Results for 'Ciara McGlade'

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  1. Open science, data sharing and solidarity: who benefits?Ciara Staunton, Carlos Andrés Barragán, Stefano Canali, Calvin Ho, Sabina Leonelli, Matthew Mayernik, Barbara Prainsack & Ambroise Wonkham - 2021 - History and Philosophy of the Life Sciences 43 (4):1-8.
    Research, innovation, and progress in the life sciences are increasingly contingent on access to large quantities of data. This is one of the key premises behind the “open science” movement and the global calls for fostering the sharing of personal data, datasets, and research results. This paper reports on the outcomes of discussions by the panel “Open science, data sharing and solidarity: who benefits?” held at the 2021 Biennial conference of the International Society for the History, Philosophy, and Social Studies (...)
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  2. Ethical and social reflections on the proposed European Health Data Space.Ciara Staunton, Mahsa Shabani, Deborah Mascalzoni, Signe Mezinska & Santa Slokenberga - 2024 - European Journal of Human Genetics 1 (1):1-9.
    The COVID-19 pandemic demonstrated the benefits of international data sharing. Data sharing enabled the health care policy makers to make decisions based on real-time data, it enabled the tracking of the virus, and importantly it enabled the development of vaccines that were crucial to mitigating the impact of the virus. This data sharing is not the norm as data sharing needs to navigate complex ethical and legal rules, and in particular, the fragmented application of the General Data Protection Regulation (GDPR). (...)
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