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  1. Dementia, Healthcare Decision Making, and Disability Law.Megan S. Wright - 2019 - Journal of Law, Medicine and Ethics 47 (S4):25-33.
    Persons with dementia often prefer to participate in decisions about their health care, but may be prevented from doing so because healthcare decision-making law facilitates use of advance directives or surrogate decision makers for persons with decisional impairments such as dementia. Federal and state disability law provide alternative decision-making models that do not prevent persons with mild to moderate dementia from making their own healthcare decisions at the time the decision needs to be made. In order to better promote autonomy (...)
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  • Cognitive Transformation, Dementia, and the Moral Weight of Advance Directives.Emily Walsh - 2020 - American Journal of Bioethics 20 (8):54-64.
    Dementia patients in the moderate-late stage of the disease can, and often do, express different preferences than they did at the onset of their condition. The received view in the philosophical literature argues that advance directives which prioritize the patient’s preferences at onset ought to be given decisive moral weight in medical decision-making. Clinical practice, on the other hand, favors giving moral weight to the preferences expressed by dementia patients after onset. The purpose of this article is to show that (...)
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  • Beyond competence: advance directives in dementia research.Karin Roland Jongsma & Suzanne van de Vathorst - 2015 - Monash Bioethics Review 33 (2-3):167-180.
    Dementia is highly prevalent and incurable. The participation of dementia patients in clinical research is indispensable if we want to find an effective treatment for dementia. However, one of the primary challenges in dementia research is the patients’ gradual loss of the capacity to consent. Patients with dementia are characterized by the fact that, at an earlier stage of their life, they were able to give their consent to participation in research. Therefore, the phase when patients are still competent to (...)
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  • Convention on the Rights of Persons with Disabilities.United Nations - 2009 - Jahrbuch für Wissenschaft Und Ethik 14 (1):203-226.
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  • The implausibility of response shifts in dementia patients.Karin Rolanda Jongsma, Mirjam A. G. Sprangers & Suzanne van de Vathorst - 2016 - Journal of Medical Ethics 42 (9):597-600.
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  • Best interest determinations and substituted judgement : personhood and precedent autonomy.Andrew McGee - 2014 - In Charles Foster, Jonathan Herring & Israel Doron (eds.), The law and ethics of dementia. Portland, Oregon: Hart Publishing.
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