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Principles of biomedical ethics

New York: Oxford University Press. Edited by James F. Childress (1994)

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  1. Rethinking the Precedent Autonomy, Current Minimal Autonomy, and Current Well-Being in Medical Decisions for Persons with Dementia.Yuanyuan Huang, Yali Cong & Zhifeng Wang - 2022 - Journal of Bioethical Inquiry 19 (1):163-175.
    As patient autonomy expands, a highly controversial issue has emerged. Should the advance directives of refusing life-saving treatments or requesting euthanasia of persons with dementia who express changed minds or are often in a happy state be fulfilled? There are two autonomy-related positions. The mainstream position in philosophical discussions supports the priority of ADs based on precedent autonomy. Buchanan and Brock, and Dworkin represent this view. The other position supports the priority of PWDs’ current wishes based on minimal autonomy represented (...)
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  • Malicious Meddling or Transparent Tracking? Telecare as a Logical Extension of Modern Communications Technology.Caroline J. Huang & Tanya S. Goldhaber - 2012 - American Journal of Bioethics 12 (9):45-47.
    The American Journal of Bioethics, Volume 12, Issue 9, Page 45-47, September 2012.
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  • A Rational Basis for Chemoprevention of Prostate Cancer.Caroline J. Huang & Matthew L. Baum - 2011 - American Journal of Bioethics 11 (12):27-29.
    The American Journal of Bioethics, Volume 11, Issue 12, Page 27-29, December 2011.
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  • Bioethics in the Third Millennium: Some Critical Anticipations.Hugo Tristram Engelhardt - 1999 - Kennedy Institute of Ethics Journal 9 (3):225-243.
    : Its promises to the contrary notwithstanding, bioethics is plural. There is a diversity of content-full moral understandings of the good and the right. Moreover, there is no secular means in principle to set this diversity aside without begging the question. This moral diversity exists both as a sociological condition and as a moral epistemological constraint. Without succumbing to a metaphysical scepticism or moral relativism, the bioethics of the future, if it is to be honest, should learn how to live (...)
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  • In Defense of Eating Meat.Timothy Hsiao - 2015 - Journal of Agricultural and Environmental Ethics 28 (2):277-291.
    Some arguments for moral vegetarianism proceed by appealing to widely held beliefs about the immorality of causing unjustified pain. Combined with the claim that meat is not needed for our nourishment and that killing animals for this reason causes them unjustified pain, they yield the conclusion that eating meat is immoral. However, what counts as a good enough reason for causing pain will depend largely on what we think about the moral status of animals. Implicit in these arguments is the (...)
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  • Industrial Farming is Not Cruel to Animals.Timothy Hsiao - 2017 - Journal of Agricultural and Environmental Ethics 30 (1):37-54.
    Critics of industrial animal agriculture have argued that its practices are cruel, inhumane, or otherwise degrading to animals. These arguments sometimes form the basis of a larger case for the complete abolition of animal agriculture, while others argue for more modest welfare-based reforms that allow for certain types of industrial farming. This paper defends industrial farming against the charge of cruelty. As upsetting as certain practices may seem, I argue that they need not be construed as cruel or inhumane. Any (...)
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  • A Carnivorous Rejoinder to Bruers and Erdös.Timothy Hsiao - 2015 - Journal of Agricultural and Environmental Ethics 28 (6):1127-1138.
    In an earlier paper, I defended the moral permissibility of eating meat against sentience-based arguments for moral vegetarianism. The crux of my argument was that sentience is not an intrinsically morally salient property, and that animals lack moral status because they lack a root capacity for rational agency. Accordingly, it is morally permissible to consume meat even if doing so is not strictly necessary for our nutrition. This paper responds to critiques of my argument by Bruers :705–717, 2015) and Erdös. (...)
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  • Infant circumcision: the last stand for the dead dogma of parental (sovereignal) rights.R. S. Howe - 2013 - Journal of Medical Ethics 39 (7):475-481.
    J S Mill used the term ‘dead dogma’ to describe a belief that has gone unquestioned for so long and to such a degree that people have little idea why they accept it or why they continue to believe it. When wives and children were considered chattel, it made sense for the head of a household to have a ‘sovereignal right’ to do as he wished with his property. Now that women and children are considered to have the full complement (...)
