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  1. The role of bioethics services in paediatric intensive care units: a qualitative descriptive study.Denise Alexander, Mary Quirke, Jo Greene, Lorna Cassidy, Carol Hilliard & Maria Brenner - 2024 - BMC Medical Ethics 25 (1):1-12.
    Background There is considerable variation in the functionality of bioethical services in different institutions and countries for children in hospital, despite new challenges due to increasing technology supports for children with serious illness and medical complexity. We aimed to understand how bioethics services address bioethical concerns that are increasingly encountered in paediatric intensive care. Methods A qualitative descriptive design was used to describe clinician’s perspectives on the functionality of clinical bioethics services for paediatric intensive care units. Clinicians who were members (...)
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  • Re-examining the Ethics of Genetic Counselling in the Genomic Era.Will Schupmann, Leila Jamal & Benjamin E. Berkman - 2020 - Journal of Bioethical Inquiry 17 (3):325-335.
    Respect for patient autonomy has served as the dominant ethical principle of genetic counselling, but as we move into a genomic era, it is time to actively re-examine the role that this principle plays in genetic counselling practice. In this paper, we argue that the field of genetic counselling should move away from its emphasis on patient autonomy and toward the incorporation of a more balanced set of principles that allows counsellors to offer clear guidance about how best to obtain (...)
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  • Embedded Journalists or Empirical Critics? The Nature of The “Gaze” in Bioethics.Michael A. Ashby & Bronwen Morrell - 2018 - Journal of Bioethical Inquiry 15 (3):305-307.
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  • Sheltering in chaos: parents’ experiences when facing moral challenges in childhood cancer care.Charlotte Weiner, Pernilla Pergert, Anders Castor, Bert Molewijk & Cecilia Bartholdson - 2024 - Ethics and Behavior 34 (8):545-558.
    Childhood cancers are life-threatening diseases that affect the whole family. During the treatment moral situations might arise. Research on how parents perceive moral challenges in childhood cancer care is sparse. The aim was to explore parents’ main concern, and how they deal with their main concern, when facing moral challenges in childhood cancer care. Data collection included focus group interviews with parents. The data analysis was carried out according to a classical theory and revealed the core category “Sheltering in chaos”. (...)
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  • Preventing moral conflicts in patient care: Insights from a mixed-methods study with clinical experts.Jan Https://Orcidorg Schürmann, Gabriele Vaitaityte & Stella Reiter-Theil - 2023 - Clinical Ethics 18 (1):75-87.
    Background and aim Healthcare professionals are regularly exposed to moral challenges in patient care potentially compromising quality of care and safety of patients. Preventive clinical ethics support aims to identify and address moral problems in patient care at an early stage of their development. This study investigates the occurrence, risk factors, early indicators, decision parameters, consequences and preventive measures of moral problems. Method Semi-structured expert interviews were conducted with 20 interprofessional healthcare professionals from 2 university hospitals in Basel, Switzerland. A (...)
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  • Limiting court involvement in end-of-life treatment decisions for children in England & Wales: Advantages and limitations of a specialist committee deciding on futility.Veronica M. E. Neefjes - forthcoming - Clinical Ethics.
    Given the costs of litigation high-profile court cases about withdrawing life-sustaining medical treatment for seriously ill children in England & Wales tend to be followed by discussion about how to avoid similar cases in future. Whilst two proposals, mediation and replacing the best interests standard with a harm threshold, have received broad attention, a proposal to replace the court by a specialist review committee has not been further investigated. This article analyses the effects of a putative replacement of the courts (...)
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  • Shared responsibility for decision-making in NICU: A scoping review.Hanna-Kaisa Pellikka, Anna Axelin, Ulla Sankilampi & Mari Kangasniemi - 2023 - Nursing Ethics 30 (3):462-476.
    Background Shared responsibility is an essential part of family-centred care and it characterizes the relationship between parents and healthcare professionals. Despite this, little is known about their shared responsibility for decision-making in neonatal intensive care units. Aim The aim of this scoping review was to identify previous studies on the subject and to summarize the knowledge that has been published so far. Method The review was conducted using electronic searches in the CINAHL, PubMed, Scopus and PsycINFO databases and manual searches (...)
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  • Parent moral distress in serious pediatric illness: A dimensional analysis.Kim Mooney-Doyle & Connie M. Ulrich - 2020 - Nursing Ethics 27 (3):821-837.
    Background: Moral distress is an important and well-studied phenomenon among nurses and other healthcare providers, yet the conceptualization of parental moral distress remains unclear. Objective: The objective of this dimensional analysis was to describe the nature of family moral distress in serious pediatric illness. Design and methods: A dimensional analysis of articles retrieved from a librarian-assisted systematic review of Scopus, CINAHL, and PsychInfo was conducted, focusing on how children, parents, other family members, and healthcare providers describe parental moral distress, both (...)
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