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  1. When Science Offers Salvation: Patient Advocacy and Research Ethics. [REVIEW]Jeremy Sugarman & Rebecca Dresser - 2001 - Hastings Center Report 31 (6):47.
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  • Patient Advocacy Organizations: Institutional Conflicts of Interest, Trust, and Trustworthiness.Susannah L. Rose - 2013 - Journal of Law, Medicine and Ethics 41 (3):680-687.
    Patient advocacy organizations provide patient- and caregiver-oriented education, advocacy, and support services. PAOs are formally organized nonprofit groups that concern themselves with medical conditions or potential medical conditions and have a mission and take actions that seek to help people affected by those medical conditions or to help their families. Examples of PAOs include the American Cancer Society, the National Alliance on Mental Illness, and the American Heart Association. These organizations advocate for, and provide services to, millions of people with (...)
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  • Patient‐Centered Outcomes Research: Stakeholder Perspectives and Ethical and Regulatory Oversight Issues.Emily A. Largent, Joel S. Weissman, Avni Gupta, Melissa Abraham, Ronen Rozenblum, Holly Fernandez Lynch & I. Glenn Cohen - 2018 - IRB: Ethics & Human Research 40 (1):7-17.
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  • How are PCORI-funded researchers engaging patients in research and what are the ethical implications?Lauren E. Ellis & Nancy E. Kass - 2017 - AJOB Empirical Bioethics 8 (1):1-10.
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  • Taking a Hard Look at Advocacy in Research. [REVIEW]Rebecca Dresser - 2012 - Hastings Center Report 31 (6):47-48.
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