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  • Are we creating ethical dilemmas where there are none?Amy J. Howells - 2018 - Clinical Ethics 13 (4):220-224.
    This case study focuses on decision-making for minors who are permanently unconscious and dependent on life-sustaining therapies. Cases of this type often cause anguish and angst for health care providers and caregivers and can lead to mistrust, moral distress, and communication problems. After presenting a particular case, an ethical analysis is applied to determine whether there is an apparent course of action or an ethical dilemma. The ethical analysis focuses on the currently accepted guidance principle for surrogate decision-making for minors (...)
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  • The individualist model of autonomy and the challenge of disability.Anita Ho - 2008 - Journal of Bioethical Inquiry 5 (2-3):193-207.
    In recent decades, the intertwining ideas of self-determination and well-being have received tremendous support in bioethics. Discussions regarding self-determination, or autonomy, often focus on two dimensions—the capacity of the patient and the freedom from external coercion. The practice of obtaining informed consent, for example, has become a standard procedure in therapeutic and research medicine. On the surface, it appears that patients now have more opportunities to exercise their self-determination than ever. Nonetheless, discussions of patient autonomy in the bioethics literature, which (...)
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  • Public health, beneficence and cosmopolitan justice.L. Horn - 2015 - South African Journal of Bioethics and Law 8 (2):30.
    This article proposes that, in line with moral-cosmopolitan theorists, affluent nations have an obligation, founded in justice and not merely altruism or beneficence, to share the responsibility of the burden of public health implementation in low-income contexts. The current Ebola epidemic highlights the fact that countries with under-developed health systems and limited resources cannot cope with a significant and sudden health threat. The link between burden of disease, adverse factors in the social environment and poverty is well established and confirmed (...)
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  • Ethical Analysis and Beyond! How Christian Anthropology and the Concept of Dignity Can Also Address Moral Distress in End-of-Life Care.Claire Horner & David Garvis - 2020 - American Journal of Bioethics 20 (12):23-25.
    McCarthy et al. have made an important contribution to the field of ethics by identifying the important similarities between Christian and secular bioethics that can be drawn on to further s...
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  • Advance Directives in English and French Law: Different Concepts, Different Values, Different Societies. [REVIEW]Ruth Judith Horn - 2012 - Health Care Analysis (1):1-14.
    In Western societies advance directives are widely recognised as important means to extend patient self-determination under circumstances of incapacity. Following other countries, England and France have adopted legislation aiming to clarify the legal status of advance directives. In this paper, I will explore similarities and differences in both sets of legislation, the arguments employed in the respective debates and the socio-political structures on which these differences are based. The comparison highlights how different legislations express different concepts emphasising different values accorded (...)
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  • The Oxford Practice Skills Project: teaching ethics, law and communication skills to clinical medical students.T. Hope & K. W. Fulford - 1994 - Journal of Medical Ethics 20 (4):229-234.
    We describe the teaching programme in ethics, law and communication skills for clinical medical students which is being developed as part of the Oxford Practice Skills Project. These three elements of practice are approached in an integrated teaching programme which aims to address everyday clinical practice. The role of a central value of patient-centred health care in guiding the teaching is described. Although the final aim of the teaching is to improve actual practice, we have found three 'sub-aims' helpful in (...)
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  • Ethics and culture in mental health care.Jinger G. Hoop, Tony DiPasquale, Juan M. Hernandez & Laura Weiss Roberts - 2008 - Ethics and Behavior 18 (4):353 – 372.
    This article examines the complex relationship between culture, values, and ethics in mental health care. Cultural competence is a practical, concrete demonstration of the ethical principles of respect for persons, beneficence (doing good), nonmaleficence (not doing harm), and justice (treating people fairly)—the cornerstones of modern ethical codes for the health professions. Five clinical cases are presented to illustrate the range of ethical issues faced by mental health clinicians working in a multicultural environment, including issues of therapeutic boundaries, diagnosis, treatment choice, (...)
