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  1. Cognitive Transformation, Dementia, and the Moral Weight of Advance Directives.Emily Walsh - 2020 - American Journal of Bioethics 20 (8):54-64.
    Dementia patients in the moderate-late stage of the disease can, and often do, express different preferences than they did at the onset of their condition. The received view in the philosophical literature argues that advance directives which prioritize the patient’s preferences at onset ought to be given decisive moral weight in medical decision-making. Clinical practice, on the other hand, favors giving moral weight to the preferences expressed by dementia patients after onset. The purpose of this article is to show that (...)
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  • Flaws in advance directives that request withdrawing assisted feeding in late-stage dementia may cause premature or prolonged dying.Nathaniel Hinerman, Karl E. Steinberg & Stanley A. Terman - 2022 - BMC Medical Ethics 23 (1):1-26.
    BackgroundThe terminal illness of late-stage Alzheimer’s and related dementias is progressively cruel, burdensome, and can last years if caregivers assist oral feeding and hydrating. Options to avoid prolonged dying are limited since advanced dementia patients cannot qualify for Medical Aid in Dying. Physicians and judges can insist on clear and convincing evidence that the patient wants to die—which many advance directives cannot provide. Proxies/agents’ substituted judgment may not be concordant with patients’ requests. While advance directives can be patients’ last resort (...)
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