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  1. Informed Refusal: Toward a Justice-based Bioethics.Ruha Benjamin - 2016 - Science, Technology, and Human Values 41 (6):967-990.
    “Informed consent” implicitly links the transmission of information to the granting of permission on the part of patients, tissue donors, and research subjects. But what of the corollary, informed refusal? Drawing together insights from three moments of refusal, this article explores the rights and obligations of biological citizenship from the vantage point of biodefectors—those who attempt to resist technoscientific conscription. Taken together, the cases expose the limits of individual autonomy as one of the bedrocks of bioethics and suggest the need (...)
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  • Furthering Discussion of Ethical Implementation of HIV Cluster Detection and Response.Meg Watson & Patricia Sweeney - 2020 - American Journal of Bioethics 20 (10):24-26.
    Volume 20, Issue 10, October 2020, Page 24-26.
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  • Benefit of HIV Molecular Surveillance is Unclear, but Risks to Prevention Norms Are Clear.Bridget Haire - 2020 - American Journal of Bioethics 20 (10):47-49.
    Volume 20, Issue 10, October 2020, Page 47-49.
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  • Technology Changes the Ethical Stakes in HIV Surveillance and Prevention: Response to Open Peer Commentaries on “Reassessing the Ethics of Molecular HIV Surveillance in the Era of Cluster Detection and Response”.Stephen Molldrem & Anthony K. J. Smith - 2020 - American Journal of Bioethics 20 (10):W1-W3.
    Volume 20, Issue 10, October 2020, Page W1-W3.
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  • Response to Open Peer Commentaries on “The Ethics of Smart Pills and Self-Acting Devices: Autonomy, Truth-Telling, and Trust at the Dawn of Digital Medicine”.Craig M. Klugman, Laura B. Dunn, Jack Schwartz & I. Glenn Cohen - 2018 - American Journal of Bioethics 18 (10):4-7.
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  • The Ethics of Smart Pills and Self-Acting Devices: Autonomy, Truth-Telling, and Trust at the Dawn of Digital Medicine.Craig M. Klugman, Laura B. Dunn, Jack Schwartz & I. Glenn Cohen - 2018 - American Journal of Bioethics 18 (9):38-47.
    Digital medicine is a medical treatment that combines technology with drug delivery. The promises of this combination are continuous and remote monitoring, better disease management, self-tracking, self-management of diseases, and improved treatment adherence. These devices pose ethical challenges for patients, providers, and the social practice of medicine. For patients, having both informed consent and a user agreement raises questions of understanding for autonomy and informed consent, therapeutic misconception, external influences on decision making, confidentiality and privacy, and device dependability. For providers, (...)
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  • Reassembling the Social: An Introduction to the Actor-Network Theory.Bruno Latour - 2005 - Oxford, England and New York, NY, USA: Oxford University Press.
    Latour is a world famous and widely published French sociologist who has written with great eloquence and perception about the relationship between people, science, and technology. He is also closely associated with the school of thought known as Actor Network Theory. In this book he sets out for the first time in one place his own ideas about Actor Network Theory and its relevance to management and organization theory.
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  • Ethical Convergence and Ethical Possibilities: The Implications of New Materialism for Understanding the Molecular Turn in HIV, the Response to COVID-19, and the Future of Bioethics.Adrian Guta, Marilou Gagnon & Morgan M. Philbin - 2020 - American Journal of Bioethics 20 (10):26-29.
    Volume 20, Issue 10, October 2020, Page 26-29.
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  • Conceptualizing a Bioethics of the Oppressed: Oppression, Structure, and Inclusion.Yoann Della Croce - 2020 - American Journal of Bioethics 20 (10):42-44.
    Volume 20, Issue 10, October 2020, Page 42-44.
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  • What is a Bioethics of the Oppressed in the Age of COVID-19?Craig M. Klugman - 2020 - American Journal of Bioethics 20 (10):29-31.
    Volume 20, Issue 10, October 2020, Page 29-31.
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  • Dealing with Humpty Dumpty: Research, Practice, and the Ethics of Public Health Surveillance.Amy L. Fairchild - 2003 - Journal of Law, Medicine and Ethics 31 (4):615-623.
    Alice considered [the idea of un-birthday presents] a little. “I llke birthday presents best,” she said at last.“You don’t know what you’re talking about!” cried Humpty Dumpty. … “[There are three hundred and sixty-four days when you might get un-birthday presents… And only one for birthday presents, you know. There’s a ‘glory’ for you!”“I don’t know what you mean by ‘glory,’” Alice said.Humpty Dumpty smiled contemptuously. “Of course you don’t—till I tell you. I meant ‘there’s a nice knock-down argument for (...)
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  • Critical bioethics: Beyond the social science critique of applied ethics.Adam M. Hedgecoe - 2004 - Bioethics 18 (2):120–143.
