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  1. Proyecto genoma humano veinte años después: el pangenoma humano.Gilberto A. Gamboa-Bernal - 2023 - Persona y Bioética.
    La noticia de la conclusión del primer pangenoma humano ocurre veinte años después de que se pudo contar con una versión de referencia de la información genética completa de la especie humana. Las limitaciones técnicas de ese tiempo permitieron que esa versión tuviera errores y varias lagunas de la información genética. Ahora es posible contar con un nuevo atlas gigante con información que permite evidenciar la gran diversidad genética de la especie humana. Este trabajo está siendo realizado por el Consorcio (...)
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  • A contextual integrity approach to genomic information: what bioethics can learn from big data ethics.Nina F. de Groot - forthcoming - Medicine, Health Care and Philosophy:1-13.
    Genomic data is generated, processed and analysed at an increasingly rapid pace. This data is not limited to the medical context, but plays an important role in other contexts in society, such as commercial DNA testing, the forensic setting, archaeological research, and genetic surveillance. Genomic information also crosses the borders of these domains, e.g. forensic use of medical genetic information, insurance use of medical genomic information, or research use of commercial genomic data. This paper (1) argues that an informed consent (...)
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  • Is It Just for a Screening Program to Give People All the Information They Want?Lisa Dive, Isabella Holmes & Ainsley J. Newson - 2023 - American Journal of Bioethics 23 (7):34-42.
    Genomic screening at population scale generates many ethical considerations. One is the normative role that people’s preferences should play in determining access to genomic information in screening contexts, particularly information that falls beyond the scope of screening. We expect both that people will express a preference to receive such results and that there will be interest from the professional community in providing them. In this paper, we consider this issue in relation to the just and equitable design of population screening (...)
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