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  1. Clinical ethics: Autonomy at the end of life: life-prolonging treatment in nursing homes—relatives’ role in the decision-making process.A. Dreyer, R. Forde & P. Nortvedt - 2009 - Journal of Medical Ethics 35 (11):672-677.
    Background: The increasing number of elderly people in nursing homes with failing competence to give consent represents a great challenge to healthcare staff’s protection of patient autonomy in the issues of life-prolonging treatment, hydration, nutrition and hospitalisation. The lack of national guidelines and internal routines can threaten the protection of patient autonomy. Objectives: To place focus on protecting patient autonomy in the decision-making process by studying how relatives experience their role as substitute decision-makers. Design: A qualitative descriptive design with analysis (...)
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  • Exploring the Moral Distress of Registered Nurses.Patti Rager Zuzelo - 2007 - Nursing Ethics 14 (3):344-359.
    Registered nurses (RNs) employed in an urban medical center in the USA identified moral distress as a practice concern. This study describes RNs' moral distress and the frequency of morally distressing events. Data were collected using the Moral Distress Scale and an open-ended questionnaire. The instruments were distributed to direct-care-providing RNs; 100 responses were returned. Morally distressing events included: working with staffing levels perceived as `unsafe', following families' wishes for patient care even though the nurse disagreed with the plan, and (...)
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  • An Evaluation of Unit-Based Ethics Conversations.Lucia D. Wocial, Maureen Hancock, Patricia D. Bledsoe, Amy R. Chamness & Paul R. Helft - 2010 - Jona's Healthcare Law, Ethics, and Regulation 12 (2):48-54.
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  • Consequences of clinical situations that cause critical care nurses to experience moral distress.D. L. Wiegand & M. Funk - 2012 - Nursing Ethics 19 (4):479-487.
    Little is known about the consequences of moral distress. The purpose of this study was to identify clinical situations that caused nurses to experience moral distress, to understand the consequences of those situations, and to determine whether nurses would change their practice based on their experiences. The investigation used a descriptive approach. Open-ended surveys were distributed to a convenience sample of 204 critical care nurses employed at a university medical center. The analysis of participants’ responses used an inductive approach and (...)
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  • Nurses' perceptions of and responses to morally distressing situations.Colleen Varcoe, Bernie Pauly, Jan Storch, Lorelei Newton & Kara Makaroff - 2012 - Nursing Ethics 19 (4):488-500.
    Research on moral distress has paid limited attention to nurses’ responses and actions. In a survey of nurses’ perceptions of moral distress and ethical climate, 292 nurses answered three open-ended questions about situations that they considered morally distressing. Participants identified a range of situations as morally distressing, including witnessing unnecessary suffering, being forced to provide care that compromised values, and negative judgments about patients. They linked these situations to contextual constraints such as workload and described responses, including feeling incompetent and (...)
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  • Prevention of Unethical Actions in Nursing Homes.Eva Merethe Solum, Åshild Slettebø & Solveig Hauge - 2008 - Nursing Ethics 15 (4):536-548.
    Ethical problems regularly arise during daily care in nursing homes. These include violation of patients' right to autonomy and to be treated with respect. The aim of this study was to investigate how caregivers emphasize daily dialogue and mutual reflection to reach moral alternatives in daily care. The data were collected by participant observation and interviews with seven caregivers in a Norwegian nursing home. A number of ethical problems linked to 10 patients were disclosed. Moral problems were revealed as the (...)
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  • Solving Ethically Difficult Care Situations in Nursing Homes.Åshild Slettebø & Eli Haugen Bunch - 2004 - Nursing Ethics 11 (6):543-552.
    Patients in nursing homes sometimes give accounts of episodes in which they feel their autonomy and/or self-respect are violated as a result of the care they receive from nursing staff. In these ethically difficult care situations nurses use strategies such as negotiation, explanation and, in some cases, restraint. This study investigates how nurses apply these strategies to resolve ethical dilemmas in such a way that patients experience respect rather than violation. Critical issues that will be discussed include the definition of (...)