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  • A Discursive Exploration of Values and Ethics in Medicine: The Scholarship of Miles Little.Claire Hooker, Ian Kerridge, Kathryn Mackay & Wendy Lipworth - 2021 - Journal of Bioethical Inquiry 19 (1):15-20.
    In the paper “An archeology of corruption in medicine”, Miles Little, Wendy Lipworth, and Ian Kerridge present an account of corruption and describe its prevalent forms in medicine. In presenting an individual-focused account of corruption found within “social entities”, Little et al. argue that these entities are corruptible by nature and that certain individuals are prone to take advantage of the corruptibility of social entities to pursue their own ends. The authors state that this is not preventable, so the way (...)
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  • When Health Means Wealth, Can bioethicists Respond?Helen Bequaert Holmes - 2001 - Health Care Analysis 9 (2):213-228.
    Around the world the wealthy can get their lives extended while the poorget little basic medical help. Over the same years that the field ofbioethics has prospered and expanded, this disparity has increased.Reasons for the failure of bioethics to successfully address thishealth/wealth issue include its identification with the cognitiveand social authority of medicine; its gatekeeping behavior;its funding sources; its questionable use of ``principlism'' andits emphasis on crises and dilemmas to the neglect of ``housekeeping''issues. The work of most women in bioethics (...)
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  • The Final Act: An Ethical Analysis of Pia Dijkstra’s Euthanasia for a Completed Life.T. J. Holzman - 2021 - Journal of Bioethical Inquiry 18 (1):165-175.
    Amongst other countries, the Netherlands currently allows euthanasia, provided the physician performing the procedure adheres to a strict set of requirements. In 2016, Second Chamber member Pia Dijkstra submitted a law proposal which would also allow euthanasia without the reason necessarily having any medical foundation; euthanasia on the basis of a completed life. The debate on this topic has been ongoing for over two decades, but this law proposal has made the discussion much more immediate and concrete. This paper considers (...)
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  • Reflections on the ethical dilemmas involved in promoting self-management.Anne Lise Holm & Elisabeth Severinsson - 2014 - Nursing Ethics 21 (4):0969733013500806.
    Due to their understanding of self-management, healthcare team members responsible for depressed older persons can experience an ethical dilemma. Each team member contributes important knowledge and experience pertaining to the management of depression, which should be reflected in the management plan. The aim of this study was to explore healthcare team members’ reflections on the ethical dilemmas involved in promoting self-management among depressed older persons. A qualitative design was used and data were collected by means of focus group interviews. The (...)
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  • Principlism, The Ethics of Virtue, and the Politics of Bioethics.Lynn Holt & Bryan Hilliard - 2006 - Politics and Ethics Review 2 (1):79-92.
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  • Not just autonomy--the principles of American biomedical ethics.S. Holm - 1995 - Journal of Medical Ethics 21 (6):332-338.
    The Principles of Biomedical Ethics by Tom L Beauchamp and James F Childress which is now in its fourth edition has had a great influence on the development of bioethics through its exposition of a theory based on the four principles: respect for autonomy; non-maleficence; beneficence, and justice (1). The theory is developed as a common-morality theory, and the present paper attempts to show how this approach, starting from American common-morality, leads to an underdevelopment of beneficence and justice, and that (...)
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  • Exploring the evolution of a dental code of ethics: a critical discourse analysis.Alexander C. L. Holden - 2020 - BMC Medical Ethics 21 (1):1-7.
    BackgroundWhat can the analysis of the evolution of a code of ethics tell us about the dental profession and the association that develops it? The establishment of codes of ethics are foundational events in the social history of a profession. Within these documents it is possible to find statements of values and culture that serve a variety of purposes. Codes of ethics in dentistry have not frequently presented as the subjects of analyses despite containing rich information about the priorities and (...)
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  • Cognitive Diminishments and Crime Prevention: “Too Smart for the Rest of Us”?Sebastian Jon Holmen - 2022 - Neuroethics 15 (1):1-13.
    In this paper, I discuss whether it is ever morally permissible to diminish the cognitive abilities or capacities of some cognitively gifted offenders whose ability to commit their crimes successfully relies on them possessing these abilities or capacities. I suggest that, given such cognitive diminishments may prevent such offenders from re-offending and causing others considerable harm, this provides us with at least one good moral reason in favour of employing them. After setting out more clearly what cognitive diminishment may consist (...)
