- Parents and Provider Perspectives on the Return of Genomic Findings for Cleft Families in Africa.Abimbola M. Oladayo, Sydney Prochaska, Tamara Busch, Wasiu L. Adeyemo, Lord J. J. Gowans, Mekonen Eshete, Waheed Awotoye, Veronica Sule, Azeez Alade, Adebowale A. Adeyemo, Peter A. Mossey, Anya Prince, Jeffrey C. Murray & Azeez Butali - 2024 - AJOB Empirical Bioethics 15 (2):133-146.details
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Assent, parental consent and reconsent for health research in Africa: thematic analysis of national guidelines and lessons from the SickleInAfrica registry.Ambroise Wonkam, Charmaine Royale, Kofi Anie, Malula Nkanyemka, Hilda Tutuba, Daima Bukini, Okocha Emmanuel Chide, Marsha Treadwell, Lawrence Osei-Tutu, Victoria Nembaware & Nchangwi Syntia Munung - 2022 - BMC Medical Ethics 23 (1):1-10.details
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Engaging research ethics committees to develop an ethics and governance framework for best practices in genomic research and biobanking in Africa: the H3Africa model.Paulina Tindana, Aminu Yakubu, Ciara Staunton, Alice Matimba, Katherine Littler, Ebony Madden, Nchangwi Syntia Munung & Jantina de Vries - 2019 - BMC Medical Ethics 20 (1):1-7.details
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Qualitative study of comprehension of heritability in genomics studies among the Yoruba in Nigeria.Rasheed O. Taiwo, John Ipadeola, Temilola Yusuf, Faith Fagbohunlu, Gbemisola Jenfa, Sally N. Adebamowo & Clement A. Adebamowo - 2020 - BMC Medical Ethics 21 (1):1-8.details
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Ethical navigation of biobanking establishment in Ukraine: learning from the experience of developing countries.Oksana N. Sulaieva, Oksana Artamonova, Oleksandr Dudin, Rostyslav Semikov, Dmytro Urakov, Yurii Zakharash, Arman Kacharian, Vasyl Strilka, Ivan Mykhalchuk, Oleksii Haidamak, Olena Serdyukova & Nazarii Kobyliak - forthcoming - Journal of Medical Ethics.details
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Webinar report: stakeholder perspectives on informed consent for the use of genomic data by commercial entities.Baergen Schultz, Francis E. Agamah, Cornelius Ewuoso, Ebony B. Madden, Jennifer Troyer, Michelle Skelton & Erisa Mwaka - 2024 - Journal of Medical Ethics 50 (1):57-61.details
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Legal and Ethical Challenges of International Direct-to-Participant Genomic Research: Conclusions and Recommendations.Mark A. Rothstein, Ma'N. H. Zawati, Laura M. Beskow, Kathleen M. Brelsford, Kyle B. Brothers, Catherine M. Hammack-Aviran, James W. Hazel, Yann Joly, Michael Lang, Dimitri Patrinos, Andrea Saltzman & Bartha Maria Knoppers - 2019 - Journal of Law, Medicine and Ethics 47 (4):705-731.details
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Stakeholder views on informed consent models for future use of biological samples in Malawi and South Africa.Stuart Rennie, Walter Jaoko & Francis Masiye - 2023 - BMC Medical Ethics 24 (1):1-10.details
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A scoping review of genetics and genomics research ethics policies and guidelines for Africa.Joseph Ochieng, Nelson K. Sewankambo, John Barugahare, Betty Kwagala, Juli M. Bollinger, Erisa Mwaka, Betty Cohn & Joseph Ali - 2021 - BMC Medical Ethics 22 (1):1-15.details
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The role of science granting councils in promoting ethics in research and innovation: strategies used by selected African SGCs in promoting ethics in research and innovation.Paul Ndebele, Zivai Nenguke, Tiwonge Mtande, Kachedwa Mike, Samba Corr, Matandika Limbanazo, Lillian Naigaga Mutengu, Jonathan Mba & Maurice Bolo - 2023 - International Journal of Ethics Education 8 (2):373-387.details
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‘ It is a complex process, but it’s very important to return these results to participants’. Stakeholders’ perspectives on the ethical considerations for returning individual pharmacogenomics research results to people living with HIV.Sylvia Nabukenya, David Kyaddondo, Adelline Twimukye, Ian Guyton Munabi, Catriona Waitt & Erisa S. Mwaka - 2024 - Research Ethics 20 (2):363-387.details
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Use of broad consent and related procedures in genomics research: Perspectives from research participants in the Genetics of Rheumatic Heart Disease (RHDGen) study in a University Teaching Hospital in Zambia.Oliver Mweemba, John Musuku, Bongani M. Mayosi, Michael Parker, Rwamahe Rutakumwa, Janet Seeley, Paulina Tindana & Jantina De Vries - 2020 - Global Bioethics 31 (1):184-199.details
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Researchers’ perspectives on return of individual genetics results to research participants: a qualitative study.Erisa Sabakaki Mwaka, Deborah Ekusai Sebatta, Joseph Ochieng, Ian Guyton Munabi, Godfrey Bagenda, Deborah Ainembabazi & David Kaawa-Mafigiri - 2021 - Global Bioethics 32 (1):15-33.details
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A qualitative study exploring stakeholder perspectives on the use of biological samples for future unspecified research in Malawi.Limbanazo Matandika, Ruby Tionenji Ngóngóla, Khama Mita, Lucinda Manda-Taylor, Kate Gooding, Daniel Mwale, Francis Masiye & Joseph Mfutso-Bengo - 2020 - BMC Medical Ethics 21 (1):1-10.details
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Human Biobanking in Developed and Developing Countries: An Ethico-Legal Comparative Analysis of the Frameworks in the United Kingdom, Australia, Uganda, and South Africa.Safia Mahomed - 2021 - Cambridge Quarterly of Healthcare Ethics 30 (1):146-160.details
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Ethical and Equitable Digital Health Research: Ensuring Self-Determination in Data Governance for Racialized Communities.Mozharul Islam, Arafaat A. Valiani, Ranjan Datta, Mohammad Chowdhury & Tanvir C. Turin - forthcoming - Cambridge Quarterly of Healthcare Ethics:1-11.details
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Use of broad consent and related procedures in genomics research: Perspectives from research participants in the Genetics of Rheumatic Heart Disease (RHDGen) study in a University Teaching Hospital in Zambia.Jantina De Vries, Paulina Tindana, Janet Seeley, Rwamahe Rutakumwa, Michael Parker, Bongani M. Mayosi, John Musuku & Oliver Mweemba - 2020 - Global Bioethics 31 (1):184-199.details
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Preventing ethics dumping: the challenges for Kenyan research ethics committees.Kate Chatfield, Doris Schroeder, Anastasia Guantai, Kirana Bhatt, Elizabeth Bukusi, Joyce Adhiambo Odhiambo, Julie Cook & Joshua Kimani - 2021 - Research Ethics 17 (1):23-44.details
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Perspectives on returning individual and aggregate genomic research results to study participants and communities in Kenya: a qualitative study.Gershim Asiki, Michele Ramsay, Anita Ghansah, Paulina Tindana, Catherine Kyobutungi, Shukri F. Mohamed & Isaac Kisiangani - 2022 - BMC Medical Ethics 23 (1):1-11.details
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Legal implications of data sharing in biobanking research in low-income settings: The Nigerian experience.Simisola Oluwatoyin Akintola - 2018 - South African Journal of Bioethics and Law 11 (1):15.details
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