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  • Moral Distress Among Health System Managers: Exploratory Research in Two British Columbia Health Authorities. [REVIEW]Craig Mitton, Stuart Peacock, Jan Storch, Neale Smith & Evelyn Cornelissen - 2011 - Health Care Analysis 19 (2):107-121.
    Moral distress is a concept used to date in clinical literature to describe the experience of staff in circumstances in which they are prevented from delivering the kind of bedside care they believe is expected of them, professionally and ethically. Our research objective was to determine if this concept has relevance in terms of key health care managerial functions, such as priority setting and resource allocation. We conducted interviews and focus groups with mid- and senior-level managers in two British Columbia (...)
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  • A Critical Analysis of Australian Clinical Ethics Committees and the Functions They Serve.Paul M. McNeill - 2001 - Bioethics 15 (5-6):443-460.
    The predominant function of Australian clinical ethics committees (CECs) is policy formation. Some committees have an educational role. Few committees play any direct role in advising on ethics in the management of individual patients and this occurs only in exceptional circumstances. There is a tendency to exaggerate both the number and function of committees. It is suggested that studies of ethics committees, based on questionnaire surveys, should be interpreted cautiously. An examination of ethical issues indicates that there is a role (...)
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  • Dignity of older people in a nursing home: Narratives of care providers.Rita Jakobsen & Venke Sørlie - 2010 - Nursing Ethics 17 (3):289-300.
    The purpose of this study was to illuminate the ethically difficult situations experienced by care providers working in a nursing home. Individual interviews using a narrative approach were conducted. A phenomenological-hermeneutic method developed for researching life experience was applied in the analysis. The findings showed that care providers experience ethical challenges in their everyday work. The informants in this study found the balance between the ideal, autonomy and dignity to be a daily problem. They defined the culture they work in (...)
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  • Empirical Research on Moral Distress: Issues, Challenges, and Opportunities. [REVIEW]Ann B. Hamric - 2012 - HEC Forum 24 (1):39-49.
    Abstract Studying a concept as complex as moral distress is an ongoing challenge for those engaged in empirical ethics research. Qualitative studies of nurses have illuminated the experience of moral distress and widened the contours of the concept, particularly in the area of root causes. This work has led to the current understanding that moral distress can arise from clinical situations, factors internal to the individual professional, and factors present in unit cultures, the institution, and the larger health care environment. (...)
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  • Evolution of hospital clinical ethics committees in Canada.A. Gaudine, L. Thorne, S. M. LeFort & M. Lamb - 2010 - Journal of Medical Ethics 36 (3):132-137.
    To investigate the current status of hospital clinical ethics committees (CEC) and how they have evolved in Canada over the past 20 years, this paper presents an overview of the findings from a 2008 survey and compares these findings with two previous Canadian surveys conducted in 1989 and 1984. All Canadian hospitals over 100 beds, of which at least some were acute care, were surveyed to determine the structure of CEC, how they function, the perceived achievements of these committees and (...)
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  • A Survey of Ethical Issues Experienced by Nurses Caring for Terminally Ill Elderly People.S. Patricia D. Enes & Kay de Vries - 2004 - Nursing Ethics 11 (2):150-164.
    This study examined the ethical issues experienced by nurses working in a small group of elderly persons’ care settings in the UK, using a survey questionnaire previously used in other countries for examining the cultural aspects of ethical issues. However ‘culture’ relates not only to ethnicity but also the organizational culture in which care is delivered. Nurses working in elderly persons’ care settings described a range of issues faced when caring for elderly terminally ill people, which illustrated the different needs (...)
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  • A Survey Of Ethical Issues Experienced By Nurses Caring For Terminally Ill Elderly People.S. D. Enes & Kay de Vries - 2004 - Nursing Ethics 11 (2):150-164.
    This study examined the ethical issues experienced by nurses working in a small group of elderly persons’ care settings in the UK, using a survey questionnaire previously used in other countries for examining the cultural aspects of ethical issues. However ‘culture’ relates not only to ethnicity but also the organizational culture in which care is delivered. Nurses working in elderly persons’ care settings described a range of issues faced when caring for elderly terminally ill people, which illustrated the different needs (...)
