions about the control of such technology. Others, such as the FINRRAGE group, raise concerns about the potentially damaging consequences of the new technologies for women. While a central concern is whether these technologies reinforce harmful biologically determinist stereotypes of women, it may be that these critiques function with a devastating gender (...)
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  • A Feminist Standpoint for Genetics.Mary B. Mahowald - 1996 - Journal of Clinical Ethics 7 (4):333-340.
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