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  • Two basic ethical problems of incidental findings in population‐based, non‐intervening magnetic resonance imaging (MRI) research.Martin Hoffmann - 2013 - Journal of Evaluation in Clinical Practice 19 (3):427-432.
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  • Det moralske grunnlaget for å vurdere samtykkekompetanse.Bjørn Hofmann - 2007 - Etikk I Praksis - Nordic Journal of Applied Ethics 1 (1):33-48.
    Hovedregelen for å kunne gi helsehjelp i Norge er at pasienter samtykker. I henhold til pasientrettighetsloven er det helsepersonell som skal avgjøre om pasienter har samtykkekompetanse. Dersom pasienter ikke er samtykkekompetente, kan de behandles mot deres uttrykte ønske. Dette reiser det viktige og vanskelige spørsmålet: På hvilket grunnlag skal helsepersonell vurdere samtykkekompetansen? Det finnes ulike, psykologiske, tester. Disse brukes ikke i Norge, hvor vurderingene i stor grad er basert på skjønn. Denne artikkelen undersøker en del sentrale moralske føringer for hvordan (...)
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  • Motivating Donors to Genetic Research? Anthropological Reasons to Rethink the Role of Informed Consent.Klaus Hoeyer & Niels Lynöe - 2005 - Medicine, Health Care and Philosophy 9 (1):13-23.
    In this article we explore the contribution from social anthropology to the medical ethical debates about the use of informed consent in research, based on blood samples and other forms of tissue. The article springs from a project exploring donors’ motivation for providing blood and healthcare data for genetic research to be executed by a Swedish start-up genomics company. This article is not confined to empirical findings, however, as we suggest that anthropology provides reason to reassess the theoretical understanding of (...)
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  • The Need to Know—Therapeutic Privilege: A Way Forward. [REVIEW]Kate Hodkinson - 2013 - Health Care Analysis 21 (2):105-129.
    Providing patients with information is fundamental to respecting autonomy. However, there may be circumstances when information may be withheld to prevent serious harm to the patient, a concept referred to as therapeutic privilege. This paper provides an analysis of the ethical, legal and professional considerations which impact on a decision to withhold information that, in normal circumstances, would be given to the patient. It considers the status of the therapeutic privilege in English case law and concludes that, while reference is (...)
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  • Professional Obligation and Supererogation With Reference to the Transplant Tourist.Benjamin Hippen - 2010 - American Journal of Bioethics 10 (2):14-16.
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  • What is the outcome of applying principlism?Kristen Hine - 2011 - Theoretical Medicine and Bioethics 32 (6):375-388.
    The four principles approach to bioethics, an approach most associated with the work of Tom Beauchamp and James Childress, is supposed to provide a framework for reasoning through moral issues in medicine. One might wonder, if one were to guide one’s thinking by the method suggested by principlism, will one identify and perform the objectively morally right action? Will one’s decision making be justified, and consequently, will the action that flows from that decision itself be justified? In this paper, I (...)
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  • Flaws in advance directives that request withdrawing assisted feeding in late-stage dementia may cause premature or prolonged dying.Nathaniel Hinerman, Karl E. Steinberg & Stanley A. Terman - 2022 - BMC Medical Ethics 23 (1):1-26.
    BackgroundThe terminal illness of late-stage Alzheimer’s and related dementias is progressively cruel, burdensome, and can last years if caregivers assist oral feeding and hydrating. Options to avoid prolonged dying are limited since advanced dementia patients cannot qualify for Medical Aid in Dying. Physicians and judges can insist on clear and convincing evidence that the patient wants to die—which many advance directives cannot provide. Proxies/agents’ substituted judgment may not be concordant with patients’ requests. While advance directives can be patients’ last resort (...)
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  • Values in University–Industry Collaborations: The Case of Academics Working at Universities of Technology.Rafaela Hillerbrand & Claudia Werker - 2019 - Science and Engineering Ethics 25 (6):1633-1656.
