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Reducing Health Disparities and Enhancing the Responsible Conduct of Research Involving LGBT Youth

Celia B. Fisher & Brian Mustanski

Hastings Center Report 44 (s4):28-31 (2014)

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Adolescent and Parent Perspectives on Ethical Issues in Youth Drug Use and Suicide Survey Research.Celia B. Fisher - 2003 - Ethics and Behavior 13 (4):303-332.details The contributions of adolescent and parent perspectives to ethical planning of survey research on youth drug use and suicide behaviors are highlighted through an empirical examination of 322 7th-12th graders' and 160 parents' opinions on questions related to 4 ethical dimensions of survey research practice: evaluating research risks and benefits, establishing guardian permission requirements, developing confidentiality and disclosure policies, and using cash incentives for recruitment. Generational and ethnic variation in response to questionnaire items developed from discussions within adolescent and parent (...) Download Export citation Bookmark 7 citations
Relational ethics and research with vulnerable populations.Celia B. Fisher - 1999 - Reports on Research Involving Persons with Mental Disorders That May Affect Decision-Making Capacity 2:29-49.details Download Export citation Bookmark 13 citations
Through the Community Looking Glass: Reevaluating the Ethical and Policy Implications of Research on Adolescent Risk and Psychopathology.Scyatta A. Wallace & Celia B. Fisher - 2000 - Ethics and Behavior 10 (2):99-118.details Drawing on a conception of scientists and community members as partners in the construction of ethically responsible research practices, this article urges investigators to seek the perspectives of teenagers and parents in evaluating the personal and political costs and benefits of research on adolescent risk behaviors. Content analysis of focus group discussions involving over 100 parents and teenagers from diverse ethnic and socioeconomic backgrounds revealed community opinions regarding the scientific merit, social value, racial bias, and participant and group harms and (...) Download Export citation Bookmark 13 citations
Determining Risk in Pediatric Research with No Prospect of Direct Benefit: Time for a National Consensus on the Interpretation of Federal Regulations.Celia B. Fisher - 2007 - American Journal of Bioethics 7 (3):5-10.details United States federal regulations for pediatric research with no prospect of direct benefit restrict institutional review board (IRB) approval to procedures presenting: 1) no more than "minimal risk" (§ 45CFR46.404); or 2) no more than a "minor increase over minimal risk" if the research is commensurate with the subjects' previous or expected experiences and intended to gain vitally important information about the child's disorder or condition (§ 45CFR46.406) (DHHS 2001). During the 25 years since their adoption, these regulations have helped (...) Download Export citation Bookmark 27 citations
A goodness-of-fit approach to informed consent for pediatric intervention research.Jessica Masty & Celia Fisher - 2008 - Ethics and Behavior 18 (2-3):139 – 160.details As children and adolescents receive increased research attention, ethical issues related to obtaining informed consent for pediatric intervention research have come into greater focus. In this article, we conceptualize parent permission and child assent within a goodness-of-fit framework that encourages investigators to create consent procedures “fitted” to the research context, the child's cognitive and emotional maturity, and the family system. Drawing on relevant literature and a hypothetical case example, we highlight four factors investigators may consider when constructing consent procedures that (...) Download Export citation Bookmark 8 citations

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