Purpose This study advances a reconceptualization of data and information which overcomes normative understandings often contained in data policies at national and international levels. This study aims to propose a conceptual framework that moves beyond subject- and collective-centric normative understandings. Design/methodology/approach To do so, this study discusses the European Union (EU) and China’s approaches to data-driven technologies highlighting their similarities and differences when it comes to the vision underpinning how tech innovation is shaped. Findings Regardless of the different attention to (...) the subject (the EU) and the collective (China), the normative understandings of technology by both actors remain trapped into a positivist approach that overlooks all that is not and cannot be turned into data, thus hindering the elaboration of a more holistic ecological thinking merging humans and technologies. Originality/value Revising the philosophical and political debate on data and data-driven technologies, a third way is elaborated, i.e. federated data as commons. This third way puts the subject as part by default of a collective at the centre of discussion. This framing can serve as the basis for elaborating sociotechnical alternatives when it comes to define and regulate the mash-up of humans and technology. (shrink)

Modern health data practices come with many practical uncertainties. In this paper, I argue that data subjects’ trust in the institutions and organizations that control their data, and their ability to know their own moral obligations in relation to their data, are undermined by significant uncertainties regarding the what, how, and who of mass data collection and analysis. I conclude by considering how proposals for managing situations of high uncertainty might be applied to this problem. These emphasize increasing organizational flexibility, (...) knowledge, and capacity, and reducing hazard. (shrink)

It is important to manage individuals’ personal data after their death to maintain their dignity or follow their wishes as much as possible. From this perspective, this report describes the real-world commercialization of immortal digital personalities, which gives eternal life to the deceased in a digital form. We identify the problems with the commercialization of deceased users’ images and personal data, which becomes postmortem entertainment. Considering these problems, we seek out the ideal form of deceased users’ personal data for commercialization. (...) We conduct a social survey to understand how ordinary Japanese people feel about the various types of publicly available services that use personal data after death, such as social network service logs. By analyzing our survey results approximately 20% of respondents would allow the commercial use of their personal data, such as browsing their social network service logs, if they could receive compensation during their lifetime. (shrink)

Presence is a palpable sense of space, things and others that overlaps with matters of meaning, yet is not reducible to it: it is a dimension of things that hides in plain sight. This paper is motivated by observations that (1) presence is under-appreciated in questions of modern and nascent human-synthetic agent interaction, and (2) that presence matters because it affects and moves us. The paper’s goal is to articulate a multi-faceted understanding of presence, and why it matters, so the (...) importance of presence may be readily understood by those who regulate media, digital and artificial intelligence (AI) industries. Novel forms of presence raise all sorts of questions of what it means to live with new forms of presences. Some of these are highly positive and others are resistant to simplistic moral diagnosis, a point explored through extended consideration of ‘thanatechnology’ and ‘ghostbots’. To clarify and foreground presence, this paper draws on continental philosophy and technologist ideas about presence to understand the significance and parameters of presence. It then puts these to work by considering a range of existing and emerging human-synthetic agent interactions, arguing that that presence is an underappreciated yet crucial factor in human-synthetic interactions, particularly involving AI and ghostbots. The paper concludes with points of focus for organisations charged with media, data protection and AI governance regarding facets of presence-based characteristics for emergent human-synthetic interaction. Foremost is consideration of open standards for a presence-based afterlife and suggestion of a temporal firewall, or a break of time before resurrection, to prevent harm to those who have recently lost someone. (shrink)