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  1. A Framework for Unrestricted Prenatal Whole-Genome Sequencing: Respecting and Enhancing the Autonomy of Prospective Parents.Stephanie C. Chen & David T. Wasserman - 2017 - American Journal of Bioethics 17 (1):3-18.
    Noninvasive, prenatal whole genome sequencing may be a technological reality in the near future, making available a vast array of genetic information early in pregnancy at no risk to the fetus or mother. Many worry that the timing, safety, and ease of the test will lead to informational overload and reproductive consumerism. The prevailing response among commentators has been to restrict conditions eligible for testing based on medical severity, which imposes disputed value judgments and devalues those living with eligible conditions. (...)
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  • The Ethics of Screening in Health Care and Medicine: Serving Society Or Serving the Patient?Niklas Juth & Christian Munthe - 2011 - Springer Verlag.
    This book involves an in-depth analysis of the ethical, political and philosophical issues related to health-oriented screening programs.
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  • Contested Guideline Development in Australia’s Cervical Screening Program: Values Drive Different Views of the Purpose and Implementation of Organized Screening.Jane Williams, Stacy Carter & Lucie Rychetnik - 2017 - Public Health Ethics 10 (1).
    This article draws on an empirical investigation of how Australia’s cervical screening program came to be the way it is. The study was carried out using grounded theory methodology and primarily uses interviews with experts involved in establishing, updating or administering the program. We found strong differences in experts’ normative evaluations of the program and beliefs about optimal ways of achieving the same basic outcome: a reduction in morbidity and mortality caused by invasive cervical cancer. Our analysis demonstrates how variations (...)
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