Based on a qualitative anthropological study of American mothers of infants and young children newly diagnosed with disability, this essay examines how mothers understand their children and define disability in relation to publicly available discourses of disability and identity. In seeking to improve their children’s opportunities in mainstream society, mothers appear to comply with the medical model. But over time and in the process of providing meaning to their experience, mothers retool models, drawing both on the social and minority group (...) models’ rejection of a problem-based definition of disability as inherently caused by impairment and on their own intimate engagement with impairment as an embodied experience. (shrink)

What am I referring to when I say 'I'? This little word is so easy to use in daily life, yet it has become the focus of intense theoretical debate. Where does my sense of self come from? Does it arise spontaneously or is it created by the media or society? Do I really know myself? This concern with the self, with our subjectivity, is now our main point of reference in Western societies. How has it come to be so (...) important? What are the different ways in which we can approach subjectivity? Nick Mansfield explores how our understanding of our subjectivity has developed over the past century. He looks at the work of key modern and postmodern theorists, including Freud, Foucault, Nietzsche, Lacan, Kristeva, Deleuze and Guattari, and he shows how subjectivity is central to debates in contemporary culture, including gender, sexuality, ethnicity, postmodernism and technology. I am who? No topic is more crucial to contemporary cultural theory than subjectivity, and Nick Mansfield has written what has long been lacking-a lucid, smart introduction to work in the field. Professor Simon During, University of Melbourne Effortlessly and with humour, passion and panache, Mansfield offers the reader a telling, trenchantly articulate d account of the complex enigma of the self, without resorting to reductively simple critical cliches.This book, in its graceful movements between disciplines, ideas, and areas of interest, deserves to become a benchmark for all such student introductions for some time to come. Julian Wolfreys, University of Florida Nick Mansfield is Senior Lecturer in the Department of Critical and Cultural Studies at Macquarie University. He is co-author of Cultural Studies and the New Humanities (Oxford 1997) and author of Masochism: The art of power (Praeger 1997). (shrink)

Where feminist critiques of bioscience have uncovered a whole set of operations that range round the Foucauldian notions of biopower and normativity, and have explored genetic discourse in particular to question the stability of self-identity, feminist bioethics has lagged behind. Despite an engagement with the technologies of postmodernity, including those associated with genetic research (and especially in its relation to reproduction), there has been, with relatively few exceptions, a reluctance to explore the implications of postmodernist theory. The difficulty is that (...) bioscience itself is now throwing up a problematic that destabilizes the central agent of ethical theory - the modernist sovereign subject. Using the field of genetics and the mapping of the human genome as a focal point, this paper suggests that bioethics should move on from conventional analytic strategies and, like feminist science studies, embrace uncertainty and complexity. The task is to fashion a new form of ethical response grounded in the notions of embodied connection and fluidity. (shrink)

This philosophical inquiry examines the nature of the technology of genetic predisposition testing and its relation to patients as whole persons. The bioethical principles of nonmaleficence, beneficence, autonomy and justice are judged insufficient to resolve issues associated with use. A new principle of ‘sustained being’, drawn from philosophical propositions of Pellegrino, is suggested. The new principle is suited to an evolving practice and is compatible with consequentialist, deontological and relational ethics theories. The notion of ‘taking care’ is related to nursing (...) in genetic health care to form a standard of conduct and a moral imperative to ‘safeguard being’. (shrink)