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  1. Patient and Family Descriptions of Ethical Concerns.Hae Lin Cho, Christine Grady, Anita Tarzian, Gail Povar, Jed Mangal & Marion Danis - 2020 - American Journal of Bioethics 20 (6):52-64.
    Ethically challenging situations routinely arise in the course of illness and healthcare. However, very few studies have surveyed patients and family members about their experiences with ethically challenging situations. To address this gap in the literature, we surveyed patients and family members at three hospitals. We conducted a content analysis of their responses to open-ended questions about their most memorable experience with an ethical concern for them or their family member. Participants described 219 unique ethical experiences that spanned many of (...)
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  • Ethical Concerns of Patients and Family Members Arising During Illness or Medical Care.Marion Danis, Christine Grady, Mariam Noorulhuda, Ben Krohmal, Henry Silverman, Lee Schwab, Hae Lin Cho, Melissa Goldstein & Paul Wakim - 2023 - AJOB Empirical Bioethics 14 (4):218-226.
    Patients and family members (N = 671) were surveyed in five Mid-Atlantic U.S. hospitals to ascertain the number and kinds of ethical concerns they are presently experiencing or have previously experienced while being sick or receiving medical care. Seventy percent of participants had at least one (range 0–14) type of ethical concern or question. The most commonly experienced concerns pertained to being unsure how to plan ahead or complete an advance directive (29.4%), being unsure whether someone in the family was (...)
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