    In the applied sciences and in engineering there is often a significant overlap between work at universities and in industry. For the individual scholar, this may lead to serious conflicts when working on joint university–industry projects. Differences in goals, such as the university’s aim to disseminate knowledge while industry aims to appropriate knowledge, might lead to complicated situations and conflicts of interest. The detailed cases of two electrical engineers and two architects working at two different universities of technology illustrate the (...)
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  • Marginally effective medical care: ethical analysis of issues in cardiopulmonary resuscitation (CPR).M. Hilberman, J. Kutner, D. Parsons & D. J. Murphy - 1997 - Journal of Medical Ethics 23 (6):361-367.
    Outcomes from cardiopulmonary resuscitation (CPR) remain distressingly poor. Overuse of CPR is attributable to unrealistic expectations, unintended consequences of existing policies and failure to honour patient refusal of CPR. We analyzed the CPR outcomes literature using the bioethical principles of beneficence, non-maleficence, autonomy and justice and developed a proposal for selective use of CPR. Beneficence supports use of CPR when most effective. Non-maleficence argues against performing CPR when the outcomes are harmful or usage inappropriate. Additionally, policies which usurp good clinical (...)
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  • Do studies of the nature of cases mislead about the reality of cases? A response to Pattison et al.R. Higgs - 1999 - Journal of Medical Ethics 25 (1):47-50.
    This article questions whether many are misled by current case studies. Three broad types of style of case study are described. A stark style, based on medical case studies, a fictionalised style in reaction, and a personal statement made in discussion groups by an original protagonist. Only the second type fits Pattison's category. Language remains an important issue, but to be examined as the case is lived in discussion rather than as a potentially reductionist study of the case as text.
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  • Child welfare versus parental autonomy: Medical ethics, the law, and faith-based healing.Kenneth Hickey & Laurie Lyckholm - 2004 - Theoretical Medicine and Bioethics 25 (4):265-276.
    Over the past three decades more than 200 children have died in the U.S. of treatable illnesses as a result of their parents relying on spiritual healing rather than conventional medical treatment. Thirty-nine states have laws that protect parents from criminal prosecution when their children die as a result of not receiving medical care. As physicians and citizens, we must choose between protecting the welfare of children and maintaining respect for the rights of parents to practice the religion of their (...)
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  • What Shall We Eat? An Ethical Framework for Well-Grounded Food Choices.Anna T. Höglund - 2020 - Journal of Agricultural and Environmental Ethics 33 (2):283-297.
    In production and consumption of food, several ethical values are at stake for different affected parties and value conflicts in relation to food choices are frequent. The aim of this article was to present an ethical framework for well-grounded decisions on production and consumption of food, guided by the following questions: Which are the affected parties in relation to production and consumption of food? What ethical values are at stake for these parties? How can conflicts between the identified values be (...)
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  • Ethical Dilemmas and Ethical Competence in the Daily Work of Research Nurses.A. T. Höglund, G. Helgesson & S. Eriksson - 2010 - Health Care Analysis 18 (3):239-251.
    In spite of the growing interest in nursing ethics, few studies have focused on ethical dilemmas experienced by nurses working with clinical studies as ‘research nurses’. The aim of the present study was to describe and explore ethical dilemmas that Swedish research nurses experience in their day-to-day work. In a qualitative study a purposeful sample of six research nurses from five wards of differing disciplines in four Swedish hospitals was interviewed. The analysis displayed several examples of ethical dilemmas, primarily tensions (...)
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  • Schizophrenia, mental capacity, and rational suicide.Jeanette Hewitt - 2010 - Theoretical Medicine and Bioethics 31 (1):63-77.
    A diagnosis of schizophrenia is often taken to denote a state of global irrationality within the psychiatric paradigm, wherein psychotic phenomena are seen to equate with a lack of mental capacity. However, the little research that has been undertaken on mental capacity in psychiatric patients shows that people with schizophrenia are more likely to experience isolated, rather than constitutive, irrationality and are therefore not necessarily globally incapacitated. Rational suicide has not been accepted as a valid choice for people with schizophrenia (...)
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  • The contribution of Kantian moral theory to contemporary medical ethics: A critical analysis.Friedrich Heubel & Nikola Biller-Andorno - 2005 - Medicine, Health Care and Philosophy 8 (1):5-18.
