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  1. What Matters to the Parents? a qualitative study of parents' experiences with life-and-death decisions concerning their premature infants.Berit Støre Brinchmann, Reidun Førde & Per Nortvedt - 2002 - Nursing Ethics 9 (4):388-404.
    The aim of this article is to generate knowledge about parents’ participation in life-and-death decisions concerning their very premature and/or critically ill infants in hospital neonatal units. The question is: what are parents’ attitudes towards their involvement in such decision making? A descriptive study design using in-depth interviews was chosen. During the period 1997-2000, 20 qualitative interviews with 35 parents of 26 children were carried out. Ten of the infants died; 16 were alive at the time of the interview. The (...)
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  • Giving “Moral Distress” a Voice: Ethical Concerns among Neonatal Intensive Care Unit Personnel.Pam Hefferman & Steve Heilig - 1999 - Cambridge Quarterly of Healthcare Ethics 8 (2):173-178.
    Advances in life-sustaining medical technology as applied to neonatal cases frequently present ethical concerns with a strong emotional component. Neonates delivered in the gestation period of approximately 23held hostagemoral distress” regarding aggressive courses of treatment for some patients. Some of this distress results from a feeling of powerlessness regarding treatment decisions, coupled with a high intensity of hands-on contact with the patients and family. Lack of authority coupled with high responsibility may itself be a recipe for a different kind of (...)
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