    ABSTRACT This article attempts to show a way in which social science research can contribute in a meaningful and equitable way to philosophical bioethics. It builds on the social science critique of bioethics present in the work of authors such as Renée Fox, Barry Hoffmaster and Charles Bosk, proposing the characteristics of a critical bioethics that would take social science seriously. The social science critique claims that traditional philosophical bioethics gives a dominant role to idealised, rational thought, and tends to (...)
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  • We Are Data: Algorithms and the Making of Our Digital Selves.[author unknown] - 2017
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  • A public health perspective on research ethics.D. R. Buchanan & F. G. Miller - 2006 - Journal of Medical Ethics 32 (12):729-733.
    Ethical guidelines for conducting clinical trials have historically been based on a perceived therapeutic obligation to treat and benefit the patient-participants. The origins of this ethical framework can be traced to the Hippocratic oath originally written to guide doctors in caring for their patients, where the overriding moral obligation of doctors is strictly to do what is best for the individual patient, irrespective of other social considerations. In contrast, although medicine focuses on the health of the person, public health is (...)
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  • HIV, Viral Suppression and New Technologies of Surveillance and Control.Marilou Gagnon, Stuart J. Murray & Adrian Guta - 2016 - Body and Society 22 (2):82-107.
    The global response to managing the spread of HIV has recently undergone a significant shift with the advent of ‘treatment as prevention’, a strategy which presumes that scaling-up testing and treatment for people living with HIV will produce a broader preventative benefit. Treatment as prevention includes an array of diagnostic, technological and policy developments that are creating new understandings of how HIV circulates in bodies and spaces. Drawing on the work of Michel Foucault, we contextualize these developments by linking them (...)
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  • Molecular HIV Surveillance and Public Health Ethics: Old Wine in New Bottles.Liza Dawson & Stephen R. Latham - 2020 - American Journal of Bioethics 20 (10):39-41.
    Volume 20, Issue 10, October 2020, Page 39-41.
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  • Advancing Data Justice in Public Health and Beyond.Lina Dencik - 2020 - American Journal of Bioethics 20 (10):32-33.
    Volume 20, Issue 10, October 2020, Page 32-33.
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  • No More Militaristic and Violent Language in Medicine: Response to Open Peer Commentaries on “Healing Without Waging War: Beyond Military Metaphors in Medicine and HIV Cure Research”.Jing-Bao Nie, Stuart Rennie, Adam Gilbertson & Joseph D. Tucker - 2016 - American Journal of Bioethics 16 (12):9-11.
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  • Healing Without Waging War: Beyond Military Metaphors in Medicine and HIV Cure Research.Jing-Bao Nie, Adam Gilbertson, Malcolm de Roubaix, Ciara Staunton, Anton van Niekerk, Joseph D. Tucker & Stuart Rennie - 2016 - American Journal of Bioethics 16 (10):3-11.
    Military metaphors are pervasive in biomedicine, including HIV research. Rooted in the mind set that regards pathogens as enemies to be defeated, terms such as “shock and kill” have become widely accepted idioms within HIV cure research. Such language and symbolism must be critically examined as they may be especially problematic when used to express scientific ideas within emerging health-related fields. In this article, philosophical analysis and an interdisciplinary literature review utilizing key texts from sociology, anthropology, history, and Chinese and (...)
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  • Resisting the Digital Medicine Panopticon: Toward a Bioethics of the Oppressed.Adrian Guta, Jijian Voronka & Marilou Gagnon - 2018 - American Journal of Bioethics 18 (9):62-64.
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  • Wise Use of Surveillance Data: Evolving HIV Policy and Emerging Considerations Regarding COVID-19.Naomi Seiler, Katie Horton, Anya Vanecek & Claire Heyison - 2020 - American Journal of Bioethics 20 (10):36-39.
    Volume 20, Issue 10, October 2020, Page 36-39.
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  • Digital Medicine: An Opportunity to Revisit the Role of Bioethicists.Karin R. Jongsma, Annelien L. Bredenoord & Federica Lucivero - 2018 - American Journal of Bioethics 18 (9):69-70.
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  • Adding a Voice to the Unique Ethical Considerations in Molecular HIV Surveillance.Farirai Mutenherwa, Douglas Wassenaar & Tulio de Oliveira - 2020 - American Journal of Bioethics 20 (10):34-36.
    Volume 20, Issue 10, October 2020, Page 34-36.
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  • Reassessing the Ethics of Molecular HIV Surveillance in the Era of Cluster Detection and Response: Toward HIV Data Justice.Stephen Molldrem & Anthony K. J. Smith - 2020 - American Journal of Bioethics 20 (10):10-23.
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  • HIV Molecular Epidemiology: Tool of Oppression or Empowerment?Stuart Rennie, Kristen Sullivan & Ann Dennis - 2020 - American Journal of Bioethics 20 (10):44-47.
    Volume 20, Issue 10, October 2020, Page 44-47.
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