    Kantian deontology is one of three classic moral theories, among virtue ethics and consequentialism. Issues in medical ethics are frequently addressed within a Kantian paradigm, at least – although not exclusively – in European medical ethics. At the same time, critical voices have pointed to deficits of Kantian moral philosophy which must be examined and discussed. It is argued that taking concrete situations and complex relationships into account is of paramount importance in medical ethics. Encounters between medical or nursing staff (...)
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  • Leveraging Artificial Intelligence in Marketing for Social Good—An Ethical Perspective.Erik Hermann - 2022 - Journal of Business Ethics 179 (1):43-61.
    Artificial intelligence is shaping strategy, activities, interactions, and relationships in business and specifically in marketing. The drawback of the substantial opportunities AI systems and applications provide in marketing are ethical controversies. Building on the literature on AI ethics, the authors systematically scrutinize the ethical challenges of deploying AI in marketing from a multi-stakeholder perspective. By revealing interdependencies and tensions between ethical principles, the authors shed light on the applicability of a purely principled, deontological approach to AI ethics in marketing. To (...)
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  • Einwilligungsfähigkeit: inhärente Fähigkeit oder ethisches Urteil?Helena Hermann, Manuel Trachsel & Nikola Biller-Andorno - 2016 - Ethik in der Medizin 28 (2):107-120.
    ZusammenfassungDie Bestimmung der Einwilligungsfähigkeit von Patienten beinhaltet weitreichende ethische und rechtliche Implikationen. Ausreichende Klärung des Begriffs ist daher unerlässlich. Solche Bemühungen gelten vorwiegend der Definition von Kriterien hinsichtlich relevanter mentaler Fähigkeiten. Grundlegendere Aspekte werden kaum explizit besprochen, so die Frage, ob Einwilligungsfähigkeit eher eine inhärente Fähigkeit oder ein ethisches Urteil bezeichnet. Zentral bei dieser Unterscheidung ist der Stellenwert ethischer Überlegungen die Zulässigkeit fürsorglicher Bevormundung betreffend. Geht man von einer inhärenten Fähigkeit aus, schließen solche Überlegungen an die Beurteilung von Einwilligungsfähigkeit an. (...)
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  • Challenges in the evaluation of nanoscale research: Ethical aspects. [REVIEW]Göran Hermerén - 2007 - NanoEthics 1 (3):223-237.
    The purpose of the present paper is: (1) to outline a conceptual framework useful for the analysis of ethical issues raised by goal-directed activities, (2) to apply this framework to nanoscale research, (3) identify some of the main challenges in the evaluation of such research, and (4) exemplify what is needed for a positive answer to the question “How can nanoscale research improve the quality of life?” A basic idea of the paper is that nanoscale research can improve the conditions (...)
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  • Capacity and Consent in England and Wales: The Mental Capacity Act under Scrutiny.Peter Herissone-Kelly - 2010 - Cambridge Quarterly of Healthcare Ethics 19 (3):344-352.
    The Mental Capacity Act 2005 came into force in England and Wales in 2007. Its primary purpose is to provide “a statutory framework to empower and protect people who may lack capacity to make some decisions for themselves.” Examples of such people are those with dementia, learning disabilities, mental health problems, and so on. The Act also gives those who currently have capacity a legal framework within which they can make arrangements for a time when they may come to lack (...)
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  • Identifying and Classifying Tools for Health Policy Ethics Review: A Systematic Search and Review.Mary Henein & Carolyn Ells - 2021 - Health Care Analysis 29 (1):1-20.
    Ethical review and analysis of health policy may help to ensure policies address the needs of society and align with relevant values and principles. Indeed, researchers and bioethicists have recognized the need for ethical frameworks specifically for public health applications. The objective of this research was to compile structured tools for ethical review of health policy and to analyze these tools for their scope and philosophical underpinnings. A systematic search and review of academic and grey literature was conducted to compile (...)
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  • Deciding For When You Can’t Decide: The Medical Treatment Planning and Decisions Act 2016.Courtney Hempton & Neera Bhatia - 2020 - Journal of Bioethical Inquiry 17 (1):109-120.
