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  1. Big Data, precision medicine and private insurance: A delicate balancing act.Ine Van Hoyweghen, Effy Vayena & Alessandro Blasimme - 2019 - Big Data and Society 6 (1).
    In this paper, we discuss how access to health-related data by private insurers, other than affecting the interests of prospective policy-holders, can also influence their propensity to make personal data available for research purposes. We take the case of national precision medicine initiatives as an illustrative example of this possible tendency. Precision medicine pools together unprecedented amounts of genetic as well as phenotypic data. The possibility that private insurers could claim access to such rapidly accumulating biomedical Big Data or to (...)
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  • Self-Tracking for Health and the Quantified Self: Re-Articulating Autonomy, Solidarity, and Authenticity in an Age of Personalized Healthcare.Tamar Sharon - 2017 - Philosophy and Technology 30 (1):93-121.
    Self-tracking devices point to a future in which individuals will be more involved in the management of their health and will generate data that will benefit clinical decision making and research. They have thus attracted enthusiasm from medical and public health professionals as key players in the move toward participatory and personalized healthcare. Critics, however, have begun to articulate a number of broader societal and ethical concerns regarding self-tracking, foregrounding their disciplining, and disempowering effects. This paper has two aims: first, (...)
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  • Self-tracking in the Digital Era: Biopower, Patriarchy, and the New Biometric Body Projects.Rachel Sanders - 2017 - Body and Society 23 (1):36-63.
    This article employs Foucauldian and feminist analytics to advance a critical approach to wearable digital health- and activity-tracking devices. Following Foucault’s insight that the growth of individual capabilities coincides with the intensification of power relations, I argue that digital self-tracking devices (DSTDs) expand individuals’ capacity for self-knowledge and self-care at the same time that they facilitate unprecedented levels of biometric surveillance, extend the regulatory mechanisms of both public health and fashion/beauty authorities, and enable increasingly rigorous body projects devoted to the (...)
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  • When data is capital: Datafication, accumulation, and extraction.Jathan Sadowski - 2019 - Big Data and Society 6 (1).
    The collection and circulation of data is now a central element of increasingly more sectors of contemporary capitalism. This article analyses data as a form of capital that is distinct from, but has its roots in, economic capital. Data collection is driven by the perpetual cycle of capital accumulation, which in turn drives capital to construct and rely upon a universe in which everything is made of data. The imperative to capture all data, from all sources, by any means possible (...)
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  • Critical data studies: An introduction.Federica Russo & Andrew Iliadis - 2016 - Big Data and Society 3 (2).
    Critical Data Studies explore the unique cultural, ethical, and critical challenges posed by Big Data. Rather than treat Big Data as only scientifically empirical and therefore largely neutral phenomena, CDS advocates the view that Big Data should be seen as always-already constituted within wider data assemblages. Assemblages is a concept that helps capture the multitude of ways that already-composed data structures inflect and interact with society, its organization and functioning, and the resulting impact on individuals’ daily lives. CDS questions the (...)
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  • ‘My Fitbit Thinks I Can Do Better!’ Do Health Promoting Wearable Technologies Support Personal Autonomy?John Owens & Alan Cribb - 2019 - Philosophy and Technology 32 (1):23-38.
    This paper critically examines the extent to which health promoting wearable technologies can provide people with greater autonomy over their health. These devices are frequently presented as a means of expanding the possibilities people have for making healthier decisions and living healthier lives. We accept that by collecting, monitoring, analysing and displaying biomedical data, and by helping to underpin motivation, wearable technologies can support autonomy over health. However, we argue that their contribution in this regard is limited and that—even with (...)
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  • Self-Tracking Practices and Digital (Re)productive Labour.Karen Dewart McEwen - 2018 - Philosophy and Technology 31 (2):235-251.
    Self-tracking practices include the use of personal data-gathering apps, wearable devices, and data analysis tools to record patterns from daily activities, as well as the organization, visualization, and analysis of this data. This paper draws on theories of digital labour and feminist political economy to build a framework of digital productive labour that highlights the exploitation of activities external to the formal labour relationship. Self-tracking practices are analysed through the lens of digital productive insofar as they fulfill three roles: they (...)
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  • Algorithmic Personalization as a Mode of Individuation.Celia Lury - 2019 - Theory, Culture and Society 36 (2):17-37.
    Recognizing that many of the modern categories with which we think about people and their activities were put in place through the use of numbers, we ask how numbering practices compose contemporary sociality. Focusing on particular forms of algorithmic personalization, we describe a pathway of a-typical individuation in which repeated and recursive tracking is used to create partial orders in which individuals are always more and less than one. Algorithmic personalization describes a mode of numbering that involves forms of de- (...)
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  • The Forms and Limits of Insurance Solidarity.Turo-Kimmo Lehtonen & Jyri Liukko - 2011 - Journal of Business Ethics 103 (S1):33-44.