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  • Life-prolonging treatment in nursing homes: how do physicians and nurses describe and justify their own practice?A. Dreyer, R. Forde & P. Nortvedt - 2010 - Journal of Medical Ethics 36 (7):396-400.
    Background Making the right decisions, while simultaneously showing respect for patient autonomy, represents a great challenge to nursing home staff in the issues of life-prolonging treatment, hydration, nutrition and hospitalisation to dying patents in end-of-life. Objectives To study how physicians and nurses protect nursing home patients' autonomy in end-of-life decisions, and how they justify their practice. Design A qualitative descriptive design with analysis of the content of transcribed in-depth interviews with physicians and nurses. Participants Nine physicians and ten nurses in (...)
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  • Nurse moral distress and ethical work environment.Mary C. Corley, Ptlene Minick, R. K. Elswick & Mary Jacobs - 2005 - Nursing Ethics 12 (4):381-390.
    This study examined the relationship between moral distress intensity, moral distress frequency and the ethical work environment, and explored the relationship of demographic characteristics to moral distress intensity and frequency. A group of 106 nurses from two large medical centers reported moderate levels of moral distress intensity, low levels of moral distress frequency, and a moderately positive ethical work environment. Moral distress intensity and ethical work environment were correlated with moral distress frequency. Age was negatively correlated with moral distress intensity, (...)
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  • Nurse Moral Distress: a proposed theory and research agenda.Mary C. Corley - 2002 - Nursing Ethics 9 (6):636-650.
    As professionals, nurses are engaged in a moral endeavour, and thus confront many challenges in making the right decision and taking the right action. When nurses cannot do what they think is right, they experience moral distress that leaves a moral residue. This article proposes a theory of moral distress and a research agenda to develop a better understanding of moral distress, how to prevent it, and, when it cannot be prevented, how to manage it.
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  • Everyday Ethics in the Care of Elderly People.Ingrid Ågren Bolmsjö, Lars Sandman & Edith Andersson - 2006 - Nursing Ethics 13 (3):249-263.
    This article analyses the general ethical milieu in a nursing home for elderly residents and provides a decision-making model for analysing the ethical situations that arise. It considers what it means for the residents to live together and for the staff to be in ethically problematic situations when caring for residents. An interpretative phenomenological approach and Sandman’s ethical model proved useful for this purpose. Systematic observations were carried out and interpretation of the general ethical milieu was summarized as ‘being in (...)
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  • Healthcare Provider Moral Distress as a Leadership Challenge.Jennifer Bell & Jonathan M. Breslin - 2008 - Jona's Healthcare Law, Ethics, and Regulation 10 (4):94-97.
    climate are both linked to an organization's ability to retain healthcare professionals and increase their level of job satisfaction, leaders have a corollary responsibility to address moral distress. We recommend that leaders should provide access to ethics education and resources, offer interventions such as ethics debriefings, establish ethics committees, and/or hire a bioethicist to develop ethics capacity and to assist with addressing healthcare provider moral distress....
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  • Expertise in Nursing Practice: Caring, Clinical Judgment, and Ethics.Patricia E. Benner, Christine A. Tanner & Catherine A. Chesla - 1996 - Springer.
    This long-awaited sequel to Benner's earlier book, From Novice to Expert, this volume further analyzes and examines the nature of clinical knowledge and judgment, using the authors' major new research study as its base. The authors interviewed and observed the practice of 130 hospital nurses, mainly in critical care, over a 6-year period, collecting hundreds of clinical narratives from which they have refined and deepened their explanation of the stages of clinical skill acquisition and the components of expert practice.
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  • The Practical, Moral, and Personal Sense of Nursing: A Phenomenological Philosophy of Practice.Anne H. Bishop & John R. Scudder Jr - 1990 - State University of New York Press.
    Bishop is a professor of nursing; Scudder is a professor of philosophy.
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