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What’s Good for Them? Best Interests and Severe Disorders of Consciousness

In Walter Sinnott-Armstrong (ed.), Finding Consciousness: The Neuroscience, Ethics, and Law of Severe Brain Damage. Oxford University Press USA. pp. 180-206 (2016)

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  1. The ethical relevance of the unconscious.Michele Farisco & Kathinka Evers - 2017 - Philosophy, Ethics, and Humanities in Medicine 12:11.
    BackgroundEthical analyses of disorders of consciousness traditionally focus on residual awareness. Going one step further, this paper explores the potential ethical relevance of the unawareness retained by patients with disorders of consciousness, focusing specifically on the ethical implications of the description of the unconscious provided by recent scientific research.MethodsA conceptual methodology is used, based on the review and analysis of relevant scientific literature on the unconscious and the logical argumentation in favour of the ethical conclusions.ResultsTwo conditions that are generally considered (...)
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  • Residual Cognitive Capacities in Patients With Cognitive Motor Dissociation, and Their Implications for Well-Being.Mackenzie Graham - 2021 - Journal of Medicine and Philosophy 46 (6):729-757.
    Patients with severe disorders of consciousness are thought to be unaware of themselves or their environment. However, research suggests that a minority of patients diagnosed as having a disorder of consciousness remain aware. These patients, designated as having “cognitive motor dissociation”, can demonstrate awareness by imagining specific tasks, which generates brain activity detectable via functional neuroimaging. The discovery of consciousness in these patients raises difficult questions about their well-being, and it has been argued that it would be better for these (...)
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  • Brain, consciousness and disorders of consciousness at the intersection of neuroscience and philosophy.Michele Farisco - 2019 - Dissertation, Uppsala University
    The present dissertation starts from the general claim that neuroscience is not neutral, with regard to theoretical questions like the nature of consciousness, but it needs to be complemented with dedicated conceptual analysis. Specifically, the argument for this thesis is that the combination of empirical and conceptual work is a necessary step for assessing the significant questions raised by the most recent study of the brain. Results emerging from neuroscience are conceptually very relevant in themselves but, notwithstanding its theoretical sophistication, (...)
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  • Well-Being After Severe Brain Injury: What Counts as Good Recovery?Mackenzie Graham & Lorina Naci - 2021 - Cambridge Quarterly of Healthcare Ethics 30 (4):613-622.
    Disorders of consciousness continue to profoundly challenge both families and medical professionals. Once a brain-injured patient has been stabilized, questions turn to the prospect of recovery. However, what “recovery” means in the context of patients with prolonged DOC is not always clear. Failure to recognize potential differences of interpretation—and the assumptions about the relationship between health and well-being that underlie these differences—can inhibit communication between surrogate decisionmakers and a patient’s clinical team, and make it difficult to establish the goals of (...)
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