- Adjusting the focus: A public health ethics approach to data research.Angela Ballantyne - 2019 - Bioethics 33 (3):357-366.details
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The role of data custodians in establishing and maintaining social licence for health research.Judy Allen, Carolyn Adams & Felicity Flack - 2019 - Bioethics 33 (4):502-510.details
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What Egyptians think. Knowledge, attitude, and opinions of Egyptian patients towards biobanking issues.Ahmed S. Abdelhafiz, Eman A. Sultan, Hany H. Ziady, Ebtesam Ahmed, Walaa A. Khairy, Douaa M. Sayed, Rana Zaki, Merhan A. Fouda & Rania M. Labib - 2019 - BMC Medical Ethics 20 (1):1-10.details
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Towards adaptive governance in big data health research : implementing regulatory principles.Effy Vayena & Alessandro Blasimme - 2021 - In Graeme T. Laurie (ed.), The Cambridge handbook of health research regulation. New York, NY: Cambridge University Press.details
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Precision Medicine and Big Data: The Application of an Ethics Framework for Big Data in Health and Research.G. Owen Schaefer, E. Shyong Tai & Shirley Sun - 2019 - Asian Bioethics Review 11 (3):275-288.details
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The social licence for research: why care.data ran into trouble.Pam Carter, Graeme T. Laurie & Mary Dixon-Woods - 2015 - Journal of Medical Ethics 41 (5):404-409.details
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Health research access to personal confidential data in England and Wales: assessing any gap in public attitude between preferable and acceptable models of consent.Natasha Taylor & Mark J. Taylor - 2014 - Life Sciences, Society and Policy 10 (1):1-24.details
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Health Research with Big Data: Time for Systemic Oversight.Effy Vayena & Alessandro Blasimme - 2018 - Journal of Law, Medicine and Ethics 46 (1):119-129.details
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Factors affecting willingness to share electronic health data among California consumers.Katherine K. Kim, Pamela Sankar, Machelle D. Wilson & Sarah C. Haynes - 2017 - BMC Medical Ethics 18 (1):25.details
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The acceptability of conducting data linkage research without obtaining consent: lay people’s views and justifications.Vicki Xafis - 2015 - BMC Medical Ethics 16 (1):79.details
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Patients’ and public views and attitudes towards the sharing of health data for research: a narrative review of the empirical evidence.Shona Kalkman, Johannes van Delden, Amitava Banerjee, Benoît Tyl, Menno Mostert & Ghislaine van Thiel - 2022 - Journal of Medical Ethics 48 (1):3-13.details
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Broad Consent for Research With Biological Samples: Workshop Conclusions.Christine Grady, Lisa Eckstein, Ben Berkman, Dan Brock, Robert Cook-Deegan, Stephanie M. Fullerton, Hank Greely, Mats G. Hansson, Sara Hull, Scott Kim, Bernie Lo, Rebecca Pentz, Laura Rodriguez, Carol Weil, Benjamin S. Wilfond & David Wendler - 2015 - American Journal of Bioethics 15 (9):34-42.details
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