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Ethical considerations related to participation and partnership: an investigation of stakeholders' perceptions of an action-research project on user fee removal for the poorest in Burkina Faso

Matthew R. Hunt, Patrick Gogognon & Valéry Ridde

BMC Medical Ethics 15 (1):13 (2014)

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Ethical analysis of research partnerships with communities.Ernest Wallwork - 2008 - Kennedy Institute of Ethics Journal 18 (1):pp. 57-85.details Community-researcher partnerships constitute one of the most important recent developments in biomedical ethics. The partnerships protect vulnerable communities within which research is conducted and help ensure that the communities benefit from the research. At the same time, they embody deep, core values about the social nature of persons and the value of community that significantly modify the radical individualism too often associated with the prevailing concepts of autonomy and respect for persons. This article examines the burgeoning literature on community-researcher partnerships (...) Download Export citation Bookmark 10 citations
A relational account of public health ethics.Françoise Baylis, Nuala P. Kenny & Susan Sherwin - 2008 - Public Health Ethics 1 (3):196-209.details oise Baylis, 1234 Le Marchant Street, Halifax, Nova Scotia, Canada B3H 3P7. Tel.: (902)-494–2873; Fax: (902)-494-2924; Email: francoise.baylis{at}dal.ca ' + u + '@' + d + ' '//--> . Abstract Recently, there has been a growing interest in public health and public health ethics. Much of this interest has been tied to efforts to draw up national and international plans to deal with a global pandemic. It is common for these plans to state the importance of drawing upon a well-developed (...) Download Export citation Bookmark 90 citations
A case study of community-based participatory research ethics: The healthy public housing initiative.Doug Brugge & Alison Kole - 2003 - Science and Engineering Ethics 9 (4):485-501.details We conducted and analyzed qualitative interviews with 12 persons working on the Healthy Public Housing Initiative in Boston, Massachusetts in 2001. Our goal was to generate ideas and themes related to the ethics of the community-based participatory research in which they were engaged. Specifically, we wanted to see if we found themes that differed from conventional research that is based on an individualistic ethics. There were clearly distinct ethical issues raised with respect to projects and individuals who engage in community-based (...) Download Export citation Bookmark 11 citations
Moral experience: a framework for bioethics research.M. R. Hunt & F. A. Carnevale - 2011 - Journal of Medical Ethics 37 (11):658-662.details Theoretical and empirical research in bioethics frequently focuses on ethical dilemmas or problems. This paper draws on anthropological and phenomenological sources to develop an alternative framework for bioethical enquiry that allows examination of a broader range of how the moral is experienced in the everyday lives of individuals and groups. Our account of moral experience is subjective and hermeneutic. We define moral experience as “Encompassing a person's sense that values that he or she deem important are being realised or thwarted (...) Download Export citation Bookmark 16 citations
Protecting Communities in Biomedical Research.Charles Weijer & E. J. Emanuel - unknowndetails Although for the last 50 years, ethicists dealing with human experimentation have focused primarily on the need to protect individual research subjects and vulnerable groups, biomedical research, especially in genetics, now requires the establishment of standards for the protection of communities. We have developed such a strategy, based on five steps. (i) Identification of community characteristics relevant to the biomedical research setting, (ii) delineation of a typology of different types of communities using these characteristics, (iii) determination of the range of (...) Download Export citation Bookmark 37 citations

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