- Ethical Implications of User Perceptions of Wearable Devices.L. H. Segura Anaya, Abeer Alsadoon, N. Costadopoulos & P. W. C. Prasad - 2018 - Science and Engineering Ethics 24 (1):1-28.details
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Citizen science or scientific citizenship? Disentangling the uses of public engagement rhetoric in national research initiatives.J. Patrick Woolley, Michelle L. McGowan, Harriet J. A. Teare, Victoria Coathup, Jennifer R. Fishman, Richard A. Settersten, Sigrid Sterckx, Jane Kaye & Eric T. Juengst - 2016 - BMC Medical Ethics 17 (1):1.details
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Ethical Issues in Big Data Health Research: Currents in Contemporary Bioethics.Mark A. Rothstein - 2015 - Journal of Law, Medicine and Ethics 43 (2):425-429.details
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Improving understanding in the research informed consent process: a systematic review of 54 interventions tested in randomized control trials. [REVIEW]Adam Nishimura, Jantey Carey, Patricia J. Erwin, Jon C. Tilburt, M. Hassan Murad & Jennifer B. McCormick - 2013 - BMC Medical Ethics 14 (1):28.details
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Rehabilitating Equipoise.Paul B. Miller & Charles Weijer - 2003 - Kennedy Institute of Ethics Journal 13 (2):93-118.details
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Online Pediatric Research: Addressing Consent, Assent, and Parental Permission.Kyle B. Brothers, Ellen Wright Clayton & Aaron J. Goldenberg - 2020 - Journal of Law, Medicine and Ethics 48 (S1):129-137.details
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Introduction: Unregulated Health Research Using Mobile Devices.Mark A. Rothstein & John T. Wilbanks - 2020 - Journal of Law, Medicine and Ethics 48 (S1):7-8.details
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Expert Perspectives on Oversight for Unregulated mHealth Research: Empirical Data and Commentary.Laura M. Beskow, Catherine M. Hammack-Aviran, Kathleen M. Brelsford & P. Pearl O'Rourke - 2020 - Journal of Law, Medicine and Ethics 48 (S1):138-146.details
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Diversity and Inclusion in Unregulated mHealth Research: Addressing the Risks.Shawneequa Callier & Stephanie M. Fullerton - 2020 - Journal of Law, Medicine and Ethics 48 (S1):115-121.details
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Who Are the People in Your Neighborhood? Personas Populating Unregulated mHealth Research.Megan Doerr & Christi Guerrini - 2020 - Journal of Law, Medicine and Ethics 48 (S1):37-48.details
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Ethical Considerations in the Conduct of Unregulated mHealth Research: Expert Perspectives.Catherine M. Hammack-Aviran, Kathleen M. Brelsford & Laura M. Beskow - 2020 - Journal of Law, Medicine and Ethics 48 (S1):9-36.details
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International mHealth Research: Old Tools and New Challenges.Michael Lang, Bartha Maria Knoppers & Ma’N. H. Zawati - 2020 - Journal of Law, Medicine and Ethics 48 (S1):178-186.details
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Do Groups Have Moral Standing in Unregulated mHealth Research?Joon-Ho Yu & Eric Juengst - 2020 - Journal of Law, Medicine and Ethics 48 (S1):122-128.details
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To What Extent Does the EU General Data Protection Regulation (GDPR) Apply to Citizen Scientist-Led Health Research with Mobile Devices?Edward S. Dove & Jiahong Chen - 2020 - Journal of Law, Medicine and Ethics 48 (S1):187-195.details
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Data Sharing in the Context of Health-Related Citizen Science.Mary A. Majumder & Amy L. McGuire - 2020 - Journal of Law, Medicine and Ethics 48 (S1):167-177.details
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There Oughta Be a Law: When Does(n’t) the U.S. Common Rule Apply?Michelle N. Meyer - 2020 - Journal of Law, Medicine and Ethics 48 (S1):60-73.details
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Assessing the Thin Regulation of Consumer-Facing Health Technologies.Nicolas P. Terry - 2020 - Journal of Law, Medicine and Ethics 48 (S1):94-102.details
