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  1. Getting It Right: How Public Engagement Might (and Might Not) Help Us Determine What Is Equitable in Genomics and Precision Medicine.Sara Chandros Hull, Lawrence C. Brody & Rene Sterling - 2023 - American Journal of Bioethics 23 (7):5-8.
    The timing of this special issue of AJOB probing whether public engagement (PE)1 might help achieve equity in genomics is no coincidence. While many issues discussed by the authors are not entirely...
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  • We Have “Gifted” Enough: Indigenous Genomic Data Sovereignty in Precision Medicine.Janis Geary, Jessica A. Kolopenuk, Joseph M. Yracheta & Krystal S. Tsosie - 2021 - American Journal of Bioethics 21 (4):72-75.
    In “Obligations of the ‘Gift’: Reciprocity and Responsibility in Precision Medicine,” Lee rightly points out that disparities in health care access also lead to disparities in precision medi...
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  • Public Deliberation about Gene Editing in the Wild.Michael K. Gusmano, Gregory E. Kaebnick, Karen J. Maschke, Carolyn P. Neuhaus & Ben Curran Wills - 2021 - Hastings Center Report 51 (S2):2-10.
    The release of genetically engineered organisms into the shared environment raises scientific, ethical, and societal issues. Using some form of democratic deliberation to provide the public with a voice on the policies that govern these technologies is important, but there has not been enough attention to how we should connect public deliberation to the existing regulatory process. Drawing on lessons from previous public deliberative efforts by U.S. federal agencies, we identify several practical issues that will need to be addressed if (...)
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  • A Bridge Back to the Future: Public Health Ethics, Bioethics, and Environmental Ethics.Lisa M. Lee - 2017 - American Journal of Bioethics 17 (9):5-12.
    Contemporary biomedical ethics and environmental ethics share a common ancestry in Aldo Leopold's and Van Rensselaer Potter's initial broad visions of a connected biosphere. Over the past five decades, the two fields have become strangers. Public health ethics, a new subfield of bioethics, emerged from the belly of contemporary biomedical ethics and has evolved over the past 25 years. It has moved from its traditional concern with the tension between individual autonomy and community health to a wider focus on social (...)
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  • Giving Voice to the Voiceless in Environmental Gene Editing.Natalie Kofler & Colleen M. Grogan - 2021 - Hastings Center Report 51 (S2):66-73.
    Participatory deliberation, whereby diverse experts and publics collectively engage in decision‐making, can ensure a more informed and just decision by centering historically marginalized perspectives and engaging a spectrum of value systems. Broad and diverse participation is crucial for the equitable distribution of risks and benefits resulting from complex and uncertain decisions such as environmental gene editing. From an ethical position that gives intrinsic value to the nonhuman and recognizes the interconnectedness of species across generations, we argue that deliberation over environmental (...)
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