- Partnering With Patients to Bridge Gaps in Consent for Acute Care Research.Neal W. Dickert, Amanda Michelle Bernard, JoAnne M. Brabson, Rodney J. Hunter, Regina McLemore, Andrea R. Mitchell, Stephen Palmer, Barbara Reed, Michele Riedford, Raymond T. Simpson, Candace D. Speight, Tracie Steadman & Rebecca D. Pentz - 2020 - American Journal of Bioethics 20 (5):7-17.details
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Bridging the Researcher-Participant Gap: A Research Agenda to Build Effective Research Relationships.Stephanie A. Kraft, Devan M. Duenas, Hannah Lewis & Seema K. Shah - 2020 - American Journal of Bioethics 20 (5):31-33.details
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Taking Respect Seriously: Clinical Research and the Demands of Informed Consent.Lynn A. Jansen - 2018 - Journal of Medicine and Philosophy 43 (3):342-360.details
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Trust, Precision Medicine Research, and Equitable Participation of Underserved Populations.Maya Sabatello, Shawneequa Callier, Nanibaa' A. Garrison & Elizabeth G. Cohn - 2018 - American Journal of Bioethics 18 (4):34-36.details
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Beyond Consent: Building Trusting Relationships With Diverse Populations in Precision Medicine Research.Stephanie A. Kraft, Mildred K. Cho, Katherine Gillespie, Meghan Halley, Nina Varsava, Kelly E. Ormond, Harold S. Luft, Benjamin S. Wilfond & Sandra Soo-Jin Lee - 2018 - American Journal of Bioethics 18 (4):3-20.details
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Genomic Justice for Native Americans: Impact of the Havasupai Case on Genetic Research.Nanibaa' A. Garrison - 2013 - Science, Technology, and Human Values 38 (2):201-223.details
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Reframing Consent for Clinical Research: A Function-Based Approach.Scott Y. H. Kim, David Wendler, Kevin P. Weinfurt, Robert Silbergleit, Rebecca D. Pentz, Franklin G. Miller, Bernard Lo, Steven Joffe, Christine Grady, Sara F. Goldkind, Nir Eyal & Neal W. Dickert - 2017 - American Journal of Bioethics 17 (12):3-11.details
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Improving informed consent: Stakeholder views.Emily E. Anderson, Susan B. Newman & Alicia K. Matthews - 2017 - AJOB Empirical Bioethics 8 (3):178-188.details
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A Framework for Unrestricted Prenatal Whole-Genome Sequencing: Respecting and Enhancing the Autonomy of Prospective Parents.Stephanie C. Chen & David T. Wasserman - 2017 - American Journal of Bioethics 17 (1):3-18.details
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Respect: Or, how respect for persons became respect for autonomy.M. Therese Lysaught - 2004 - Journal of Medicine and Philosophy 29 (6):665 – 680.details
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Participant Reactions to a Literacy-Focused, Web-Based Informed Consent Approach for a Genomic Implementation Study.Stephanie A. Kraft, Kathryn M. Porter, Devan M. Duenas, Claudia Guerra, Galen Joseph, Sandra Soo-Jin Lee, Kelly J. Shipman, Jake Allen, Donna Eubanks, Tia L. Kauffman, Nangel M. Lindberg, Katherine Anderson, Jamilyn M. Zepp, Marian J. Gilmore, Kathleen F. Mittendorf, Elizabeth Shuster, Kristin R. Muessig, Briana Arnold, Katrina A. B. Goddard & Benjamin S. Wilfond - 2021 - AJOB Empirical Bioethics 12 (1):1-11.details
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Partnering With Research Staff Members to Bridge Gaps in Consent.Emily E. Anderson - 2020 - American Journal of Bioethics 20 (5):28-30.details
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Understanding respect: learning from patients.N. W. Dickert & N. E. Kass - 2009 - Journal of Medical Ethics 35 (7):419-423.details
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(1 other version)The Invisible Hand in Clinical Research: The Study Coordinator's Critical Role in Human Subjects Protection.Arlene M. Davis, Sara Chandros Hull, Christine Grady, Benjamin S. Wilfond & Gail E. Henderson - 2002 - Journal of Law, Medicine and Ethics 30 (3):411-419.details
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(1 other version)The Invisible Hand in Clinical Research: The Study Coordinator's Critical Role in Human Subjects Protection.Arlene M. Davis, Sara Chandros Hull, Christine Grady, Benjamin S. Wilfond & Gail E. Henderson - 2002 - Journal of Law, Medicine and Ethics 30 (3):411-419.details
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Dynamic Consent: a potential solution to some of the challenges of modern biomedical research.Isabelle Budin-Ljøsne, Harriet J. A. Teare, Jane Kaye, Stephan Beck, Heidi Beate Bentzen, Luciana Caenazzo, Clive Collett, Flavio D’Abramo, Heike Felzmann, Teresa Finlay, Muhammad Kassim Javaid, Erica Jones, Višnja Katić, Amy Simpson & Deborah Mascalzoni - 2017 - BMC Medical Ethics 18 (1):4.details
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Patient and Family Perspectives on Respect and Dignity in the Intensive Care Unit.Mary Catherine Beach, Lindsay Forbes, Emily Branyon, Hanan Aboumatar, Joseph Carrese, Jeremy Sugarman & Gail Geller - 2015 - Narrative Inquiry in Bioethics 5 (1):15-25.details
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