The ethics of uncertainty for data subjects

In Jenny Krutzinna & Luciano Floridi (eds.), The Ethics of Medical Data Donation. Springer Verlag. pp. 55-74 (2019)
Download Edit this record How to cite View on PhilPapers
Abstract
Modern health data practices come with many practical uncertainties. In this paper, I argue that data subjects’ trust in the institutions and organizations that control their data, and their ability to know their own moral obligations in relation to their data, are undermined by significant uncertainties regarding the what, how, and who of mass data collection and analysis. I conclude by considering how proposals for managing situations of high uncertainty might be applied to this problem. These emphasize increasing organizational flexibility, knowledge, and capacity, and reducing hazard.
Categories
(categorize this paper)
PhilPapers/Archive ID
NICTEO-12
Upload history
Archival date: 2019-01-24
View other versions
Added to PP index
2019-01-24

Total views
126 ( #30,173 of 51,740 )

Recent downloads (6 months)
27 ( #21,840 of 51,740 )

How can I increase my downloads?

Downloads since first upload
This graph includes both downloads from PhilArchive and clicks on external links on PhilPapers.