    The Australian state of Victoria introduced new legislation regulating medical treatment and associated decision-making in March 2018. In this article we provide an overview of the new Medical Treatment Planning and Decisions Act 2016 and compare it to the former Medical Treatment Act 1988. Most substantially, the new Act provides for persons with relevant decision-making capacity to make decisions in advance regarding their potential future medical care, to take effect in the event they themselves do not have decision-making capacity. Prima (...)
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  • In Defense of Broad Consent.Gert Helgesson - 2012 - Cambridge Quarterly of Healthcare Ethics 21 (1):40-50.
    Proper procedures for informed consent are widely recognized as an ethical requirement for biomedical research involving human beings, in particular as a means to respect the autonomy and personal integrity of potential and actual research participants.
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  • Does Informed Consent Have an Expiry Date? A Critical Reappraisal of Informed Consent as a Process.Gert Helgesson & Stefan Eriksson - 2011 - Cambridge Quarterly of Healthcare Ethics 20 (1):85-92.
    Informed consent is central to modern research ethics. Informed consent procedures have mainly been justified in terms of respect for autonomy, the core idea being that it should be every competent individual’s right to decide for herself whether or not to participate in scientific studies. A number of conditions are normally raised with regard to morally valid informed consent. These include that potential research subjects get adequate information, understand those aspects that are relevant to them, and, based on that information, (...)
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  • Autonomy, the Right Not to Know, and the Right to Know Personal Research Results: What Rights are There, and Who Should Decide about Exceptions?Gert Helgesson - 2014 - Journal of Law, Medicine and Ethics 42 (1):28-37.
    Bioethicists have for quite some time discussed the right to know and the right not to know personal health information, such as genetic information acquired in health care and incidental health-related findings in research. Several international ethical guidelines explicitly defend these rights.My own interest in these matters stems from my participation in ethics-related research tied to a longitudinal screening study on Type I diabetes involving young children. A few of the participating parents did not want to be informed if the (...)
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  • Zum Beispiel. Über den methodologischen Stellenwert von Fallbeispielen in der Angewandten Ethik.Dr Bert Heinrichs - 2008 - Ethik in der Medizin 20 (1):40-52.
    Die Verwendung von Fallbeispielen, sowohl in didaktisch-illustrativer als auch in systematisch-argumentativer Absicht, ist in der Angewandten Ethik eine weitverbreitete Praxis. Die Inanspruchnahme erfolgt jedoch vielfach ohne eine angemessene Reflexion über die Voraussetzungen und Grenzen des Einsatzes von Fallbeispielen als methodischem Werkzeug innerhalb der Ethik. Im vorliegenden Beitrag soll daher der Rekurs auf konkrete – reale oder fiktive – Handlungsszenarien kritisch untersucht werden. Wichtige Hinweise werden dabei der Philosophie Kants entnommen, der selbst in seinen moralphilosophischen Schriften gelegentlich Beispiele verwendet, der aber (...)
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  • For example. On the methodological status of case studies in applied ethics.Bert Heinrichs - 2008 - Ethik in der Medizin 20 (1):40-52.
    Case studies, both with a view to didactical and argumentative purposes, are widely used in applied ethics. However, case studies are often used without methodological considerations concerning the premises and limitations of these kind of studies as methodological tools within ethics. The present paper critically examines the recourse to – real or fictitious – case studies. Important suggestions will be taken from Kant’s philosophy. Kant himself occasionally uses case studies in his ethical writings. Yet, he also discusses the relevance as (...)
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  • Key factors in children’s competence to consent to clinical research.Irma M. Hein, Pieter W. Troost, Robert Lindeboom, Marc A. Benninga, C. Michel Zwaan, Johannes B. van Goudoever & Ramón J. L. Lindauer - 2015 - BMC Medical Ethics 16 (1):74.
    Although law is established on a strong presumption that persons younger than a certain age are not competent to consent, statutory age limits for asking children’s consent to clinical research differ widely internationally. From a clinical perspective, competence is assumed to involve many factors including the developmental stage, the influence of parents and peers, and life experience. We examined potential determining factors for children’s competence to consent to clinical research and to what extent they explain the variation in competence judgments.
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