- (2 other versions)Pharmacogenetics: the bioethical problem of DNA investment banking.Oonagh P. Corrigan & Bryn Williams-Jones - 2006 - Studies in History and Philosophy of Science Part C: Studies in History and Philosophy of Biological and Biomedical Sciences 37 (3):550-565.details
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Normative and Non-normative Concepts: Paternalism and Libertarian Paternalism.Kalle Grill - 2013 - In Daniel Strech, Irene Hirschberg & Georg Marckmann (eds.), Ethics in Public Health and Health Policy: Concepts, Methods, Case Studies. Dordrecht: Springer. pp. 27-46.details
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Privacy and property in the biobank context.Lars Oystein Ursin - 2010 - HEC Forum 22 (3):211-224.details
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Caught you: threats to confidentiality due to the public release of large-scale genetic data sets. [REVIEW]Matthias Wjst - 2010 - BMC Medical Ethics 11 (1):1-4.details
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Why Communities and Their Goods Matter: Illustrated with the Example of Biobanks.Heather Widdows & Sean Cordell - 2011 - Public Health Ethics 4 (1):14-25.details
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Legal rights in human bodies, body parts and tissue.Loane Skene - 2007 - Journal of Bioethical Inquiry 4 (2):129-133.details
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Communicating genetic information in the family: the familial relationship as the forgotten factor.R. Gilbar - 2007 - Journal of Medical Ethics 33 (7):390-393.details
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The right not to know: an autonomy based approach.R. Andorno - 2004 - Journal of Medical Ethics 30 (5):435-439.details
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Defining Ourselves: Personal Bioinformation as a Tool of Narrative Self-Conception.Emily Postan - 2016 - Journal of Bioethical Inquiry 13 (1):133-151.details
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Donor perspectives on issues associated with donation of genetic Samples and information: An australian viewpoint. [REVIEW]Margaret Otlowski - 2007 - Journal of Bioethical Inquiry 4 (2):135-150.details
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(1 other version)Recognizing the Right Not to Know: Conceptual, Professional, and Legal Implications.Graeme Laurie - 2014 - Journal of Law, Medicine and Ethics 42 (1):53-63.details
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Building on relationships of trust in biobank research.M. G. Hansson - 2005 - Journal of Medical Ethics 31 (7):415-418.details
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Ethical Issues in Consent for the Reuse of Data in Health Data Platforms.Alex McKeown, Miranda Mourby, Paul Harrison, Sophie Walker, Mark Sheehan & Ilina Singh - 2021 - Science and Engineering Ethics 27 (1):1-21.details
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(1 other version)Review of “Reframing Rights: Bioconstitutionalism in the Genetic Age” byS. Jasanoff (ed.). [REVIEW]Atina Krajewska - 2013 - Life Sciences, Society and Policy 9 (1).details
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The complexities of ethical evaluation of genomics research.R. Hoedemaekers, B. Gordijn, Y. Hekster & F. Van Agt - 2006 - HEC Forum 18 (1):18-36.details
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Children, Longitudinal Studies, and Informed Consent.Gert Helgesson - 2005 - Medicine, Health Care and Philosophy 8 (3):307-313.details
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An “Ethical Moment” in Data Sharing.Catherine Heeney - 2017 - Science, Technology, and Human Values 42 (1):3-28.details
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Broad consent under the GDPR: an optimistic perspective on a bright future.Dara Hallinan - 2020 - Life Sciences, Society and Policy 16 (1):1-18.details
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(1 other version)Commentary.G. Laurie - 2004 - Journal of Medical Ethics 30 (5):439-440.details
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Open consent, biobanking and data protection law: can open consent be ‘informed’ under the forthcoming data protection regulation?Michael Friedewald & Dara Hallinan - 2015 - Life Sciences, Society and Policy 11 (1):1-36.details
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Being, doing, and knowing: Developing ethical competence in health care. [REVIEW]S. Eriksson, G. Helgesson & A. T. Höglund - 2007 - Journal of Academic Ethics 5 (2-4):207-216.details
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Who's minding the shop? The role of Canadian research ethics boards in the creation and uses of registries and biobanks.Elaine Gibson, Kevin Brazil, Michael D. Coughlin, Claudia Emerson, Francois Fournier, Lisa Schwartz, Karen V. Szala-Meneok, Karen M. Weisbaum & Donald J. Willison - 2008 - BMC Medical Ethics 9 (1):17-.details
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Toward a Framework for Assessing Privacy Risks in Multi-Omic Research and Databases.Charles Dupras & Eline M. Bunnik - 2021 - American Journal of Bioethics 21 (12):46-64.details
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Familial genetic risks: how can we better navigate patient confidentiality and appropriate risk disclosure to relatives?Edward S. Dove, Vicky Chico, Michael Fay, Graeme Laurie, Anneke M. Lucassen & Emily Postan - 2019 - Journal of Medical Ethics 45 (8):504-507.details
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In search of a post-genomic bioethics: Lessons from Political Biology.Sarah Chan - 2018 - History of the Human Sciences 31 (1):116-123.details
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Your Biobank, Your Doctor?: The right to full disclosure of population biobank findings.Jasper Bovenberg, Tineke Meulenkamp, Ellen Smets & Sjef Gevers - 2009 - Genomics, Society and Policy 5 (1):1-25.details
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Disclosure 'downunder': misadventures in Australian genetic privacy law.B. Arnold & W. Bonython - 2014 - Journal of Medical Ethics 40 (3):168-172.details
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From ‘Consent or Anonymise’ to ‘Share and Protect’: Facilitating Access to Surplus Tissue for Research Whilst Safeguarding Donor Interests.Catherine Blewett - 2021 - Health Care Analysis 29 (3):213-230.details
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Democracy and genetic privacy: The value of bodily integrity. [REVIEW]Ludvig Beckman - 2004 - Medicine, Health Care and Philosophy 8 (1):97-103.details
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Is it ethical to deny genetic research participants individualised results?P. Affleck - 2009 - Journal of Medical Ethics 35 (4):209-213.details
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Is genetic information family property? Expanding on the argument of confidentiality breach and duty to inform persons at risk.Yordanis Enríquez Canto & Barbara Osimani - 2015 - Persona y Bioética 19 (1).details
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