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  1. To Tell the Truth, the Whole Truth, May Do Patients Harm: The Problem of the Nocebo Effect for Informed Consent.Rebecca Erwin Wells & Ted J. Kaptchuk - 2012 - American Journal of Bioethics 12 (3):22-29.
    The principle of informed consent obligates physicians to explain possible side effects when prescribing medications. This disclosure may itself induce adverse effects through expectancy mechanisms known as nocebo effects, contradicting the principle of nonmaleficence. Rigorous research suggests that providing patients with a detailed enumeration of every possible adverse event—especially subjective self-appraised symptoms—can actually increase side effects. Describing one version of what might happen (clinical “facts”) may actually create outcomes that are different from what would have happened without this information (another (...)
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  • (Re)Conceptualising ‘good’ proxy decision-making for research: the implications for proxy consent decision quality.Victoria Shepherd - 2022 - BMC Medical Ethics 23 (1):1-11.
    People who are unable to make decisions about participating in research rely on proxies to make a decision based on their wishes and preferences. However, patients rarely discuss their preferences about research and proxies find it challenging to determine what their wishes would be. While the process of informed consent has traditionally been the focus of research to improve consent decisions, the more conceptually complex area of what constitutes ‘good’ proxy decision-making for research has remained unexplored. Interventions are needed to (...)
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  • Comparative Risk: Good or Bad Heuristic?Peter H. Schwartz - 2016 - American Journal of Bioethics 16 (5):20-22.
    Some experts have argued that patients facing certain types of choices should not be told whether their risk is above or below average, because this information may trigger a bias (Fagerlin et al. 2007). But careful consideration shows that the comparative risk heuristic can usefully guide decisions and improve their quality or rationality. Building on an earlier paper of mine (Schwartz 2009), I will argue here that doctors and decision aids should provide comparative risk information to patients, even while further (...)
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  • Shared decision-making and patient autonomy.Lars Sandman & Christian Munthe - 2009 - Theoretical Medicine and Bioethics 30 (4):289-310.
    In patient-centred care, shared decision-making is advocated as the preferred form of medical decision-making. Shared decision-making is supported with reference to patient autonomy without abandoning the patient or giving up the possibility of influencing how the patient is benefited. It is, however, not transparent how shared decision-making is related to autonomy and, in effect, what support autonomy can give shared decision-making. In the article, different forms of shared decision-making are analysed in relation to five different aspects of autonomy: (1) self-realisation; (...)
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  • Consent and the Problem of Framing Effects.Jason Hanna - 2011 - Ethical Theory and Moral Practice 14 (5):517-531.
    Our decision-making is often subject to framing effects: alternative but equally informative descriptions of the same options elicit different choices. When a decision-maker is vulnerable to framing, she may consent under one description of the act, which suggests that she has waived her right, yet be disposed to dissent under an equally informative description of the act, which suggests that she has not waived her right. I argue that in such a case the decision-maker’s consent is simply irrelevant to the (...)
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  • Respecting Autonomy in Population Policy: An Argument for International Family Planning Programs.B. S. Hale & L. Hale - 2010 - Public Health Ethics 3 (2):157-166.
    This paper addresses whether universal, general education programs are enough to satisfy basic criteria of human rights, or whether comprehensive family planning programs, in conjunction with universal education programs, might also be morally required. Even before the Reagan administration instituted the ‘global gag rule’ at the 1984 conference in Mexico City, prohibiting funding to nongovernmental organizations that included providing information about abortion as a possible method of family planning, the moral acceptability of family planning programs has been called into question. (...)
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  • Welfare First, Autonomy Second.Moti Gorin - 2016 - American Journal of Bioethics 16 (5):18-20.
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  • Person-Centered Care, Autonomy, and the Definition of Health.Lily Frank - 2013 - American Journal of Bioethics 13 (8):59-61.
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  • Person-Centered Health Care: Capabilities and Identity.John B. Davis - 2013 - American Journal of Bioethics 13 (8):61-62.
    Entwhistle and Watt (2013) make an important contribution to the person-centred view of health care by reframing past thinking on the subject in terms of the capability approach. Past thinking about person-centred care employs a range of normative values that are arguably supportive of the concept of a person. But ironically these values are not clearly grounded in any account of what the person is. Thus, it is not clear what anchors these values and so how they are to be (...)
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  • Making a difference: incorporating theories of autonomy into models of informed consent.C. Delany - 2008 - Journal of Medical Ethics 34 (9):e3-e3.
    Background: Obtaining patients’ informed consent is an ethical and legal obligation in healthcare practice. Whilst the law provides prescriptive rules and guidelines, ethical theories of autonomy provide moral foundations. Models of practice of consent, have been developed in the bioethical literature to assist in understanding and integrating the ethical theory of autonomy and legal obligations into the clinical process of obtaining a patient’s informed consent to treatment.Aims: To review four models of consent and analyse the way each model incorporates the (...)
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  • Biases and Heuristics in Decision Making and Their Impact on Autonomy.J. S. Blumenthal-Barby - 2016 - American Journal of Bioethics 16 (5):5-15.
    Cognitive scientists have identified a wide range of biases and heuristics in human decision making over the past few decades. Only recently have bioethicists begun to think seriously about the implications of these findings for topics such as agency, autonomy, and consent. This article aims to provide an overview of biases and heuristics that have been identified and a framework in which to think comprehensively about the impact of them on the exercise of autonomous decision making. I analyze the impact (...)
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  • Respect for Personal Autonomy, Human Dignity, and the Problems of Self-Directedness and Botched Autonomy.Y. M. Barilan - 2011 - Journal of Medicine and Philosophy 36 (5):496-515.
    This paper explores the value of respect for personal autonomy in relation to clearly immoral and irrational acts committed freely and intentionally by competent people. Following Berlin's distinction between two kinds of liberty and Darwall's two kinds of respect, it is argued that coercive suppression of nonautonomous, irrational, and self-harming acts of competent persons is offensive to their human dignity, but not disrespectful of personal autonomy. Irrational and immoral choices made by competent people may claim only the negative liberty to (...)
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  • Responsibility as a meta-virtue: truth-telling, deliberation and wisdom in medical professionalism.Y. M. Barilan - 2009 - Journal of Medical Ethics 35 (3):153-158.
    The article examines the new discourse on medical professionalism and responsibility through the prism of conflicts among moral values, especially with regard to truth-telling. The discussion is anchored in the renaissance of English-language writing on medical ethics in the 18th century, which paralleled the rise of humanitarianism and the advent of the word “responsibility”. Following an analysis of the meanings of the value of responsibility in general and in medical practice in particular, it is argued that, similarly to the Aristotelian (...)
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