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  1. Alternatives to project-specific consent for access to personal information for health research: Insights from a public dialogue.Donald J. Willison, Marilyn Swinton, Lisa Schwartz, Julia Abelson, Cathy Charles, David Northrup, Ji Cheng & Lehana Thabane - 2008 - BMC Medical Ethics 9 (1):18-.
    BackgroundThe role of consent for research use of health information is contentious. Most discussion has focused on when project-specific consent may be waived but, recently, a broader range of consent options has been entertained, including broad opt-in for multiple studies with restrictions and notification with opt-out. We sought to elicit public values in this matter and to work toward an agreement about a common approach to consent for use of personal information for health research through deliberative public dialogues.MethodsWe conducted seven (...)
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  • Public attitudes towards the use of primary care patient record data in medical research without consent: a qualitative study.M. R. Robling - 2004 - Journal of Medical Ethics 30 (1):104-109.
    Objectives: Recent legislative changes within the United Kingdom have stimulated professional debate about access to patient data within research. However, there is currently little awareness of public views about such research. The authors sought to explore attitudes of the public, and their lay representatives, towards the use of primary care medical record data for research when patient consent was not being sought.Methods: 49 members of the public and four non-medical members of local community health councils in South Wales, UK gave (...)
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