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  1. Reporting Race and Ethnicity in Genetics Research: Do Journal Recommendations or Resources Matter?Pamela Sankar, Mildred K. Cho, Keri Monahan & Kamila Nowak - 2015 - Science and Engineering Ethics 21 (5):1353-1366.
    Appeals to scrutinize the use of race and ethnicity as variables in genetics research notwithstanding, these variables continue to be inadequately explained and inconsistently used in research publications. In previous research, we found that published genetic research fails to follow suggestions offered for addressing this problem, such as explaining the basis on which these labels are assigned to populations. This study, an analysis of genetic research articles using race or ethnicity terms, explores possible features of journals that are associated with (...)
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  • Human genetic research, race, ethnicity and the labeling of populations: recommendations based on an interdisciplinary workshop in Japan.Yasuko Takezawa, Kazuto Kato, Hiroki Oota, Timothy Caulfield, Akihiro Fujimoto, Shunwa Honda, Naoyuki Kamatani, Shoji Kawamura, Kohei Kawashima, Ryosuke Kimura, Hiromi Matsumae, Ayako Saito, Patrick E. Savage, Noriko Seguchi, Keiko Shimizu, Satoshi Terao, Yumi Yamaguchi-Kabata, Akira Yasukouchi, Minoru Yoneda & Katsushi Tokunaga - 2014 - BMC Medical Ethics 15 (1):33.
    A challenge in human genome research is how to describe the populations being studied. The use of improper and/or imprecise terms has the potential to both generate and reinforce prejudices and to diminish the clinical value of the research. The issue of population descriptors has not attracted enough academic attention outside North America and Europe. In January 2012, we held a two-day workshop, the first of its kind in Japan, to engage in interdisciplinary dialogue between scholars in the humanities, social (...)
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  • Networking Genetics, Populations, and Race.Lynette Reid - 2009 - American Journal of Bioethics 9 (6-7):50-52.
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  • Genetic Privacy: Might There Be a Moral Duty to Share One's Genetic Information?Heidi Malm - 2009 - American Journal of Bioethics 9 (6-7):52-54.
    In discussions about direct-to-consumer availability of genetic testing, much attention has been given to identifying the various risks and benefits that individuals might incur. For example, upon...
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