    What makes insurance special among risk technologies is the particular way in which it links solidarity and technical rationality. On one hand, within insurance practices ‘risk’ is always defined in technical terms. It is related to monetary measurement of value and to statistical probability calculated for a limited population. On the other hand, and at the same time, insurance has an inherent connection to solidarity. When taking out an insurance, one participates in the risk pool within which each member is (...)
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  • Producing Solidarity, Inequality and Exclusion Through Insurance.Turo-Kimmo Lehtonen & Jyri Liukko - 2015 - Res Publica 21 (2):155-169.
    The article presents two main arguments. First, we claim that in contemporary societies, insurance enacts peculiar kinds of solidarities as well as inequality and exclusion. Especially important in this respect are life, health, disability and old age pension insurance, both in compulsory and voluntary forms. Second, the article maintains that the ideas of solidarity, inequality and exclusion are transformed by the machinery of insurance. In other words, the concrete ways in which insurance relations are practically arranged have an effect on (...)
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  • Why Has Critique Run out of Steam? From Matters of Fact to Matters of Concern.Bruno Latour - 2004 - Critical Inquiry 30 (2):225-248.
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  • The transparent self.Marjolein Lanzing - 2016 - Ethics and Information Technology 18 (1):9-16.
    This paper critically engages with new self-tracking technologies. In particular, it focuses on a conceptual tension between the idea that disclosing personal information increases one’s autonomy and the idea that informational privacy is a condition for autonomous personhood. I argue that while self-tracking may sometimes prove to be an adequate method to shed light on particular aspects of oneself and can be used to strengthen one’s autonomy, self-tracking technologies often cancel out these benefits by exposing too much about oneself to (...)
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  • The ghost in the legal machine: algorithmic governmentality, economy, and the practice of law.Adam Harkens - 2018 - Journal of Information, Communication and Ethics in Society 16 (1):16-31.
    PurposeThis paper aims to investigate algorithmic governmentality – as proposed by Antoinette Rouvroy – specifically in relation to law. It seeks to show how algorithmic profiling can be particularly attractive for those in legal practice, given restraints on time and resources. It deviates from Rouvroy in two ways. First, it argues that algorithmic governmentality does not contrast with neoliberal modes of government in that it allows indirect rule through economic calculations. Second, it argues that critique of such systems is possible, (...)
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  • ‘Technologies of the self and other’: how self-tracking technologies also shape the other.Katleen Gabriels & Mark Coeckelbergh - 2019 - Journal of Information, Communication and Ethics in Society 17 (2):119-127.
    Purpose This paper aims to fill this gap by providing a conceptual framework for discussing “technologies of the self and other,” by showing that, in most cases, self-tracking also involves other-tracking. Design/methodology/approach In so doing, we draw upon Foucault’s “technologies of the self” and present-day literature on self-tracking technologies. We elaborate on two cases and practical domains to illustrate and discuss this mutual process: first, the quantified workplace; and second, quantification by wearables in a non-clinical and self-initiated context. Findings The (...)
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  • Broken data: Conceptualising data in an emerging world.Melisa Duque, Robert Willim, Minna Ruckenstein & Sarah Pink - 2018 - Big Data and Society 5 (1).
    In this article, we introduce and demonstrate the concept-metaphor of broken data. In doing so, we advance critical discussions of digital data by accounting for how data might be in processes of decay, making, repair, re-making and growth, which are inextricable from the ongoing forms of creativity that stem from everyday contingencies and improvisatory human activity. We build and demonstrate our argument through three examples drawn from mundane everyday activity: the incompleteness, inaccuracy and dispersed nature of personal self-tracking data; the (...)
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  • Governmentality: Power and Rule in Modern Society.Mitchell Dean - 1999 - SAGE Publications.
    Governmentality draws on Foucault's work along with wider analytical frameworks to reclaim centre stage for this sociological concept. The author argues for a new understanding of how the individual is related to the state and vice versa.
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  • The Foucault Effect: Studies in Governmentality.Graham Burchell, Colin Gordon & Peter Miller (eds.) - 1991 - University of Chicago Press.
    Based on Michel Foucault's 1978 and 1979 lectures at the Collège de France on governmental rationalities and his 1977 interview regarding his work on imprisonment, this volume is the long-awaited sequel to Power/Knowledge.
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  • Devising Consumption: Cultural Economies of Insurance, Credit and Spending.[author unknown] - 2014
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  • Toward a critical theory of corporate wellness.Gordon Hull & Frank Pasquale - 2018 - Biosocieties 13 (1):190-212.
    In the U.S., ‘employee wellness’ programs are increasingly attached to employer-provided health insurance. These programs attempt to nudge employees, sometimes quite forcefully, into healthy behaviors such as smoking cessation and exercise routines. Despite being widely promoted as saving on healthcare costs, numerous studies undermine this rationale. After documenting the programs’ failure to deliver a positive return on investment, we analyze them as instead providing an opportunity for employers to exercise increasing control over their employees. Based on human capital theory and (...)
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