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The Federal Trade Commission and Consumer Protections for Mobile Health Apps.Jennifer K. Wagner - 2020 - Journal of Law, Medicine and Ethics 48 (S1):103-114.details
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Return of Results in Participant-Driven Research: Learning from Transformative Research Models.Susan M. Wolf - 2020 - Journal of Law, Medicine and Ethics 48 (S1):159-166.details
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Electronic Informed Consent in Mobile Applications Research.John T. Wilbanks - 2020 - Journal of Law, Medicine and Ethics 48 (S1):147-153.details
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California Takes the Lead on Data Privacy Law.Mark A. Rothstein & Stacey A. Tovino - 2019 - Hastings Center Report 49 (5):4-5.details
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Parsing the Line Between Professional and Citizen Science.Barbara J. Evans - 2019 - American Journal of Bioethics 19 (8):15-17.details
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The Rise of Citizen Science in Health and Biomedical Research.Andrea Wiggins & John Wilbanks - 2019 - American Journal of Bioethics 19 (8):3-14.details
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Meeting the needs of underserved populations: setting the agenda for more inclusive citizen science of medicine.Amelia Fiske, Barbara Prainsack & Alena Buyx - 2019 - Journal of Medical Ethics 45 (9):617-622.details
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When Citizens Do Science: Stories from Labs, Garages, and Beyond.Lisa M. Rasmussen - 2019 - Narrative Inquiry in Bioethics 9 (1):1-4.details
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Citizen Science and Gamification.Karola V. Kreitmair & David C. Magnus - 2019 - Hastings Center Report 49 (2):40-46.details
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Patient‐Engaged Research: Choosing the “Right” Patients to Avoid Pitfalls.Emily A. Largent, Holly Fernandez Lynch & Matthew S. McCoy - 2018 - Hastings Center Report 48 (5):26-34.details
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Design Issues in E-Consent.John Wilbanks - 2018 - Journal of Law, Medicine and Ethics 46 (1):110-118.details
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Ethical and regulatory challenges of research using pervasive sensing and other emerging technologies: IRB perspectives.Camille Nebeker, John Harlow, Rebeca Espinoza Giacinto, Rubi Orozco-Linares, Cinnamon S. Bloss & Nadir Weibel - 2017 - AJOB Empirical Bioethics 8 (4):266-276.details
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Ethical and regulatory challenges of research using pervasive sensing and other emerging technologies: IRB perspectives.Camille Nebeker, John Harlow, Rebeca Giacinto-Espinoza, Rubi Orozco-Linares, Cinnamon S. Bloss & Nadir Weibel - forthcoming - AJOB Empirical Bioethics:00-00.details
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Vulnerability as a Regulatory Category in Human Subject Research.Carl H. Coleman - 2009 - Journal of Law, Medicine and Ethics 37 (1):12-18.details
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Citizen Science on Your Smartphone: An ELSI Research Agenda: Currents in Contemporary Bioethics.Mark A. Rothstein, John T. Wilbanks & Kyle B. Brothers - 2015 - Journal of Law, Medicine and Ethics 43 (4):897-903.details
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The Evolution of Consent Forms for Research: A Quarter Century of Changes.Ilene Albala, Margaret Doyle & Paul Appelbaum - 2010 - IRB: Ethics & Human Research 32 (3):7-11.details
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European do‐it‐yourself (DIY) biology: Beyond the hope, hype and horror.Günter Seyfried, Lei Pei & Markus Schmidt - 2014 - Bioessays 36 (6):548-551.details
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Vulnerability as a Regulatory Category in Human Subject Research.Carl H. Coleman - 2009 - Journal of Law, Medicine and Ethics 37 (1):12-18.details
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Defining and Describing Benefit Appropriately in Clinical Trials.Nancy M. P. King - 2000 - Journal of Law, Medicine and Ethics 28 (4):332-343.details
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